Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long Until They Feel Really Good?


Sam'sMom

Recommended Posts

Sam'sMom Apprentice

Hi - My 8 year old has only been gluten free for about 2 months - since we discovered he had Celiac. We have been very careful that he only eat gluten free, and are slowly catching on to all the cross contaminant situations (although I figure out new ones every day). His teacher has a wheat allergy and is gluten free as well, but she is new to keeping a classroom safe and we are working together on this.

My first question is, for those of you with experience, how long did it take your child to be "belly ache free" - if that was their symptom to begin with? I thought it was something that started happening right away since he typically would get a stomach ache right after eating before we knew. It seems pretty common for him to still not feel great and I'm hoping it's just because he's still in a healing phase. Any thoughts on that?

Next, as far as a classroom goes, his teacher and I have talked about hand washing after snack and lunch and wiping down desks, but still wondering about him sitting with his buddies who are eating regular bread and stuff. What have you all found with the "normal" eating settings at school? He's in a small school and eats in his classroom so he's not exposed to a whole cafeteria.

Thanks for your help. Sometimes it feels like they need to be in a space suit so they don't get contaminated.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mizzo Enthusiast

My DD took 2 1/2 - 3 months till bellyaches and mood swings really went away (cc continued for awhile till I got better at noticing things).

The classroom eating issues are tough. I sent a letter to our teacher this year as last year was our first year learning curve. I aksed:

That handwashing be done before and after food is eaten at desk.

I Addressed hand sanitizer as not being a substitute for washing.

I asked that the teacher direct the kids to wash desk top to bottom not side to side and to periodically remind them of this. Side to side just throws crumbs onto others desks. Not safe for celiacs or any allergens really.

i asked that no flour be used in classroom for any reason ( science etc...) if flour was necessary to ask me for a substitute.

I asked that my dd desk be on an end to reduce cc issue's.

All of these requests are easy to accomodate and I was greeted with an absolutely can be done attitude. Thank goodness . :-)

good luck

Roda Rising Star

It took awhile for things to settle down with my youngest son. It can depend on how bad the damage was. My son only had a mildly elevated IgA tTG and we opted out of the biopsy. It was around the three month mark or so when we really noticed he wasn't complainging of belly aches anymore and some of his wierd ocd behavior had vanished along with the tempertantrums. All of that comes back if he gets gluten. As for school, we seem to be doing allright. Last year in Kindergarden the whole class at snack time was gluten free. He washed before and after snack and lunch. We had to have other shared items wiped down ie computer since he had a bad nail biting habbit. I am glad to say he does not do that now. For first grade they have snack but the teacher did not make it gluten free. So he washes before and after snack and lunch. He is really good about telling his teacher what he needs. So far so good. Matter of fact, his teacher just asked me today if she was doing allright.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,171
    • Most Online (within 30 mins)
      7,748

    kyle68j
    Newest Member
    kyle68j
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • DAR girl
      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...