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Why Do We Need To Check Shampoo, Soap, Etc?


tasha

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tasha Apprentice

I think I've missed something here. :unsure: I was told by my dietitian to check all my cosmetics, hair stuff, etc. to see if they are gluten free and it appears that everyone on here has done that as well. I just haven't clued in as to why this is necessary.

I did check all the stuff I use on my lips but, if I don't have DH, why should I be checking all of these items? None of this stuff finds its way to my digestive system.

Anyway, I was wondering if anyone could provide reasons as to why they feel the need to check these types of things it would be really helpful...I just have no motivation to check the gluten-free status when I don't understand the reason behind it.

Thanks!


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pixiegirl Enthusiast

Well I felt like you in the beginning too and I still use some shampoo's that may contain wheat in them (my Bumble and Bumble.... but I have very fine fly away hair and it really adds body and bounce) but I use a hand held shower sprayer and make sure I rinse it down my back not near my face or mouth.

However that being said, since even a little gluten can make us sick its important for us not to ingest even a little bit and I guess those people are just being super sensitive. I don't think you can get symptoms of being glutened by rubbing a body lotion that contains gluten on your leg for example. However you have to be sure not to get it in your mouth, ie, be sure you wash it off your hands and etc. I think for a lot of people its just easier all the way around to be totally gluten free.

Susan

KaitiUSA Enthusiast

Any avenue of getting gluten into your mouth needs to be crossed off. It's easy to get these products into your mouth. It is not a level of sensitivity, celiac is an all or nothing thing and even the smallest bit of gluten can cause damage.

I was using lip balm a while back that turned out to have vitamin e derived from wheat and I was extremely sick from it. Some people may or may not get symptoms but it still does the damage.

Take soap for example, you wash your hands, say with gluten containing soap. After you wash your hands you prepare your food. Well, now your food has traces of gluten...same with lotions that you put on your hands.

Now I use all gluten free products so I know I don't have to worry about that. It's easier for that stuff to get into your mouth then you think.

With lipsticks it is a no brainer-it is right on your lips and will most definitely get traces into your mouth. I think that makeups are essential in needing to be gluten free.

FaithInScienceToo Contributor

WOW....

I just now realized that I DO need to get rid of ALL of my gluten-containing skin products...

I had thought that it wasn't necessary to do this beyond things that go directly on my lips or in my mouth...

BUT...ALL of us touch our skin, and DO risk contamination...and it WILL happen if we use gluten-containing skin products...

No wonder I still have symptoms now and again, even when I think I am 100% gluten-free ...

Well...I now have more homework to do, and I have MANY UN-OPENED products to part with, as I stock up when I see sales of expensive stuff I have been using...but, I have a 15-year-old niece who will be in heaven to receive them!

And...I have just begun to date a non-Celiac...whom I REALLY LIKE to touch and kiss :-)

Good grief...

Maybe I should make a "non-gluten skin care products" basket for him when I shop for my new products?

I should probably give him AT LEAST a gluten-free chapstick...since he plays harmonica, and I bet he needs one now and again...

I need a little bit this morning, as we kissed a lot last night ;-)

And....I kissed him after he drank a beer :(

...I didn't even think about it until I was driving home from our date...

but, it had been 4 months since last kissing someone, so I guess I get 'a break' on this little error...

I had a lovely night sweat last night :(, and some weirdo dreams...(but my period is due, so it could be from that...)

Anyway...I will talk to him about not being able to kiss him after he drinks beer...I only mentioned it to him briefly in an e-mail...and EVEN I FORGOT!!!

Well....I have a feeling he'll be switching to soda or wine around me...and/or trying out some of those new gluten-free beers? :-)

I guess this will be a good measure of his continued interest in me ...not a bad thing, actually....

OK...well....

THANKS to those of you who have pushed this issue...

LOVE YOU ALL!

Gina

frenchiemama Collaborator

Yeah, I had to give up my favorite hair product of all time because the second ingredient was "hydrolized wheat protein" and I have a nervous habit of twisting my hair ALL the time. Boo.

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    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
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      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
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