Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Just Wanted To Say Hello


elephantofsuprise

Recommended Posts

elephantofsuprise Newbie

I just wanted to say hello, and let you all know that I have been lurking here for a while. I just got tested yesterday and I am 'hoping' that I am a celiac and it's not just because you all seem so awesome ;) I having been struggling with the many symptoms of Celiac Disease for as long as I can remember and have gone to various doctors,(colonoscopy :blink: , eye doctors for night blindness, eating has been painful because of my tongue (my doctor got a chuckle out of diagnosing me with "Scrotal Tongue" but said there was nothing he could do for me), etc. etc. Go figure!! . Finally about 2 months ago I read an article in "Fitness" magazine that described me to a 'T', it was about Celiac. A light at the end of the tunnel? I am so happy at the thought that I might have a way out of the pain and misery of feeling horrible all the time by regulating what I eat. I will be so disappointed if my tests come back negative because I will still be stuck with the symptoms, the unbelieving doctors, and no hope of feeling normal. I will probably continue to just lurk until I get the results back and if they come back positive, watch out!! I wanted to let you know that reading your posts have been very encouraging.

Melissa


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rachel--24 Collaborator

Hi,

I'm just like you...waiting for the results. I can't just "lurk" though! Lol...thats just not me....I gotta know everything right now! Well...I know exactly how you feel and I hope your tests come back positive so that you can move on :)

Good luck!!!

-Rachel

cgd Newbie

Hi and welcome. Even your results come back negative, you can try a dietary challenge. If you feel better, then you know at least you have a sensitivity. Good luck on your results!

KaitiUSA Enthusiast

Welcome :D

I hope you get the answers you are looking for. Let us know how the results come back.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Russ H replied to Ginger38's topic in Related Issues & Disorders
      8

      Shingles - Could It Be Related to Gluten/ Celiac

    2. - Russ H replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

    3. - Scott Adams commented on Scott Adams's article in Additional Concerns
      4

      Going Low-Gluten May Harm Good Gut Bacteria, Researchers Warn

    4. - chrisinpa commented on Scott Adams's article in Additional Concerns
      4

      Going Low-Gluten May Harm Good Gut Bacteria, Researchers Warn

    5. - Flash1970 replied to Ginger38's topic in Related Issues & Disorders
      8

      Shingles - Could It Be Related to Gluten/ Celiac


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,504
    • Most Online (within 30 mins)
      7,748

    MG3E
    Newest Member
    MG3E
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Russ H
      I hope you are on the mend soon. About 1 in 5 people who contracted chicken pox as a child go on to develop shingles in later life - it is not uncommon. There are 5 known members of the herpes virus family including chicken pox that commonly infect humans, and they all cause lifelong infections. The exact cause of viral reactivation as in the case of shingles or cold sores is not well understood, but stress, sunburn and radiotherapy treatment are known triggers. Some of the herpes viruses are implicated in triggering autoimmune diseases: Epstein-Barr virus is suspected of triggering multiple sclerosis and lupus, and there is a case where it is suspected of triggering coeliac disease. As to whether coeliac disease can increase the likelihood of viral reactivation, there have been several cohort studies including a large one in Sweden suggesting that coeliac disease is associated with a moderate increase in the likelihood of developing shingles in people over the age of 50. US 2024 - Increased Risk of Herpes Zoster Infection in Patients with Celiac Disease 50 Years Old and Older Sweden 2018 - Increased risk of herpes zoster in patients with coeliac disease - nationwide cohort study
    • Russ H
      BFree bread is fortified with vitamins and minerals as is ASDA own-brand gluten-free bread. All the M&S bread seems to be fortified also.
    • Flash1970
      You might try Heallix.  It's a silver solution with fulvic acid. I just put the solution on with a cotton ball.  It seemed to stop the nerve pain. Again,  not in your eyes or ears.   Go to heallix.com to read more about it and decide for yourself Also,  I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out. 
    • trents
      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being caused by something else.
    • Roses8721
      Yes, i pulled raw ancetry data and saw i have 2/3 markers for DQ2.2 but have heard from friends in genetics that this raw data can be wildly innacurate
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.