Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

"making Excuses"


New Community Member

Recommended Posts

New Community Member Explorer

Tonight my friends invited me to go somewhere and I told them "no." My celiac symptoms are flaring up and I simply do not feel like being around lots of people. Of course, they don't understand this and say that I'm "making excuses." This has happened more than once. Then, I try to justify it by saying I need to study or do something else. They still insist I go with them and hang out. But lately, I just want to hide in my room and not be around people. (I blame it on celiac; it has affected every aspect of my life.) Normally, I would have loved to go hang out, but there's times like tonight that I do not feel like it. It sure does make me feel like a bad friend. Has anyone experienced a similar situation? How do I deal with this next time it happens?? Any suggestions are greatly appreciated.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AMom2010 Explorer

I used to do the same thing to my friends, especially in college. Now that I'm in my early 30s, I do regret it a little bit. I don't know how old you are. I realize that when I was in college, my social life was much busier, but now when I make plans to spend time with friends I never back out unless I'm bedridden for one reason or another. I am a home-body by nature and would prefer to be at home any day of the week, but once I get out I am always glad I did.

AVR1962 Collaborator

Oh yes, this past New year's eve we had been invited to a party but my kidneys were acting up and I was in alot of pain. I have had kidney issues for over 20 years so nothing new to me but I don't normally go into and people don't realize I have the problem. Like you, my friends kept hounding me and I truely was sick sick so I finally let them know I was very sick, my kidneys were acting up and I really just needed to sit. Then came that I could sit with them but when I am sick like this I am not good company.....I just want to get in cozy clothes and rest. I felt they thought I was making excuses and I felt bad about that. Approx 2 months later I was passing stones for 3 days and when I told them they were shocked. One of my best friend's boyfriend shortly after that was taken to the hospital for a lodged stone and here I was the one helping with advise and she had no clue that I had problems with stones.

Until a person goes thru it themselves they really can't comprehend. Even when I tell people now that I have Celiac they ar clueless, they look at me funny, I explain and then I think they think I am luny. However, I have to say I have some real good friends I go out with on a regular basis, I do not hide that I cannot have gluten but I also don't choose where we go based on what I can't eat. They know, they undrstand and have been very supportive.

Hand in there!

glutenfreeanddiabetic Newbie

I am dealing with the same thing. I keep getting sick and at times it is easier to stay at home. I find that my room is the place I'd rather be. I miss being normal as I put it. I wish it was different but it's places like this that help us realize that we are not alone.

ravenwoodglass Mentor

Then, I try to justify it by saying I need to study

If you are in college that is a valid reason to stay in and real friends shouldn't question it. If you are not feeling well you need to listen to your body and rest. Going out in college usually means going to some bar, if that isn't your situation sorry for the assumption, and going to a bar and staying out till all hours isn't going to help your healing process. While you don't want to isolate yourself if you have been glutened you are feeling miserable and rest is going to help that. If you don't want to go out because your fearful of getting glutened then you can cope with that by making sure you know what is safe when you do go out. Wine or Woodchuck cider or even a soda is going to be okay. If your group is one that likes to do all the fancy shots that are out there and pressure you to join them then you need to be firm.

With the job situation the way it is you want to graduate with the highest GPA you can and while in school you want to keep it high so you can apply for any scholarships that are available. Real freinds will understand that. Real freinds will also understand that you are not feeling well. Sometimes it is better to have one or two true freinds than to have 10 party buddies.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    2. - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    3. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    4. - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    5. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,084
    • Most Online (within 30 mins)
      7,748

    bigwave
    Newest Member
    bigwave
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • AlwaysLearning
      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    • Colleen H
      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.