Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Enterolab Testing


kallie

Recommended Posts

kallie Rookie

Hi everyone! I am new here. I have figured out that I have some kind of gluten and milk sensitivities. I have bad digestive problems, water retention, headaches, hair loss that all disappear as soon as i stop eating gluten and dairy. I was recently diagnosed with iron deficiecy. Does anyone have any experience with the enterolab tests? Are they easy to do? Will my insurance cover them? I have stopped all gluten and most dairy so should I resume eating gluten before the test?

Any resposes would be very much appreciated.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest barbara3675

You don't have to go back to eating dairy or gluten to do the Enterolab tests. They are not difficult if you follow the instructions very carefully. I did the complete panel with the gene testing too and feel it was so worth it. My results came back in a little less than two weeks via email. I had tested negative on a blood test from the doctor's office, but positive for dairy and gluten through Enterolab. Now that I have been gluten-free for nearly a year, the dairy thing has gotten a lot better. I can do most all processed dairy, but still use rice milk on my cereal. I never drink milk so that isn't an issue. I have a granddaughter who has celiac disease and I feel much better now that I don't eat gluten. I no longer have pains in my stomach and before I either had diarreah or consitpation and now that is completely resolved.

Hope you do the Enterolab thing....I think those tests will be the gold standard in the years to come. Barbara

Rachel--24 Collaborator

Can Enterolab dx Celiac Disease or do they just all come back as gluten intolerant? With the gene test does this identify whether a person has celiac disease or not? I know if you dont have the gene then you cant have celiac disease but if you DO have the gene how do you know whether you actually have Celiac or not? I'm confused about this. I'll be getting results from Enterolab in a few weeks.

-Rachel

KaitiUSA Enthusiast

An Enterolab tests for gluten sensitivity but also for malabsorption and tTG and those would indicate celiac. If you have the gene you have the predisposition for it and can have it activated at any time but it won't say whether it is activated at that time. If you don't have the gene you are 99.99% likely not to get celiac and it that case you could be gluten intolerant though. There are also genes for gluten intolerance.

kallie Rookie

Thanks for your responses. Has anyone had any luck getting insurance to cover this? I am a student and very poor right now. Thanks!

bmorrow Rookie

My insurance covered everything except the genetic testing. My daughter and I have both tested with EnteroLab, and are very pleased with them. The tests are very easy. Good Luck!

Bune Newbie

Beverly

How did you get your insurance to cover it? did you work directly with Enterolab and then submit a claim.?

Brenda


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



bmorrow Rookie

EnteroLab sent me a coded invoice and I then filed the claim with my insurance company. I am in a HMO, so it would only play 60%, but that is better than nothing.

  • 3 months later...
DianeByrd Apprentice
EnteroLab sent me a coded invoice and I then filed the claim with my insurance company. I am in a HMO, so it would only play 60%, but that is better than nothing.

<{POST_SNAPBACK}>

Wow! Can you give me any tips on getting my HMO to pay? I have Blue Cross and the medial group has denied the request to pay, so I'm appealing to the insurance company directly. With Blue Cross HMO, the medical group is responsible for paying for labwork. I haven't yet ordered the tests, hoping to first get approval.

Diane

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      25

      Headaches / Migraines and Hypoglycaemia

    2. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      25

      Headaches / Migraines and Hypoglycaemia

    3. - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

    4. - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience

    5. - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      2

      Heat intolerant... Yikes


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,152
    • Most Online (within 30 mins)
      7,748

    denise.milillo
    Newest Member
    denise.milillo
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
    • Scott Adams
      The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.      
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.