Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Benefits Of Testing


Schatz

Recommended Posts

Schatz Apprentice

If I plan on switching the whole family to a gluten-free diet, what are the benefits to having the children tested?

The cons are:

1) May have a false negative anyway

2) If diagnosis is on paper, they then have a pre-exisiting condition for future insurance issues.(Does it affect getting a life insurance policy?)

3) Extended family will think if tests are negative that means kids can/should eat gluten, and may not take the gluten-free diet seriously.

4) My youngest is 2 yrs old and still nurses. I've read that breastfeeding provides at least short term protection to a degree. So would the test have any degree of accuracy for him?

5) My older two (ages 10 and 7) have told me they would rather just go gluten-free than have the blood tests. They will be angry if I make them have the blood tests even though I plan on putting them on a gluten-free diet either way.

6) Also my 10 yr old has been wheat free (but not gluten free) for 2 years. Does that affect the test?

So, are there any benefits?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sariesue Explorer

A benefit of testing is knowing whether or not a gluten-free diet is really needed. While your kids might be ok with going gluten-free now and not knowing they absolutely have to. As they grow up that opinion may change especially when they are teens and spend more time with friends eating outside of the house. If they don't know whether or not they have celiac they may start to cheat on their diet or decide that they no longer want to follow a gluten-free diet. In order to test for celiac you have to be eating a lot of gluten for several months prior to the test. So if they stop eating gluten and then want to be tested at a later date it is more involved. Please don't let your children's hesitance to be tested sway your decision. At 7 and 10 they are too young to be making decisions that effect their health. Nobody wants to have blood drawn, but sometimes we need to in order to be healthy. You could always take them somewhere fun after the blood draw.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,975
    • Most Online (within 30 mins)
      7,748

    Feri
    Newest Member
    Feri
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Waterdance
      It is addictive. The dopamine hit I get from a sandwich after being gluten free for a while is insane and I immediately crave more. Maybe if I think of it more like an addiction I'll be able to beat it in the future. 
    • Wheatwacked
      Undiagnosed Celiac Disease was your root cause.  As you heal and adress nutritional deficiencies you'll see lifetime symptoms disapear, some you don't even realize you have.     Until 1951 no one knew the cause.  Around 1900 it was also called "Infantilism", you outgrew it or died.  Dr Hass around 1920 was the first to come up with a treatment with close to 100% survival.  At 63 I followed his diet for a while and it helped me past the early stage of recovery.  Even then it was only considered a childhood disease, eventually the child outgrew it.  Once outgrown the child was reintroduced to wheat.  After that any symptoms that arose were attributed to whatever was popular, gall bladder, allergy, endometriosis, etc.  Often the final diagnosis is "we do not know the cause, it is just normal for some people, but we have medications that will treat your symptoms."   I was bloated, and always colicky.  When my son was born in 1976, my mother commented "You got what you gave."  I pointed out to my wife that he looked like a Biafra baby from the Biafra famine in 1970.  One of the first successful sales of modern wheat was to replace the rice the Biafran Aid Society supplied.  After searching the state where we lived (pop. 6 million) we found the one child gastroenterologist familiar with Celiac.  He only had 13 other children dianosed with the disease under his care and after several endoscopies my son was diagnosed, put on GFD and immediately thrived.  The doctor also suggested my wife and I also do gluten free.  We declined, not having any gastro problems.  That remains my only regret in my life. THE VALUE OF THE BANANA IN THE TREATMENT OF CELIAC DISEASE  Dr Hass' 1924 puplication with diet. There are over 300 symptoms related to celiac disease I believe that if you have the genes, you have Celiac Disease, but your immune system is strong enough to keep it subdued, or your symptoms are misdiagnosed as something not wheat.  Until something happens to weaken the immune system, and symptoms, often misdiagnosed and wrongly treated, until eventually you die, never knowing or you get lucky and end up eating gluten free.  To me it explains the late onset of acute symptoms, many are "just normal for you". Ever wonder why people get so angry if you suggest they may have Celiac Disease.  Wheat is a cultural and economic staple of our lives.  And it is addictive, it numbs our body.  Suddenly, gluten free, all the other irritants are no longer suppressed.  
    • trents
      I don't think we can say that just one thing, whether vitamin D deficiency or emotional trauma, or a viral infection, or what ever is always what triggers the onset of celiac disease. We do know there is a genetic component to it and there is increasing evidence that factors creating gut dysbiosis (such as overuse of antibiotics and preservatives and environmental toxins) are major players. Hybridizing of heirloom wheat strains to increase the gluten content by multiples may also be a factor.
    • trents
      Thanks for the follow-up correction. Yes, so not 10x normal and the biopsy is therefore totally appropriate to rule out a false positive or the unlikely but still possible situation of the elevated lab test number being caused by something besides celiac disease. 
    • Waterdance
      Thanks. I believe I can trace my gluten and milk allergies to specific traumas in my life. I've had some quite severe traumas over my lifetime. Mostly in my history I was so out of sorts surviving that diagnosing gluten sensitivity/allergy/celiac was just not on the table for such a survival mode existence. Vitamin D makes sense too. Now I take very good care of myself, I have a rock solid stability and I do take 1,500 IU of D daily. It's more obvious to me now what's causing problems and so most of the time I only eat protein and vegetables. I cheat sometimes. I end up paying for it though. 
×
×
  • Create New...