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Went For A Jog Today!

AVR1962

By AVR1962
in Sports and Fitness

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AVR1962 Collaborator
AVR1962
Posted

It sure does feel great to be feeling near normal again. It was a short jog and I can tell I still have some ataxia going on still. Did an hour walk yesterday and hoping to continue to move forward from here!

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eatmeat4good Enthusiast
eatmeat4good
Posted

Congratulations! Wow! That is just wonderful!

I remember after my 16 year old had been gluten free for 4 months and he told me he felt like jogging I almost fell over! It was the saddest and happiest feeling in the world to watch my son go for a jog when he had been sick most of his life with asthma and muscle weakness and had never been able to participate in sports. He is 17 now and gluten free one year. He is wrestling in school and jogging every day and feels just ecstatic that his body works again. He had ataxia too...but it is all gone now!

If I hadn't found this site we would both still be living in hell.

Seriously I am happy for you! It must have felt wonderful to be able to use your body again. Hang in there...it gets better and better! We are are so happy about being able to exercise! I was diagnosed with fibromyalgia and told it would not get any better. That was in 2007. Well, after one year I have no sign of muscle problems unless I get gluten. I haven't actually jogged yet, but it feels great to be able to go for a walk when I want to!

Jestgar Rising Star
Jestgar
Posted

:)

I do eight mile walks now on the weekend. It's a wonderfully relaxing way to start the day. Time to myself to think, or just experience the day.

  • 4 weeks later...
AVR1962 Collaborator
AVR1962
Posted
  • Author

Any other joggers/ former joggers here who want to get back into their running shoes??

  • 3 months later...
granolagal Apprentice
granolagal
Posted

Any other joggers/ former joggers here who want to get back into their running shoes??

I would absolutely love to start running again. Nothing makes me feel the same way as my nice runner's high I used to get post-run. Unfortunately I developed PFS (runner's knee) so I had to stop running, and then my celiac syptoms (this is pre DX) started to flare up. I was so fatigued all of the time I couldn't even imagine putting on my shoes. I do yoga and I love it to death. But I need to supplement with cardio. Otherwise I feel sluggish. My physiotherapist said I'll never be able to run on a treadmill again which is devastating to me. He said I either have to run outside on a trail, or be indoors on an elliptical or stationary bike. But I want my treadmill!!! :(

I'm thinking about starting to get back into it. But I'm wondering if I should be worried about it being "too soon". I've only been gluten-free for 28 days and I feel like I have a bit of energy back, but I tried some circuit training and my heart palpitations are still pretty bad. But I don't want to get into a downward spiral - not workout due to heart palps, cardio endurance suffers which makes heart more prone to palps (?), then have palps when working out so stop...etc...etc...

Bubba's Mom Enthusiast
Bubba's Mom
Posted

Yay! It's fantastic to hear that you've gone from having such problems with Ataxia, to actually running! I'm THRILLED for you. It's so wonderful to get your old self back again. :D

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    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
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      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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