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Progression Of Untreated Celiac


Sammyj

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Sammyj Apprentice

An asymptomatic celiac can develop internal problems not associated with celiac by general doctors. Depression, Diabetics, Cancer and others also.

Can this asymptomatic celiac progress until he shows the classic signs of celiac.

I have to wonder now, how many other problems I might NOT have had I always been gluten free.

I am reading "Dangerous Grains" and it really been a good book.


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ravenwoodglass Mentor

Yes it can progress. I am a case in point. I have been celiac since childhood when I developed DH. Neuro issues came next and then fatigue and arthritis and eventually the intestinal issues became more prominent. When most folks think of asymptomatic celiac they are talking about celiac without severe gut issues but even without the gut issues other organs can be severely impacted.

I know it must be hard to be gluten free when folks don't have the severe symptoms that keep many of us strict on the diet but they still need to be strictly gluten free.

Bubba's Mom Enthusiast

I just got a book that someone here recommended..Recognizing Celiac Disease..Signs, Symptoms, Associated Disorders and Complications by Cleo J. Libonati.

In this book it tells all sorts of other things that can be "Atypical" symptoms and side effects. It's really quite amazing how gluten can affect every part of your body.

The book has charts that you can look up a symptom and it tells if it's Celiac related, or malabsorption related, and what vitamins/minerals to offset it. I highly recommend the book!

IrishHeart Veteran

I just got a book that someone here recommended..Recognizing Celiac Disease..Signs, Symptoms, Associated Disorders and Complications by Cleo J. Libonati.

In this book it tells all sorts of other things that can be "Atypical" symptoms and side effects. It's really quite amazing how gluten can affect every part of your body.

The book has charts that you can look up a symptom and it tells if it's Celiac related, or malabsorption related, and what vitamins/minerals to offset it. I highly recommend the book!

I think that may have been me. :lol: I send the link to that site and that book to everyone I can think of ---because when I was very ill and kept "googling" my many symptoms in a desparate attempt to figure it all out, I started to see the connection to gluten and celiac.

Like Ravenwood, I had dozens of conditions (before and after gastro stuff) develop in my life that make sense NOW. (gall bladder, arthritis, miscarriages, anemia, neuropathy, joint/bone pain, burning nerve pain, weak muscles, massive weight loss, insomnia, etc....) My life may have been VERY different had I known about celiac disease/gluten as a child.

Reading about the "atypical" symptoms saved my life and my sanity. I was finally DXed (after I got genetic testing) went gluten-free and started healing. It was all the atypical symptoms that perplexed the doctors and left me to suffer for many years. So, this book made sense of all the debilitating, bizarre, crippling symptoms I developed because of celiac disease and vitamin/mineral deficiencies from malabsorption.

Here is the link--take a look!

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    • trents
      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
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