Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Fda - New gluten-free Labeling Proposal


GottaSki

Recommended Posts

GottaSki Mentor

I received the email below from the Celiac Disease Foundation asking for anyone interested to add their name to a letter to the FDA with regard to proposed gluten-free labeling. Not sure if this has already been posted, but I thought I'd share. Below please find the link for the letter to the FDA along with the email I received:

Open Original Shared Link

"Dear CDF Friend,

As you may already know, the Food and Drug Administration recently published its gluten-free labeling proposal, opening a consumer comments period through October 3, 2011.

Many individuals want to comment on the proposal but may not be sure of what to write or how to frame their comments or perhaps find it complicated to navigate through the process. In an effort to help those who have requested some guidance, the American Celiac Disease Alliance(ACDA) in collaboration with many within the Celiac community, including Celiac Disease Foundation, has developed very useful resources for your information as follows: 1) a list of Frequently Asked Questions(FAQs); B) a letter focusing on several key points for which FDA is seeking comments; c) expert analysis of the safety assessment accompanying the FDA proposal by Dr. Stefano Guandalini, Medical Director of the Celiac Disease Center at the University of Chicago as well as a member of both CDF's Medical Advisory Board and ACDA.

You are invited to sign on to the letter. All responses and "signatory" names will be sent by ACDA to the FDA by the deadline of October 3rd. Below are the links for the ACDA materials (posted on its "sister" site 1in133.org). Please go to the links and take action about the vital issue of the gluten-free labeling ruling.

Letter

FAQ / Resources

Expert's Analysis

Thank you for being Champions of our collective mission by making your voice heard."


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



thleensd Enthusiast

I received the same email today, and am concerned about 20 ppm being considered gluten-free. Many of us react to these low-gluten amounts.

I hope that many of us (even if you do not personally experience an outward reaction to 15ppm) will voice that issue.

GottaSki Mentor

I too am extremely sensitive, having had severe reactions to minute amounts of gluten cc. How does one know what a safe minimum is? What would be an example of 20ppm or less?

Thanks!

thleensd Enthusiast

Parts per million is kind of difficult to imagine, because it's milligram per kilogram of food. So, it really depends on how much potentially tainted food you're eating. Less than 20ppm could mean 0 or it could mean 19.

According to this website: Open Original Shared Link

GottaSki Mentor

I remain unclear on the less than 20ppm section of the proposed labeling guidelines, but am glad that there will be required labeling for gluten by the end of 2012. For no other reason than to make manufacturers aware of how harmful gluten can be to many of us.

Thanks for the info thleensd!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Colleen H replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      15

      Ibuprofen

    2. - Colleen H posted a topic in Coping with Celiac Disease
      0

      Methylprednisone treatment for inflammation?

    3. - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      15

      Ibuprofen

    4. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      My only proof

    5. - Scott Adams replied to wellthatsfun's topic in Coping with Celiac Disease
      1

      still struggling with cravings


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,871
    • Most Online (within 30 mins)
      7,748

    GR82BNTX
    Newest Member
    GR82BNTX
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Colleen H
      Yes thyroid was tested.. negative  Iron ...I'm. Not sure ... Would that fall under red blood count?  If so I was ok  Thank you for the detailed response..☺️
    • Colleen H
      Hi all !! Did anyone ever get prescribed methylprednisone steroids for inflammation of stomach and intestines?  Did it work ??  Thank you !! 
    • cristiana
      Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse.  But it is important not to stop the treatment.  Regarding your problems with anxiety, again that is another symptom of a B12 deficiency.   I didn't know what anxiety was until it hit me like a train several months before gastrointestinal issues began, so I can certainly relate.   Two books which helped me hugely were At Last A Life by Paul David (there is a website you can look up) and The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi.  Although his book is aimed at people who have depression, following the principals he sets out was so helpful in lessening my anxiety.  Llardi suggests we need to focus on getting enough: - physical exercise - omega-3 fatty acids - natural sunlight exposure - restorative sleep - social connectedness - meaningful, engaging activity   ... and we should feel a lot better. That is not to stay you must stop taking medication for depression or anxiety if you have been prescribed it, but adopting the changes Dr Llardi sets out in the book should really help. Can I just ask two more questions:  1) you say that you are B12 deficient, did they test your iron levels too?  If not, you really ought to be checked for deficiency and, 2) did they check your thyroid function, as an overactive thyroid can be cause rapid heartbeat and a lot of coeliacs have thyroid issues? Cristiana        
    • Jmartes71
      Hello still dancing around my celiac disease and not getting medically backed up considering Ive been glutenfree since 1994.All my ailments are the core issue of my ghost disease aka celiac disease. Im angery because the "celiac specialist " basically lightly dismissed me.Im extremely angery and fighting for a new primary care physician which is hard to do in Northern Cali.So currently without and looking.Im angery that its lightly taken when its extremely serious to the one who has it.My only evidence is a brochure back in the days when I got news letters when I lived at my parents.It was published in 1998.I was diagnosed before any foods eliminated from my diet. Angery doctors don't take seriously when Im clearly speaking.I did write to the medicine of congress and have case number.
    • Scott Adams
      I totally get this. It's absolutely a grieving process, and it's okay to feel gutted about the loss of those simple joys, especially at 18. Your feelings are completely valid—it's not about being ungrateful for your amazing boyfriend, it's about mourning the life you thought you'd have. That "tortured by the smell" feeling is so real. It does get easier, I promise, but it's okay to sit in the sadness and just vent about how much it stings right now. Thanks for sharing that. Celiac.com has published a book on our site by Jean Duane PhD called Gluten-Centric Culture, which covers many of the social aspects of having celiac disease: This chapter in particular covers issues around eating with family and others - Gluten-Centric Culture: Chapter 5 - Grabbing A Bite Together:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.