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7 Months Of Testing

AVR1962

By AVR1962
in Coping with Celiac Disease

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AVR1962 Collaborator
AVR1962
Posted

Saw my new doc today. Results were not back on my MRI however he looked at all the tests I have had over the past 7 months, looked at what I was doing to supplement (vit) and said that he could get in trouble for officially calling this Celiac because I didn't have a biopsy on the intestines, however he was diagnosing me with Celiac, put it in my records and told me we would now proceed rather than trying to eliminate. I am to have a diabetes test and he wants to check and see how my parathyroid and thyroid are functining compared to my last tests. Told me my supplements were all good, I actually thought he would be shocked but he said they all fell in line with what Celiacs are normally deficient on, and then set me up for more blood work.

Also, found out something that might be helpful for those who ar on meds to shrink thyroid nodules.....all supplements should be taken 6+ hours after the thyroid med as some supplements have properties in them that can bind to the thyroid meds and make them work less affectively.

The diganosis was not a shocker but it was a relief!

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ravenwoodglass Mentor
ravenwoodglass
Posted

Glad you finally got a diagnosis and it sounds like you have a good doctor. With the diabetes test make sure they do an A1C as well as blood glucose levels. If you are still ill from gluten or have recently been sick that can raise the BG levels. The A1C will help them decide if you really have BS issues or if it is elevated because of illness. The reason I caution is because I was misdiagnosed with diabetes when I went to the doctor for help with a glutening early on in the diet. He tried to push meds but I instead did multiple BG tests with my home meter and he ordered an A1C the next visit which showed me to be in perfectly normal levels. If the tests do show that you are prediabetic try adjusting your diet first if you can before the meds and be aware that sugar alcohols can upset your tummy so if you can go with something else or just reduce your sugar and carb intake that might be better.

Bubba's Mom Enthusiast
Bubba's Mom
Posted

It sounds like you have a good Dr? I'm happy for you that you've gotten your Dx without a bunch more tests and the run around.

Now..just eat gluten-free and things should start healing. :D

AVR1962 Collaborator
AVR1962
Posted
  • Author

Glad you finally got a diagnosis and it sounds like you have a good doctor. With the diabetes test make sure they do an A1C as well as blood glucose levels. If you are still ill from gluten or have recently been sick that can raise the BG levels. The A1C will help them decide if you really have BS issues or if it is elevated because of illness. The reason I caution is because I was misdiagnosed with diabetes when I went to the doctor for help with a glutening early on in the diet. He tried to push meds but I instead did multiple BG tests with my home meter and he ordered an A1C the next visit which showed me to be in perfectly normal levels. If the tests do show that you are prediabetic try adjusting your diet first if you can before the meds and be aware that sugar alcohols can upset your tummy so if you can go with something else or just reduce your sugar and carb intake that might be better.

Thank you very much for this info. I am with you, I would very much rather control medical issues thru diet. All the numbrs with diabetes are new to me but I guess I will be learning them too. I really appreciate the reply!

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    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

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    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
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      By knitty kitty · Posted

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    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
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