-
Welcome to Celiac.com!
You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.
-
Celiac.com Sponsor (A1):
Celiac.com Sponsor (A1-M):
-
Get Celiac.com Updates:Support Our Content
-
Get Celiac.com Updates:Support Celiac.com:
-
Celiac.com Sponsor (A17):
Celiac.com Sponsor (A17):
Celiac.com Sponsors (A17-M):
-
Recent Activity
-
- xxnonamexx replied to xxnonamexx's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms2Elimination diet think I may be Gluten tolerant next steps to get tested? Questions
Thanks for the insights. So 4 weeks I should eat 4 slices of whole wheat bread while maintaining gluten free diet otherwise then schedule blood tests? Would eating the gluten damage my body intestine already if its bad? What do I need to look for in a whole wheat bread to find out if its 10g of gluten. I don't want to take too much. I want to be able to tolerate... -
- trents replied to LeeRoy83's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms4UK Member Looking For Help - Recent Test
Your physician will likely refer you for a GI consult for the purpose of an endoscopy with biopsy of the small bowel lining to check for the damage to the villi caused by celiac disease. As Christiana said, keep eating generous amounts of gluten until all testing is over or you will invalidate any future testing or procedures. -
- xxnonamexx posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms0
What would a diagnosis tell me?
If I feel better after eliminating gluten from my diet I am curious if I get diagnosed via blood test what would that tell me differently besides avoiding gluten? Also if I had to do an Endoscopy and took biopsy how would that help me besides to tell me avoid gluten strictly? Also I read about finding a dietician but again what would they tell me differently... -
- trents replied to xxnonamexx's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms2
Elimination diet think I may be Gluten tolerant next steps to get tested? Questions
Welcome to the forum, @xxnonamexx! First, some terminology clarification. There is celiac disease and there is NCGS (Non Celiac Gluten Sensitivity). NCGS is also referred to simply as gluten sensitivity. You will also hear the term "gluten intolerance" which is a generic term for either. But in the real world, these terms often get used indiscriminately... -
- cristiana replied to LeeRoy83's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms4UK Member Looking For Help - Recent Test
Okay, that's useful. Yes, it sounds like you are out of range, which is suggestive of coeliac disease. Your next step must be to see your GP and see what they suggest but for the time being, keep on eating gluten as s/he may want to order an endoscopy which is the next stage in the diagnosis journey. If you have any questions meanwhile, do come back to...
-
-
Celiac.com Sponsor (A19):
-
Member Statistics
-
Celiac.com Sponsor (A20):
-
Forum Statistics
-
Total Topics121.2k
-
Total Posts71.5k
-
-
Celiac.com Sponsor (A22):
-
Who's Online (See full list)
-
Celiac.com Sponsor (A21):
-
Upcoming Events
-
Posts
-
The 10g of gluten daily doesn't have to come only from bread. It can include pasta, cake, wheat-based cereal, etc. I wouldn't obsess over it. The main point is, don't skimp on gluten. Eat normal amounts of wheat products just like someone would who isn't dealing with a gluten disorder. If you really want to make sure you are getting 10g of gluten daily, go to a health food store and buy a bag of pure gluten. Weigh 10g out on a food scale and mix it in with your beverages. My wife use to buy gluten powder at the health food store and add it to the dough when she was making bread - in the days before I was diagnosed with celiac disease, that is. -
By xxnonamexx · Posted
Thanks for the insights. So 4 weeks I should eat 4 slices of whole wheat bread while maintaining gluten free diet otherwise then schedule blood tests? Would eating the gluten damage my body intestine already if its bad? What do I need to look for in a whole wheat bread to find out if its 10g of gluten. I don't want to take too much. I want to be able to tolerate it as well otherwise this test will be hard. -
Your physician will likely refer you for a GI consult for the purpose of an endoscopy with biopsy of the small bowel lining to check for the damage to the villi caused by celiac disease. As Christiana said, keep eating generous amounts of gluten until all testing is over or you will invalidate any future testing or procedures.
-
By xxnonamexx · Posted
If I feel better after eliminating gluten from my diet I am curious if I get diagnosed via blood test what would that tell me differently besides avoiding gluten? Also if I had to do an Endoscopy and took biopsy how would that help me besides to tell me avoid gluten strictly? Also I read about finding a dietician but again what would they tell me differently besides avoid gluten? Thanks I am new to this and not diagnosed officially yet but trying to get a better understanding. I read so much about gluten staying in your body for weeks, years after you eat it etc. Makes me afraid to go out to eat for dinner to avoid cross contamination or travel or if I avoid gluten and all of a sudden get sick b/c gluten was in my body months earlier. -
Welcome to the forum, @xxnonamexx! First, some terminology clarification. There is celiac disease and there is NCGS (Non Celiac Gluten Sensitivity). NCGS is also referred to simply as gluten sensitivity. You will also hear the term "gluten intolerance" which is a generic term for either. But in the real world, these terms often get used indiscriminately so there is confusion. With Celiac disease, which is an autoimmune disorder, damage is done to the villous lining of the small bowel when gluten is ingested. Celiac disease and NCGS share many of the same symptoms, especially in the GI category. There is no test for NCGS. Celiac disease must first be ruled out. So, it seems to me that you could have either celiac disease or NCGS and until you undergo a proper gluten challenge and get testing done you will have to live with the ambiguity. Guidelines for the "gluten challenge" for those already having embarked on the gluten free diet but wanting to get tested have been revised in the past year or so. The current guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for at least two weeks in order to give valid test results. Personally, I think two weeks is too short and I would go for four weeks. About 8% of celiacs cannot tolerate gluten free oatmeal because the oat protein "avenin" is so similar to gluten. Adult celiacs who practice a consistently free gluten free diet can expect substantial healing of the SB villous lining in 1-3 years. We do hear anecdotal reports of people with healed villous linings being able to return to gluten consumption but they are just that - anecdotal. I do not endorse that approach.
-
Recommended Posts
Archived
This topic is now archived and is closed to further replies.