Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Always Tired!


bb1987

Recommended Posts

bb1987 Newbie

I have been incredibly tired throughout my teens and early twenties, along with other symptoms. I am hoping that I might finally have my answer! Did/Does anyone else struggle with debilitating fatigue? I don't even know what it is like to have energy!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



krystynycole Contributor

Yes fatigue is definitely a symptom! Also, do you have something called brain fog? That's another sign and they typically go hand in hand.

bb1987 Newbie

Yes fatigue is definitely a symptom! Also, do you have something called brain fog? That's another sign and they typically go hand in hand.

Yes! Some days I feel really "out of it". I feel like I am 70 years old, not 24. What symptoms do you have?

eatmeat4good Enthusiast

This is the most exciting part about being gluten free. No more being tired to the bone. No more sleepy groggy fatigue and no more brain fog....unless of course I get a trace of gluten...then it all comes back.

It really was most exciting to not have to live like the walking dead. It was most definitely gluten related for me. Slept too much of my life away...happy to be awake and alive and alert.

emmilyvictoria Newbie

Before going gluten free I couldn't go more than a few hours without taking a nap and I just wanted to sleep all day. Then about after a week after going gluten free I seriously felt like I had all the energy in the world :) But I also have been diagnosed with POTS which also just makes me feel lazy.

New Community Member Explorer

I have been incredibly tired throughout my teens and early twenties, along with other symptoms. I am hoping that I might finally have my answer! Did/Does anyone else struggle with debilitating fatigue? I don't even know what it is like to have energy!

Are you on a gluten free diet because of celiac? I'm extremely tired all the time and I've been gluten free for 3 weeks. I guess patience is key. They say it takes time...

bb1987 Newbie

Are you on a gluten free diet because of celiac? I'm extremely tired all the time and I've been gluten free for 3 weeks. I guess patience is key. They say it takes time...

thanks for all of your replies!! I have just started the gluten free diet. I haven't officially been diagnosed with celiac or gluten intolerance, but I am hoping this helps me. I was noticing that my stomach was upset and crampy when I ate gluten. I already feel much better, but haven't noticed my fatigue going away yet either! I am ready to have energy like everyone else, as I am sure you are too!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lizatmnsu Newbie

I personally have been gluten free for just over a year after I found out I was gluten intolerant. I never had the blood test for celiac as I learned about the test after I was gluten free and for the blood test to show anything I would have had to go back to eating gluten which I was not willing to do after feeling so good. I did notice a significant increase in energy from about months 2-6 but now I am extremely tired all the time again. I am not sure if it is related or just because it is my senior year in college and my body is ready for real life to start but if anyone has any ideas I would love to hear them. Thanks.

Roda Rising Star

Get your iron, ferritin, vitamin D, and thyroid checked. They all can contribute to feeling tired. The first three if low, can cause fatigue and tired symptoms. If the thyroid is hypo it can too.

Bubba's Mom Enthusiast

It's also possible that another food is causing reactions in you. I'm finding that soy completley zaps my energy. When I ingest it I don't just get tired..it's like I've been drugged.

I guess my best advice would be to keep a log of what foods you eat, including brands. Log any reactions you have and see if you can make a connection. You could also go on a limited diet and try adding in one food a week to see if you react.

Unfortunately there doesn't seem to be any reliable test for these sensitivities/intollerances. You have to be your own dectective.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

    2. - Ello replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

    3. - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

    4. - Ello replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

    5. - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,834
    • Most Online (within 30 mins)
      7,748

    SamAlvi
    Newest Member
    SamAlvi
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.