Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Where Do I Go For Help Staying On The Gf


Guest missyflanders

Recommended Posts

Guest missyflanders

I was tested because of family members with it and trouble with my last pregnancy.

I was on the diet for a year then just gave up. Started it again a month ago and am not doing well sticking with it. Help!!!!!!

Missy


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Carriefaith Enthusiast

As you know probably know, it is very important to stick with the diet or you may run into serious complications like cancer. I would suggest going to a dietician that is very knowlegeable about celiac and reading a few books about the disease. If you need help with recipe ideas don't hesitate to ask.

Jnkmnky Collaborator

You need to choose to be healthy. You have a serious disease that you are in charge of managing. There is no drug out there to assist you with this disease. It's up to you alone, to decide to commit to the gluten free diet and take control of your health. People here will help you find foods to make this easy.

uclangel422 Apprentice

If at all possible, remove all the gluten containing food from your house or at least the stuff that you enjoy the most and dont walk down those aisles in the store. Print out food lists and restaurant guides, and find substitutes for those foods that you have a hard time giving up.

When in doubt, post on the boards and everyone will help.

Good luck!!

tarnalberry Community Regular
I was tested because of family members with it and trouble with my last pregnancy.

I was on the diet for a year then just gave up. Started it again a month ago and am not doing well sticking with it. Help!!!!!!

Missy

<{POST_SNAPBACK}>

What are the problems you're having staying on the diet? Do you cave into the temptation for things you don't have substitutes for? Do you have trouble finding anything to eat? Do you feel pressure to "have just a little"?

It is vital to stay on the diet, so you might start by figuring out WHY you are having trouble sticking with it.

KaitiUSA Enthusiast

As the others have said-you need to stay on the diet. There are things we can have that are good substitutes and its just a matter of finding the brands. For everything with gluten there is something without.

An important thing to realize is if you do not follow the diet you put yourself 40-100 times more likely for cancer, diabetes, and other life threatening or disabling diseases. It's not worth it. It also knocks an average of 10 years off your life.

This site will be a tremendous help to you and will provide you with info you need to know. If you have any questions- just ask.

misskris Apprentice

I had trouble sticking to the diet too at first. I thought well I'll just have a little bit - so what if I feel bad. It must be REALLY hard for you since you don't have any symptoms. I know I wouldn't care as much if I didn't feel the pain of it. It's like someone telling you that something is loaded with fat - SO WHAT - it tastes good and I can work it off later! But it doesn't cause me any immediate harm, so I don't really care. Same with Celiac when you don't have symptoms.

The thing is tho - it does hurt your body. I had to come to this realization for myself before I could actually go completely gluten-free. The other thing that helped was the fact that I could still eat out on the go. My biggest problem would be that I would be starving and was rushing from one place to another. The only thing available would be a fast food joint so I would cave in and grab a burger. But now I know that I can order a burger w/o the bun or just a grilled chicken breast (my favorite) and slice it up and dip it in sauce - just like chicken fingers w/o the bread! This has been a major lifesaver!

There are some excellent recipes on this site and lots of info about restaurants as well. I think you're in the right place to help you get a grip on this diet. (By the way - it took me over a year before I became COMPLETELY gluten-free. So hang in there!)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Canadian Karen Community Regular

Well, I can tell you what did it for me - the doctor mentioning to me the word "refractory" when I failed to show any improvement. Just google up "refractory celiac sprue" and that should be enough to convince you of the severity of this disease.... It scared me onto the straight and narrow and that's when I found all of the hidden gluten in my diet at the time.....

Karen

misskris Apprentice

Wow Karen - that definitely makes me want to be as careful as possible. :::shudders:::

Guest nini

I can imagine it would be difficult if you aren't having any symptoms, however... keep in mind that gluten is POISON for your body and would you willingly ingest poison if you knew that it was slowly killing you? Arsenic can be hidden in foods and kill someone slowly without them really noticing they are sick (at first) but IMHO it's JUST as deadly as gluten.

so in my mind gluten = poison ie:arsenic... so no way would I willingly put poison in my body...

that is the mind game I play with myself to keep myself from ever cheating.

you may not have any symptoms now, BUT if you continue to consume gluten, YOU WILL. Trust me on that one. Eventually something would happen to trigger your symptoms and then you may have a lot of other health issues to contend with because of it. stop it NOW while you can!

WLJOHNSON Newbie

Hi,

I hope so much that you will find it within you to stick to your gluten-free diet. It is truly the difference between life and death. It must be hard when you have no symptoms, but who else will take care of you if you don't?

