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Wisconsin Celiacs Unite!


frenchiemama

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jcc Rookie

Hello fellow Kenoshans and Wisconsinites!

I was born in Milwaukee, grew up in Greendale, attended UWM, and have resided in Kenosha for the last 20+ years.

I've been gluten free for eight years, along with my 13 year old daughter. I've been busy advocating about gluten sensitivity ever since we realized my daughter has gluten sensitivity. She doesn't have celiac disease, but had GI, skin, and neurological symptoms related to gluten. Try googling The Gluten File and it tells her story..can't post the link here.

I don't post here very often anymore, but I browse occasionally... and felt compelled to post on this Wisconsin thread! Anyway, I would be happy to help any of you who are new to this, especially those living in Kenosha.... so don't hesitate to contact me via email Open Original Shared Link I've learned a lot over eight years ;).

For those in Kenosha looking for a support group... the Milwaukee Sprue Crew meets at the north side library every couple of months~ you can contact Bev Lieven. I attended a few meetings in the beginning, but just find online support groups easier! A local group can certainly help with best doctors, best places to shop, and have a more personal touch.

Here is a listing of WI CSA support groups... including Milwaukee's group.

Open Original Shared Link

And websites of two other WI groups:

East Central Wisconsin Gluten Free Group - Open Original Shared Link

Wausau Celiac Support - Open Original Shared Link

I also received this not long ago... looks like a group may be starting up in Racine as well.

Racine Celiacs
  • 2 months later...

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RaeinWI Newbie
:( I am from Wisconsin and I was wondering if anyone knows where I can buy my Gluten free food. I am having a hard time finding places... Thanks

Winniepooh, I grew up in Antigo and now live in Wausau! Pm if you would like to chat! I am newer to this diet and would love to get more tips/suggestions.

summerteeth Enthusiast

I'm actually from northern Illinois (just south of Beloit, WI), but my parents have a place in Hazelhurst & we go to Hayward a lot (Grandma Ferdon's is awesome). Let me just say you Wisconsinites have much better gluten-free shopping than we do here (unless I trek to Chicago).

-- Monica

  • 1 year later...
Jez19 Newbie

Hi a new town at add in! I'm from Cadott, well originally for New York but it's a long story. I live in Cadott and work in Eau Claire. I just learned that I have a gluten intolerance and my best course of action may be a gluten free diet and stick along the lines those with celiacs have. I have a best friend with celiacs so luckily I know what I'm looking for. The problem is...does anyone know where I can get a lot of gluten free food? Also anyone know of any restaurants I can eat at?

  • 2 weeks later...
pondy Contributor

What city are you from? Any good Wisconsin gluten-free resources?

West Bend (formerly Milwaukee) here!

I can't believe my little town has 2 cafes with gluten free menu items :D

One is called Grasshopper (excellent pancakes) & the other is Cafe Sourette (sp?) - haven't been there yet, but the chef reports to have mostly gluten free dishes. There was a write up about her place in the Milw. Journal/Sentinel some time back.

Mostly I just shop at Woodman's for the basics. Hopefully my garden will do me well in the coming months!

Best,

Pondy

  • 1 year later...
akirabee Newbie

I live in the Watertown, WI area 6 mos., SW Florida 6 mos. Found a good source of fg food in Watertown, but now find I cannot tolerate anything with yeast. All my good bread recipes contain yeast. Any suggestions? Carol

Carol,

I am from Ashippun (north of Oconomowoc), but I went to high school in Watertown.

Best suggestion: Stay away from Pick N Save. They don't have a great selection and people don't have a clue if you ask about it. I haven't checked out the Piggly Wiggly there, but I work at the one In Oconomowoc,and there is part of an aisle dedicated to Gluten free, as well as some other stuff scattered around the store.

There is also a store called Back to the Best ( Open Original Shared Link) that is an organic store run on a family's farm just north of Neosho (east on N off of 67). They carry a brand called Sami's Bakery that is by far better than any store bought bread and are usually made from millet and flax seed.. It isn't guaranteed Gluten free just because of a chance of contact during production, but ingredients-wise it is Gluten and dairy free. The bread comes in all different flavors and also different forms (rolls, tortillas, bagels, etc). If you make it there, definitley get the cinnamon raisin bagels. They're phenomenal and almost addicting.

This also goes for anyone wanting tortillas. This brand has them, and they a a bit more crumbly than normal flour tortillas, but taste better. Rolls too!

I don't have a recipe for bread itself, but for us further out this store is a better option than the loaves from the grocery store. (Better tasting too!)

-Erika

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      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
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      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
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      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
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