Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Confused

Diana76

By Diana76
in Coping with Celiac Disease

Recommended Posts

Diana76 Newbie
Diana76
Posted

I saw thus article in my Facebook and now I an so confused and upset. I was dx in April with celiac and it has been a struggle eating since then. Now when I am just getting a little comfortable I read this!

New Glutens Discovered to be Harmful To Health

A new research study has led to the discovery of new gluten proteins responsible for generating immune damage in patients with celiac disease.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


tictax707 Apprentice
tictax707
Posted

There is an old chinese proverb that my boss told me years ago: a full bottle makes no sound. a half bottle sloshes around. This was in light of the idea that sometimes people make a lot of noise even though they don't have the full story.

The actual article listed as a reference above studied the differences between the reactions of celiacs to wheat with the reactions to rye and barley. The whole hail mary leap of faith, no longer even true statement about gluten being found in all grains comes from god knows where. And after that I tuned out the rest of the tirade because to my understanding they are no longer making true statements.

Honestly it pisses me off that people disseminate information that is mismatched and not appropriately researched. That's all I have to say about that.

I am interested to hear the reactions of others on this board...

sreese68 Enthusiast
sreese68
Posted

Here's the abstract from the article that's referenced: Open Original Shared Link

I'm not sure how your poster on Facebook drew his conclusions from this article? I think I agree with tictax707.

Skylark Collaborator
Skylark
Posted

Wow, whoever you are following on FB has some sort of anti-grain agenda. That's one of the worst cases I've ever seen of totally taking a scientific study out of context. Unfollow/unfriend and ignore!

Some celiacs need to avoid oats, and some need to avoid dairy, but most celiacs have a full intestinal and health recovery after eliminating just wheat, rye, and barley. Stick to the gluten-free diet and you will probably be fine. If you find you still have GI trouble after a few months, we'll help you track it down.

Diana76 Newbie
Diana76
Posted
  • Author

I guess on Facebook they posted it from an article that was on a site called (Company Name Removed - They Spammed This Forum and are Banned)

I'm feeling better by the posts here. Thanks.

I'm sure I have more allergies than just the gluten but I don't always react. One day I react to milk and then I dont. I know my next step is elimination diet but I'm still grasping the gluten free diet. I also don't know if my issues is just part of the healing process or something I'm eating. It has only been since April. I see dr fassano in October for my first apnt after being dx. Hopefully he will shed some light.

I'm very grateful for the support on here. I do not know anyone in person that has this so I feel very alone. People who don't have to watch what they eat can't understand the depression and frustration that comes with this. Life revolves around food and now it's hard.

jebby Enthusiast
jebby
Posted

Dr. Haas had all of his celiacs in the first half of the 20th century avoid all grains because there was not awareness at this time that gluten was the harmful protein. It scares me that people are using his research so out of context.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley...
    2. MogwaiStripe
      - MogwaiStripe replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Gluten Issues and Vitamin D

      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease. Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/
    3. Scott Adams
      0

      Tahini Swirl Fudgy Brownies (Gluten-Free)

    4. Butch68
      - Butch68 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too. is this everyone’s experience? Can I drink it? I get dermatitis herpetiformis and don’t get instant react...
    5. trents
      - trents replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,215
    • Most Online (within 30 mins)
      7,748
    toni tay
    Newest Member
    toni tay
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Guinness, can you drink it?

      By Scott Adams · Posted

      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Gluten Issues and Vitamin D

      By MogwaiStripe · Posted

      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Guinness, can you drink it?

      By Butch68 · Posted

      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By trents · Posted

      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Scott Adams · Posted

      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.