Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Should I Be Concerned...


mrmike

Recommended Posts

mrmike Newbie

Hello everyone. I'm a newly diagnosed Celiac in March 2011. Followed the diet and have felt great until 10 days ago when I started feeling sick again (exactly as I felt prior to going gluten free in April). I can assume I accidentally ingested some gluten to cause the symptoms. Needless to say I've been extra careful to eat gluten free since.

My questions are - should I be concerned that it's been 10 days and I'm still not feeling completely better? Is it unusual for those accidentally glutened to take several weeks to feel completely better?? Is it possible that I have just stopped responding to the diet or do I need to be patient?

Any input is appreciated. Thank you.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



eatmeat4good Enthusiast

I've never had a reaction last that long, but I have read of people who have had reactions last for weeks. You might want to consider secondary food intolerances or allergies. Sometimes after you heal then your body starts to react to other foods. Common ones are dairy, soy, corn, less common but still significant for those effected by them are nightshades,fructose malabsorption, salicylates, or histamine foods. I may have missed some but these are things to consider once you absolutely certain you have eliminated any trace gluten. Have you checked shampoo's and soaps? Are you kissing someone who eats gluten? Do you have pets who eat pet food that contains gluten? Medications and vitamins also need to be checked. I was healing really well until the secondary intolerances hit. And I learned not to kiss someone who had eaten gluten, by spending 4 days ill with headache and nausea. It's a puzzle for sure.

YoloGx Rookie

I agree with EatMeat4Good,sometimes it does take that long. I have found that it has for me, especially at first, and then later after I got a series of cross contamination glutenings.

The worst for me was after being off all trace gluten for a year, I was exposed to a kitchen full of wheat dust from several pies made by my brother for Thanksgiving. He had given up making gluten-free pie dough since it was too different and more difficult than what he was used to --and had not bothered to tell me of the switch. I walked in without a thought. I was sick for 5 weeks after that!

A couple of years later I walked through a pizza place to use their bathroom and felt miserable a couple of hours later. The effect only lasted 3 days however.

I have found taking acidophilus, L-glutamine, and nattokinase helps heal the villi quicker, which is a factor in how quickly I recover. It might help you too. I also find that having lots of greens can help. Being salicylate sensitive like EatMeat4Life, I resort to making blended smoothies of iceburg lettuce, celery and parsley. It really is an energy pick me up and can help with detoxing.

Its also true that other allergens might become a bigger factor as you completely clear out all the gluten from your system. So that area of investigation could bear fruit for you too, so to speak!

Good luck--hope you feel better soon.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,511
    • Most Online (within 30 mins)
      7,748

    Cecil
    Newest Member
    Cecil
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Russ H
      I hope you are on the mend soon. About 1 in 5 people who contracted chicken pox as a child go on to develop shingles in later life - it is not uncommon. There are 5 known members of the herpes virus family including chicken pox that commonly infect humans, and they all cause lifelong infections. The exact cause of viral reactivation as in the case of shingles or cold sores is not well understood, but stress, sunburn and radiotherapy treatment are known triggers. Some of the herpes viruses are implicated in triggering autoimmune diseases: Epstein-Barr virus is suspected of triggering multiple sclerosis and lupus, and there is a case where it is suspected of triggering coeliac disease. As to whether coeliac disease can increase the likelihood of viral reactivation, there have been several cohort studies including a large one in Sweden suggesting that coeliac disease is associated with a moderate increase in the likelihood of developing shingles in people over the age of 50. US 2024 - Increased Risk of Herpes Zoster Infection in Patients with Celiac Disease 50 Years Old and Older Sweden 2018 - Increased risk of herpes zoster in patients with coeliac disease - nationwide cohort study
    • Russ H
      BFree bread is fortified with vitamins and minerals as is ASDA own-brand gluten-free bread. All the M&S bread seems to be fortified also.
    • Flash1970
      You might try Heallix.  It's a silver solution with fulvic acid. I just put the solution on with a cotton ball.  It seemed to stop the nerve pain. Again,  not in your eyes or ears.   Go to heallix.com to read more about it and decide for yourself Also,  I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out. 
    • trents
      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being caused by something else.
    • Roses8721
      Yes, i pulled raw ancetry data and saw i have 2/3 markers for DQ2.2 but have heard from friends in genetics that this raw data can be wildly innacurate
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.