Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Got Glutened

Wakingup

Recommended Posts

Wakingup Apprentice
Wakingup
Posted

Hi everyone,

I think I got glutened on Saturday while eating lunch at the only restaurant I ever go to on a Saturday with friends. I live in Italy. The restaurant is cafeteria style. They know I'm g.i. I did choose gluten-free foods. They do make bread in the kitchen and so I am thinking that my food was cc'd. I am miserable today and have been for the past three days. Had tremendous gas and flatulence right after eating lunch that day. Then bad stomach ache no matter what I eat, anxiety, depression, very poor memory, irritability, fuzzy thinking. That was four days ago. How long will this last?

I'm a mess. I'm relatively new to this. Anyone relate?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


UKGail Rookie
UKGail
Posted

Hi there

Poor you! I think it must be tough to be GI in Italy....

The restaurant does sound like a cc risk if they are baking and maybe also making their own pasta.

I'm new to this too (since August), and have had one major glutening incident. The symptoms were just like yours, only I could also add nausea, horrid large yellow you know whats, headache, huge fatigue and sleepiness. It was about 2 weeks before it cleared. One thing that helped me with the gas and stomach ache was starting to take digestive enzymes with food. Apparently they don't work for everyone, but they worked a treat for me.

I hope you feel better soon.

Wakingup Apprentice
Wakingup
Posted
  • Author

Hi there

Poor you! I think it must be tough to be GI in Italy....

The restaurant does sound like a cc risk if they are baking and maybe also making their own pasta.

I'm new to this too (since August), and have had one major glutening incident. The symptoms were just like yours, only I could also add nausea, horrid large yellow you know whats, headache, huge fatigue and sleepiness. It was about 2 weeks before it cleared. One thing that helped me with the gas and stomach ache was starting to take digestive enzymes with food. Apparently they don't work for everyone, but they worked a treat for me.

I hope you feel better soon.

Thanks Gail....can you tell me more about the digestive enzymes.

Don't know what these are or where to find them...joanne

lucky28 Explorer
lucky28
Posted

I think I did the same thing this past weekend. I still feel bad, tired, D, bloating but the nausea has gone away. I figure I lived so long with these symptoms, I can put up with them a few days or weeks. At least I learned something from it. It's still a little disheartening to know that I have to be that militant about it! Hope you feel better soon!

GlutenDude Newbie
GlutenDude
Posted

I got diagnosed five years ago and think I finally have it figured out. If I'm feeling exhausted, fuzzy, bloated, etc., I go back two days to see what I could have possibly eaten that got me. If it's just a little bit of CC, then I'm sick for a few days or so. But if it turns out to be a lot, then I'm in bad shape for months. Isn't celiac fun??

Wakingup Apprentice
Wakingup
Posted
  • Author

I got diagnosed five years ago and think I finally have it figured out. If I'm feeling exhausted, fuzzy, bloated, etc., I go back two days to see what I could have possibly eaten that got me. If it's just a little bit of CC, then I'm sick for a few days or so. But if it turns out to be a lot, then I'm in bad shape for months. Isn't celiac fun??

Yeah, it's a blast. Thanks to you and everyone who posted, I really appreciate hearing from everyone.

I'm so discouraged because eating out is one of the few things I really enjoy with friends. I mean what else is there to do? You generally have to eat when you spend time with other people if you're together for awhile. I'm really saddened and depressed because every single time I eat out, I get sick.

I hate this.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,208
    • Most Online (within 30 mins)
      7,748
    WAB19
    Newest Member
    WAB19
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By trents · Posted

      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Scott Adams · Posted

      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Xravith · Posted

      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      CT with contrast.

      By Scott Adams · Posted

      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      New labs are now very elevated

      By Scott Adams · Posted

      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.