Start by making a list of the foods you find that you can eat. Print them out on the computer and keep a copy with you, a copy on the refrigerator, a copy in your purse. Eating just meats, fruits, and vegetables, nuts and seeds, is a good way to start, then add in experimental foods, such as Ener-G wheat-free, yeast-free bread made into french toast, Soy Delicious Ice Cream in many flavors, peanut butter by the spoonful, Van's Wheat-Free Waffles (I put powdered sugar or ice cream on them) and I would suggest staying away from all grains, all milk and dairy, butter, egg whites and yeast, and be watching to see how you respond to such foods as soy, potato flour, rice flour, etc.

This diet really becomes a great experiment if you can look at it that way. Read all labels thoroughly and think about food additives such as casein, whey, maltodextrin, etc. which bother many people. 1 out of every 133 Americans supposedly has Celiac. Perhaps soon you will be helping other people as they get on the diet. Good luck to you! Welda Lou

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

    2. - Mari replied to KathyR37's topic in Coping with Celiac Disease
      5

      New here

    3. - Colleen H replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

    4. - Colleen H posted a topic in Coping with Celiac Disease
      0

      Methylprednisone treatment for inflammation?

    5. - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,879
    • Most Online (within 30 mins)
      7,748

    Peta Dunn
    Newest Member
    Peta Dunn
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      Ferritin levels.  And see what your hemoglobin looks like too, that will tell you if you are anemic?  You can have 'low normal' levels that will not be flagged by blood tests.  I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial ordered an iron infusion for me as he felt my levels were too low and if he  raised them to 40, it would help.   Because you are not feeling 100% it might be worth looking at your levels, then discussing with your doctor if they are low normal.  But I stress, don't supplement iron without your levels being monitored, too much is dangerous.
    • Mari
      Hi Katht -  I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal  function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was very true for me. I am still elimination foods from my diet. One person suggested you keep a food diary and that is a good idea but it is probably best just to do an elimination diet. There are several ne and maybe one for celiacs. I used one for a while and started with plain rice and zucchini and then added back other foods to see if I reacted or not. That helped a great deal but what I did not realise that it would only very small amounts of some foods to cause inflammation in my intestine. Within the last few years I have stopped eating any trace amounts of hot peppers, corn and soy(mostly in supplements) and nuts, (the corn in Tylenol was giving me stomach aches and the nuts were causing foot pains). Starting an elimination diet with white rice is better than brown rice that has some natural toxins. In addition it is very important to drink sufficient plain water. You can find out how much to drink for your height and weight online. I do have difficulty drinking 48 ounces of water but just recently have found an electrolyte supplement that helps me stay well hydrated, Adding the water and electrolytes may reduce muscle cramps and gag spams you wrote about. . Also buy some anti-gluten enzyme capsules to take with meals. I use GliadinX advertised here. These are a lot of things to do at one time as they reflect my 20 years of experience. I hope you do what you can manage to do over time. Good luck and take care.
    • Colleen H
      Yes thyroid was tested.. negative  Iron ...I'm. Not sure ... Would that fall under red blood count?  If so I was ok  Thank you for the detailed response..☺️
    • Colleen H
      Hi all !! Did anyone ever get prescribed methylprednisone steroids for inflammation of stomach and intestines?  Did it work ??  Thank you !! 
    • cristiana
      Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse.  But it is important not to stop the treatment.  Regarding your problems with anxiety, again that is another symptom of a B12 deficiency.   I didn't know what anxiety was until it hit me like a train several months before gastrointestinal issues began, so I can certainly relate.   Two books which helped me hugely were At Last A Life by Paul David (there is a website you can look up) and The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi.  Although his book is aimed at people who have depression, following the principals he sets out was so helpful in lessening my anxiety.  Llardi suggests we need to focus on getting enough: - physical exercise - omega-3 fatty acids - natural sunlight exposure - restorative sleep - social connectedness - meaningful, engaging activity   ... and we should feel a lot better. That is not to stay you must stop taking medication for depression or anxiety if you have been prescribed it, but adopting the changes Dr Llardi sets out in the book should really help. Can I just ask two more questions:  1) you say that you are B12 deficient, did they test your iron levels too?  If not, you really ought to be checked for deficiency and, 2) did they check your thyroid function, as an overactive thyroid can be cause rapid heartbeat and a lot of coeliacs have thyroid issues? Cristiana        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.