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Endoscopy Next Week....scared

alexsami

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alexsami Contributor
alexsami
Posted

OK, im having this next week....what to expect...how bad is it...i have been gluten free for a month...but doc said it would still show up.....will be eating gluten for the next week however :(

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Gluten Free Traveller Newbie
Gluten Free Traveller
Posted

Don't worry, it's not bad at all. I was really freaked out before mine but it was over before I knew it.

In which country are you? You will get the option of getting it done with or without sedation..Take it!! I have friends who said no to sedation and reported it wasn't very pleasant. I did and the last thing I remember was going into theatre and being asked to lie on my side. A (very cute) doctor then put a small needle into my hand to give me sedation and then I was out..

The next thing I remember was when I woke up in the recovery area of the hospital and my dad was beside me. I was pretty drosey as apparently I kept repeating myself and telling him it looked as though he had 4 eyes but other than that it was fine.

You will be fine and it will be done before you know it! I hope you get the results you're looking for!

Laura

alexsami Contributor
alexsami
Posted
  • Author

Thanks, im in the U.S.

ravenwoodglass Mentor
ravenwoodglass
Posted

It's not a hard procedure at all. You do have a risk of having a false negative so do go back on the diet after it is done. This is especially the case if you had positive blood work. Positive bloodwork trumps negative biopsy. If going back on gluten until the test is done makes you very ill do let your doctor know right away.

love2travel Mentor
love2travel
Posted

Hmmm...I agree that being back on gluten for such a short time could potentially result in false negatives. Remember to request 8-11 biopsies - NOT just 3 or 5. Only 40% of biopsies in the US and Canada are done CORRECTLY because of too few biopsies.

The scope itself is no problem. I worried for nothing. I had both the gastroscopy and colonoscopy done at the same time and was given memory-erasing drugs. It is easier than going to the dentist for many! :D

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    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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      High DGP-A with normal IGA

      By knitty kitty · Posted

      Food and environmental allergies involve IgE antibodies.  IgE antibodies provoke histamine release from mast cells.   Celiac disease is not always visible to the naked eye during endoscopy.  Much of the damage is microscopic and patchy or out of reach of the scope.  Did they take any biopsies of your small intestine for a pathologist to examine?  Were you given a Marsh score? Why do you say you "don't have intestinal damage to correlate with lifelong undiagnosed celiac disease"?   Just curious.  
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for food allergies and environmental allergies about 7 months before I started taking Naltrexone, so I don't think that is the cause for me, but that's interesting!  The main thing with the celiac thing that is throwing me off is these symptoms are lifelong, but I don't have intestinal damage to correlate with lifelong undiagnosed celiac disease.
    • trents
      Finding gluten free ingredients

      By trents · Posted

      Welcome to the forum, @Kara S! Warrior bread is a grain free bread product. Google it. There are commercial mixes available, I believe, Youtube videos and many recipes. 
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      By knitty kitty · Posted

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