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New Here, My Journey


AVR1962

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AVR1962 Collaborator

In Nov '10 I started a herbal detox. I had been so tired, took a class about increasing metabolism and this product was being sold. 2 months into taking this mixed herb supplement I started getting REALLY sick. Ended up in ER with chest pains, heart palpitations and my blood pressure was high. Docs found nothing wrong, sent me for a stress test on my heart and wanted me to make an appt with GYN to see if any of this was related to female symptoms or menopause, I'm 48. Clean bill of health.

Meantime I was getting sicker. 2 weeks later I connected this to the supplement and went off. Doc told me it could take up to 3 months for this to completely leave my system. I was sick, sick, sick. My gallbladder, pancreas, spleen and kidneys swelled. My stomach felt like like it was raw and acid was being continually poured in. I was off-balance, extrememly forgetful, vision blurred (depth perception off). I thought I was losing my mind.

Tons of labs tests were done, they tested me for what seemed like everything under the sun, everything was negative. A family member heard my stomach one day and suggested that I try going off wheat for just 10 days and I did. What did I have to lose at this point! I actually went 3 weeks then tried bread, had a reaction. Then tried pasta and had a reaction. Told doc what I found and he then tested me for Celiac. Not knowing anything about this at the time, I realize (now) he tested me after I had restricted my gluten intake, test came back negative. While I was getting better in this time.....burning in stomach went away, I was still off-balance, my vision was blurred, and still having alot of trouble with memory.

Went to Gastro, he decided he wanted to explore the gluten intolerance more, wanted to retest me for Celiacs. All this had gone on for 4 months at this point. Every day I was off balance and struggling with memory. I was having muscle spams and twitches. Doc said that if I was having a reaction to glutens it could be possible for my minerals to be deficent and causing my twitches and spams. I started eating potassium rich foods and started taking B6, B12, zinc, magnesium and a probiotic. All of that helped. Then he wanted me to go off dairy and start loading on glutens with plans to retest me for Celiacs in 2 months.

The day after I was back on glutens I became sick all over again and as I continued I was becoming more and more sick. The burning in the stomach returned, I was bad. Day 12 I went back to Gastro and told him what was going on, asked him the importance of this test and then decided I had to go off glutens without going thru with the testing as he wanted me to continue this for 6 more weeks and I could not do it. 24 hours after being off glutens my stomach stopped burning.

This is only the second day off glutens right now. I have continued with my mineral intake. And each morning I have been taking an anti-inflamitory which has helped my vision, memory, and balance issues. They are still there but I am hoping that as my system heals these symtoms will go away too.


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    • Scott Adams
      It’s great that you’re taking the time to research products carefully for your son with celiac disease—especially since accidental gluten exposure through skincare can be a real concern for sensitive individuals. Based on the ingredient lists you’ve shared, none of the products appear to contain obvious sources of gluten like wheat, barley, or rye derivatives. Ingredients like glycerin and tocopherols (not listed here but often a concern) can sometimes be derived from wheat, but many manufacturers use plant-based or synthetic sources. SHIELD’s transparency and willingness to share their full ingredient list is a good sign, and their note about not intentionally adding gluten is reassuring. Still, because ingredient sourcing can vary and sensitivities differ from person to person, it’s wise that you’ve reached out to your GI specialist to be sure these products are safe for your son’s specific needs. In the meantime, if you do try any of the products, consider patch-testing them first and watching closely for any signs of skin irritation or reactions. PS - Most people with celiac disease won't react to skin products that may contain gluten, but I still recommend finding gluten-free products.
    • LynnM
      Greetings Trents and Scott. This is the first time I'm posting here so I apologize in advance if I'm not replying properly. My 13 YO was diagnosed at age 5 and once gluten was removed from his diet, he grew 3" in a year, skin became much better and dark circles around his eyes disappeared. Today his numbers were very high and our new dietician discovered his face cream (Clinique dramatically different lotion) contained gluten. My fault for not checking.    His acne really has only just started and he's using OCT gluten-free products but the SHIELD is nothing short of miraculous for my 16 YO son and the 13 YO is eager to start. I will await his dietician's reply or google each ingredient.    I don't want to put him on that Rx as it's not that bad and isn't painful either. Just a boy starting 8th grade and doesn't want bad acne.    When I hear back I will circle back. 
    • Scott Adams
      That happened to me as well @trents! I always wondered it that regimen caused my celiac disease! 
    • trents
      I see nothing in the ingredient list that concerns me from a gluten intolerant perspective. Historically, how has your 13 yr. old been treated for his acne? When I was a teenager I had acne issues (this was in the 1960s) and was put on a long term regimin of tetracycline. It helped the acne but I am convinced it altered my gut microbiome and contributed to the development of celiac disease.
    • LynnM
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