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Could 6 Or 7 Yr Old Have It With Not Lots Of Symptoms?

mommyto2kids

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mommyto2kids Collaborator
mommyto2kids
Posted

They are tall. DD has broken her arm twice and her finger and ds has broken his leg once. Could it be their bones are not as strong? They are both extremely hyper. DD is moody and always and I mean alway hungry. She says she feels like she is going to die. Drama queen. Ds has semifrequent stomach aches. They have both had on and off diahhreah the last 2 months. They have been playing with a lot of frogs in dirty water. They don't drink it but maybe they ingested some. I don't know if these sound like anything, but please let me know.

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Juliebove Rising Star
Juliebove
Posted

Interesting. My daughter has broken her arm three times in the same place and her thumb once. She is tall. She doesn't have celiac but food allergies including wheat. What does it all mean? I don't know.

mommyto2kids Collaborator
mommyto2kids
Posted
  • Author

It is interesting. Just wondered if anyone knew. I've got an apt. for them to get tested Aug 15.

T.H. Community Regular
T.H.
Posted

It's one of the frustrating things about this stupid disease sometimes - so many symptoms that it COULD be, but might not.

My daughter and myself, both diagnosed - tall (and I've had this over 20 years, and started in childhood), our bad bones are our teeth, and very moody (Drama Queen is my daughter's middle name).

So, yeah...could be. Good that you're being tested. And if the tests are negative, but you have no answers, it might be worth your while to try the diet anyway, just to see.

Medusa Newbie
Medusa
Posted

Nobody ever got sick from gluten deficiency. :) Try the diet and see if it helps! Wait until after the tests though, since they are so soon anyway and going gluten-free now would mess them up according to the medics. A gluten-free diet is worth trying anyway though, even if you don't get a diagnosis - see all the other posts on these forums about that issue!

One of my kids is tall, very strongly built, the other petite and slim - not sure there's any correlation there. The eldest did break both bones in her forearm really badly jumping off a kitchen chair and landing on the concrete floor though (pre diagnosis). One bone snapped, the other shattered and bent like a banana. The surgeon had never seen anything like it. Looking back, I don't think it was coincidence. Both kids have terrible teeth. So does their dad and his (untested gluten-free sceptic) sister and mother. Hope that helps!

Good luck!

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    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
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