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Those In Uk......

Ilovehorses

By Ilovehorses
in Coping with Celiac Disease

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Ilovehorses Rookie
Ilovehorses
Posted

How long did it take for you to get your blood results back?I had bloods done a week and a half ago and I'm getting very twitchy about the results xx

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CR5442 Contributor
CR5442
Posted

Hi there, would be really interested in finding out what your results are and which tests you were given. I've had one IGA test so far which was negative but my doc said that that is by no means accurate. He is ordering RAST next. I wish they would do them all in one go rather than keep having to give vials of blood!

Ilovehorses Rookie
Ilovehorses
Posted
  • Author

Are you in the UK?

Fairy Dancer Contributor
Fairy Dancer
Posted

I am in the uk. I had one test done as part of a routine blood panel (he added the one test for celiac because I have a brother with it and I asked for it). It only took a few days to come back but although it came back negative I am not totally convinced it was accurate due to the success I have had on a gluten free diet. Nearly 3 months and many of my health problems are reversing themselves. I think my body knows better...

CR5442 Contributor
CR5442
Posted

Yes, I'm in the UK too. I also eliminated nightshades two days ago and am already starting to feel better from that! Would be interesting to see what the next raft of tests shows. The first one NHS does is often negative in celiacs apparently because of IgA deficiency. Let me know how you are both doing.

CR5442 Contributor
CR5442
Posted

I am in the uk. I had one test done as part of a routine blood panel (he added the one test for celiac because I have a brother with it and I asked for it). It only took a few days to come back but although it came back negative I am not totally convinced it was accurate due to the success I have had on a gluten free diet. Nearly 3 months and many of my health problems are reversing themselves. I think my body knows better...

I would certainly agree with that. Are you going to get more tests?

Fairy Dancer Contributor
Fairy Dancer
Posted

I would certainly agree with that. Are you going to get more tests?

No as usual my drs are not going to investigate further. I just get left with the anxiety, depression and IBS diagnosis, which is what they blamed the fatigue, dizziness/vertigo and stomach issues etc on. Other than routine blood tests I have never had any further tests for anything lol.

Oddly antidepressants and therapy have never helped. But changing my diet has...

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CR5442 Contributor
CR5442
Posted

No as usual my drs are not going to investigate further. I just get left with the anxiety, depression and IBS diagnosis, which is what they blamed the fatigue, dizziness/vertigo and stomach issues etc on. Other than routine blood tests I have never had any further tests for anything lol.

Oddly antidepressants and therapy have never helped. But changing my diet has...

It is so hard dealing with the UK NHS system when you don't have an openminded Doctor. I think they have a limit to the tests they can run on things that are not 'obvious'. My doctor asked if I really wanted the tests as it was pretty conclusive with my diet changes that I was on the mend. I said of course I did because I have two small children who might also be celiac/gluten intolerant! They just don't think that far down the line! If you have children then I would push heavily for conclusive testing... I am definitely going to. Luckily I think my doctor will try to help.

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      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
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      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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      Thanks @Scott Adams. Do you know if Kirkland Signature supplements share facility and production lines with other products containing gluten?  I'm worried that I'll react to this brand just like I did with other gluten-free labelled supplement brands. 
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      This is a really common area of confusion. Most natural cheeses (cheddar, Swiss, mozzarella, Parmesan, brie, camembert, and most blue cheeses) are inherently gluten-free, and you’re right that the molds used today are typically grown on gluten-free media. The bigger risks tend to come from processed cheeses: shredded cheese (anti-caking agents), cheese spreads, beer-washed rinds, smoke-flavored cheeses, and anything with added seasonings or “natural flavors,” where cross-contact can happen. As for yeast, you’re also correct — yeast itself is gluten-free. The issue is the source: brewer’s yeast and yeast extracts can be derived from barley unless labeled gluten-free, while baker’s yeast is generally safe. When in doubt, sticking with whole, unprocessed cheeses and products specifically labeled gluten-free is the safest approach, especially if you’re highly sensitive.
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