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- Wheatwacked replied to Celiac50's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease8Unusual bright yellow but odourless discharge
@Celiac50, Other than finding foods that make your tummy happy, are you feeling well? No other symptoms? That's great progress! You don't mention vitamin D status. Vitamin D deficiency in the UK has been estimated to be as high as 60% of the population. Celiac Disease causes depleted oral vitamin D from malabsorption. Most people do not get... -
- RMJ replied to JForman's topic in Coping with Celiac Disease67yo struggling!
The incidence of autoimmune diseases in general, including celiac disease, has increased. There are various theories as to why. The environment we live in, diet we eat, toxins we’re exposed to, stress levels, activity levels and infectious diseases to which we are exposed are all quite different now. A robust immune system that would have been an advantage t... -
- knitty kitty replied to Celiac50's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease8Unusual bright yellow but odourless discharge
@Celiac50, Most Celiac patients with a Marsh score as high as yours are more likely to suffer from fat malabsorption and deficiency in fat soluble vitamins, Vitamins A, D, E, and K. Vitamin A toxicity does not cause Celiac disease. Your Vitamin A toxicity was probably developed after your diagnosis and subsequent over-supplementation. Fish contains... -
- cristiana replied to cristiana's topic in Related Issues & Disorders9Has anyone ever had Low Ferritin with Elevated MCHC levels?
Update - my Active B12 is 36. Apparently lab results between 25 and 70 suggest a possible deficiency, anything below 25 is a confirmed deficiency, above 70 is normal. I am thinking this could be the explanation for my elevated MCHC. Anyway, yet again I find myself bumping along the levels of low normal by British NHS standards, which isn't great,... -
- cristiana replied to Celiac50's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease8
Unusual bright yellow but odourless discharge
Hi @Celiac50 If you are after a vitamin A test - sorry - I'm tired so not sure if I'm reading this correctly - perhaps you could try a home test? I'm in the UK and am currently a bit perplexed about my own vitamin issue and thinking of going to a private lab for tests. My issues is suboptimal Active B12 (only 11 marks off deficient) but no health professionals...
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By Wheatwacked · Posted
@Celiac50, Other than finding foods that make your tummy happy, are you feeling well? No other symptoms? That's great progress! You don't mention vitamin D status. Vitamin D deficiency in the UK has been estimated to be as high as 60% of the population. Celiac Disease causes depleted oral vitamin D from malabsorption. Most people do not get enough UV light to activate skin creation of vitamin D. Vitamin D supplementation in the United Kingdom: time for change Vitamin D Is Not as Toxic as Was Once Thought It looks like you are going to have to try changing out food by food, until you find the one. Start with the supplements. Wild caught vs. farm raised? Sometimes it is just a subtIe change that can do it. I know that switching to grass fed milk has been good for me. -
The incidence of autoimmune diseases in general, including celiac disease, has increased. There are various theories as to why. The environment we live in, diet we eat, toxins we’re exposed to, stress levels, activity levels and infectious diseases to which we are exposed are all quite different now. A robust immune system that would have been an advantage thousands of years ago may be a bit too robust for modern life.
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By knitty kitty · Posted
@Celiac50, Most Celiac patients with a Marsh score as high as yours are more likely to suffer from fat malabsorption and deficiency in fat soluble vitamins, Vitamins A, D, E, and K. Vitamin A toxicity does not cause Celiac disease. Your Vitamin A toxicity was probably developed after your diagnosis and subsequent over-supplementation. Fish contains thiaminases, chemical compounds that destroy thiamine, Vitamin B 1, making the thiamine unusable. Excessive intake of foods containing thiaminases can precipitate low thiamine. Low thiamine can also be a result of bacterial or yeast infections. A high carbohydrate diet encourages Candida and bacterial infections. High carbohydrate diets promote SIBO and Candida because they feed on the excess carbohydrates and suppress the beneficial bacteria. Other types of bacteria can take advantage of this and set up housekeeping outside the gastrointestinal tract, including bacterial vaginosis. Thiamine Vitamin B 1 can alter the microbiome. Thiamine has been shown to suppress Candida, SIBO, and other bacterial and viral infections, and favor the growth of beneficial bacteria. My SIBO cleared once I supplemented with Benfotiamine, a form of thiamine that has been shown to promote intestinal healing, and a B Complex. Thiamine works in concert with the other B vitamins and magnesium. Thiamine helps to lower histamine levels by calming mast cells that release histamine at the slightest provocation. Following the Autoimmune Protocol diet also helped immensely in getting my digestive system calmed and able to tolerate more foods. Have you discussed with your doctor and dietician supplementing essential B vitamins while healing? What is your Vitamin D level? Vitamin D helps calm the immune system. -
Update - my Active B12 is 36. Apparently lab results between 25 and 70 suggest a possible deficiency, anything below 25 is a confirmed deficiency, above 70 is normal. I am thinking this could be the explanation for my elevated MCHC. Anyway, yet again I find myself bumping along the levels of low normal by British NHS standards, which isn't great, because from what I understand, in the UK our normal levels are set low and 'lower normal' levels would be considered a deficiency in such countries as Germany and Japan. Regarding B12 levels, it doesn't look as if my levels are low enough to be offered B12 injections. That being the case, I remember reading that sublingual tablets can still be very effective but one particular type is better than another - I can't remember which type. Can anyone help?
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Hi @Celiac50 If you are after a vitamin A test - sorry - I'm tired so not sure if I'm reading this correctly - perhaps you could try a home test? I'm in the UK and am currently a bit perplexed about my own vitamin issue and thinking of going to a private lab for tests. My issues is suboptimal Active B12 (only 11 marks off deficient) but no health professionals seem to be taking any interest in it although this is my fault as last time I saw my Consultant I failed to mention my symptoms - I had so many other questions to ask him. Anyway - here are the details for an A test: https://www.medichecks.com/products/vitamin-a-retinol-blood-test?gad_source=1&gad_campaignid=11996732820&gbraid=0AAAAAD9XHFyeAOrxlryOpWS_jXwZ8PCc1&gclid=EAIaIQobChMIyrjj2Pb2jwMVnJJQBh22CTkVEAAYASAAEgIGDPD_BwE
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