Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Should I Be Concerned...


mrmike

Recommended Posts

mrmike Newbie

Hello everyone. I'm a newly diagnosed Celiac in March 2011. Followed the diet and have felt great until 10 days ago when I started feeling sick again (exactly as I felt prior to going gluten free in April). I can assume I accidentally ingested some gluten to cause the symptoms. Needless to say I've been extra careful to eat gluten free since.

My questions are - should I be concerned that it's been 10 days and I'm still not feeling completely better? Is it unusual for those accidentally glutened to take several weeks to feel completely better?? Is it possible that I have just stopped responding to the diet or do I need to be patient?

Any input is appreciated. Thank you.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



eatmeat4good Enthusiast

I've never had a reaction last that long, but I have read of people who have had reactions last for weeks. You might want to consider secondary food intolerances or allergies. Sometimes after you heal then your body starts to react to other foods. Common ones are dairy, soy, corn, less common but still significant for those effected by them are nightshades,fructose malabsorption, salicylates, or histamine foods. I may have missed some but these are things to consider once you absolutely certain you have eliminated any trace gluten. Have you checked shampoo's and soaps? Are you kissing someone who eats gluten? Do you have pets who eat pet food that contains gluten? Medications and vitamins also need to be checked. I was healing really well until the secondary intolerances hit. And I learned not to kiss someone who had eaten gluten, by spending 4 days ill with headache and nausea. It's a puzzle for sure.

YoloGx Rookie

I agree with EatMeat4Good,sometimes it does take that long. I have found that it has for me, especially at first, and then later after I got a series of cross contamination glutenings.

The worst for me was after being off all trace gluten for a year, I was exposed to a kitchen full of wheat dust from several pies made by my brother for Thanksgiving. He had given up making gluten-free pie dough since it was too different and more difficult than what he was used to --and had not bothered to tell me of the switch. I walked in without a thought. I was sick for 5 weeks after that!

A couple of years later I walked through a pizza place to use their bathroom and felt miserable a couple of hours later. The effect only lasted 3 days however.

I have found taking acidophilus, L-glutamine, and nattokinase helps heal the villi quicker, which is a factor in how quickly I recover. It might help you too. I also find that having lots of greens can help. Being salicylate sensitive like EatMeat4Life, I resort to making blended smoothies of iceburg lettuce, celery and parsley. It really is an energy pick me up and can help with detoxing.

Its also true that other allergens might become a bigger factor as you completely clear out all the gluten from your system. So that area of investigation could bear fruit for you too, so to speak!

Good luck--hope you feel better soon.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to pilber309's topic in Related Issues & Disorders
      16

      Burning Sensation in the small intestine

    2. - Jojer commented on Scott Adams's article in Winter 2026 Issue
      7

      Can You Really Trust Gluten-Free Menus? What Every Celiac Needs to Know Before Eating Out

    3. - pilber309 replied to pilber309's topic in Related Issues & Disorders
      16

      Burning Sensation in the small intestine

    4. - cristiana replied to pilber309's topic in Related Issues & Disorders
      16

      Burning Sensation in the small intestine

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,892
    • Most Online (within 30 mins)
      7,748

    KelleyORDH
    Newest Member
    KelleyORDH
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      @pilber309, as knittykitty pointed out, lactose intolerance is not the only issue with dairy in celiac community. Lactose intolerance has to do with the sugar component of dairy, lactose. However, some celiacs react to a protein fraction in dairy, namely, casein, like they do gluten.
    • pilber309
      Stop eating oats as it did give me irritation.The only diffrent thing i have been consuming are a new probitics which seem to have a fruit ive never heard of as a prebiotic
    • cristiana
      It could well be a new intolerance developing.  Does your diet incorporate pure oats i.e. those safe for coeliac consumption?  I find I can only tolerate a certain amount, same goes for dairy in fact, then I start to get gastric symptoms.   Or have you started consuming a new type of gluten-free bread, or more gluten-free bread than normal, that might contain oats?  I remember reading a post on this forum from a woman who had started to eat a lot of loaves made with oat flour and her coeliac symptoms kicked off again.  I am sure you know this, but some coeliacs cannot tolerate pure oats.
    • pilber309
      I eat a lot of dairy but its intermittent is this burning so I would assume it would happen all the time. Plus I have been tested for lactose intolerance  etc and I am fine and the other symptoms of that I don't get. As a aside  my dad died last month after a long illness so I wonder if the stress of that might be a influence as a bodily reaction to stress.
    • pilber309
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.