Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac And Hashimoto's Disease


pattianne

Recommended Posts

pattianne Newbie

I am a mom of a 17yr old daughter who was diagnosed with celiac's in Febuary 2011. Her ttg was 85 and she had a positive endoscopy. She has no symptoms of celiac but was screened by our family dr, because of her already having Hashimoto's (Hypothyroid).

Her follow up ttg level after 5 months is 30. And her thyroid function is now boarding hyperthyroid.

I was wondering if anyone has experienced this fluctutation with their thyroid after being gluten free.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Gemini Experienced

I am a mom of a 17yr old daughter who was diagnosed with celiac's in Febuary 2011. Her ttg was 85 and she had a positive endoscopy. She has no symptoms of celiac but was screened by our family dr, because of her already having Hashimoto's (Hypothyroid).

Her follow up ttg level after 5 months is 30. And her thyroid function is now boarding hyperthyroid.

I was wondering if anyone has experienced this fluctutation with their thyroid after being gluten free.

Absolutely! This is common to those of us with both conditions and the reason is your daughter may be absorbing more of her meds now that she has been healing. It happened to me but it took longer to happen as I went many years with undiagnosed Celiac and was older. I went seriously hyperthyroid and had to re-figure the correct dosage of Nature-throid. It is also common for the thyroid to swing a bit in people with Hashi's as it is autoimmune in nature so stress or other factors may affect function. The longer she is gluten free, the better control she will have over both conditions.

Kudos to your doctor for recognizing that Hashi's is often associated with Celiac and testing her! That rarely happens.

joyw4 Newbie

Just received a positive result from my celiac panel. I am so confused though because I was reading that people with hypothyriodism have false positive results for celiac being that it is also an autoimmune disease. I was dx with graves disease at age 17. Had a thyroidectomy and now have hypothyriodism (hashimotos). Now at 40 and after being so sick for so long there may be finally can answer. I am frustrated because now they want to do a biopsy to confirm it and I'm scared it could be negative. That the blood results were positive because of the hypothyriodism. What do you think. Oh my father was dx this past year with celiac. His blood work was negative but the biopsy was positive. Would appreciate your opinion. Thanks!

eatmeat4good Enthusiast

Any degree of positive is a positive on the Celiac blood panel.

The biopsy may or may not be positive but you are allowed to go gluten free and see if it helps you. You only have to eat gluten until the biopsy is taken. Then you can eliminate it. Many people have positive blood work and negative biopsy. AND many people do not test positive on either but still have relief from being gluten free.

It sounds like you really want to try the gluten free diet to see if it helps you with your symptoms, and I think you should give it a good strict try after you have had all the testing you want to have. I opted not to test. I have Hashimoto's and Celiac (by dietary challenge). After being sick for years, NOW every Dr. I see wants me to be tested for Celiac by intestinal biopsy. But that doesn't make sense to me at all. I won't intentionally eat gluten no matter what they say. If they had suggested it when I was so sick I couldn't get out of bed, I probably would have had it done. No one can make this decision but you. It is very likely that you already have your answer. I've never heard of the hashimoto's interfering with Celiac testing, but the two often occur together. Good luck and I hope your testing is done soon, so you can see if being gluten free really helps you.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,661
    • Most Online (within 30 mins)
      7,748

    Diver Belle
    Newest Member
    Diver Belle
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Julie 911
      I finally got rhe answer and Tylenol is ok. Thanks everyone 
    • trents
      I don't see how cornstarch could alter the test results. Where did you read that?
    • knitty kitty
      For pain relief I take a combination of Thiamine (Benfotiamine), Pyridoxine B 6, and Cobalamine B12.  The combination of these three vitamins has analgesic effects.  I have back pain and this really works.  The B vitamins are water soluble and easily excreted.   Hope this helps!  Keep us posted on your results!
    • knitty kitty
      Welcome to the forum, @Xravith. I experienced similar symptoms before my diagnosis.  Mine were due to the loss of vitamins and minerals, essential nutrients we must get from our food.  With Celiac Disease, the intestinal lining, made up of thousands of villi, gets damaged and cannot absorb essential vitamins and minerals, especially the eight B vitamins.  The loss of Thiamine B 1 can cause muscle loss, inability to gain weight, edema (swelling), fatigue, migraines and palpitations.  Low thiamine can cause Gastrointestinal Beriberi with symptoms of nausea, abdominal pain and bloating.   Thiamine is only stored for a couple of weeks, so if you don't absorb enough from food daily, as the thiamine deficiency worsens physical symptoms gradually worsen.  If you're eating lots of carbs (like gluten containing foods usually do), you need more thiamine to process them (called high calorie malnutrition).  Thiamine works with all the other B vitamins, so if you're low in one, you're probably getting low in the others, too, and minerals like iron, magnesium, zinc, and calcium, as well as Vitamin D..  Talk to your doctor about checking for nutritional deficiencies.  Most doctors rarely recognize vitamin deficiency symptoms, especially in thiamine. Get a DNA test to see if you carry any Celiac genes.  If you do not have genetic markers for Celiac, it's probably IBS.  If you do have genetic markers for Celiac, it's probably Celiac.  I was misdiagnosed with IBS for years before my Celiac diagnosis.   Keep us posted on your progress. P. S. Deficiency in thiamine can cause false negatives on antibody tests, as can diabetes and anemia.  
    • Julie 911
      No she didn't because if I want to ask I have to pay 700$ for 1 hour appointment so I couldn't even ask. I read that fillers like cornstash can alter the result and tylenol contains it so that's why I tried to find someone who can answer. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.