Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Does Anyone Have These Symptoms


dressagegal1986

Recommended Posts

dressagegal1986 Rookie

Hello My name is amanda. I Have been sick for months with numerous hospital stays. I have had my gallbladder removed as well. For the first for months all I could eat was toast white and cheerios or i would feel really sick. The tissue from my first endoscope was lost. My ultra sounds and cts were normal my blood test for chrons negitive. My second endoscope showed posstive for celiacs. I am 6 weeks gluten free and still can not eat. I live on gluten free rice chex cereal. I was eating plain potatos but when I eat I get a really bad burning in my stomach as well as heart burn indigestion and pains in my up gut area not sure if its my intestines or my colon. everything is so close together. Sometimes I vomit from the sick feeling. My stools are sometimes firm and sometimes loose. I have lost 25 pounds and cant eat still. It burns so bad. I did the smart pill test and it was normal and im doing a pill camera test on tuesday. I would really like to be able to eat again. I take prevacid once a day but not sure it is helping at all..


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

Have you tried eating things like rice, vegetable soups,applesauce, well-cooked vegetables, maybe eve some mashed sweet potato, stewed fruits like pears? All these things tend to sit well on the stomach and are easily digested by most, although of course everyone is different :) I am so sorry you are having such a miserable time of it. In general, the less processed the food is, the more easily it is digested and tolerated (except for raw, and salads at this stage which would be too much of a struggle for a damaged gut.) You are right to try to stabilize on a limited diet but I really feel whole foods would be better and you need better nutrient content. You might try taking some Pepto Bismol to help with the gut pain as it give a nice protective lining also. Hopefully others will have some more ideas for you.

And by the way, a warm welcome to the board. :)

dressagegal1986 Rookie

Have you tried eating things like rice, vegetable soups,applesauce, well-cooked vegetables, maybe eve some mashed sweet potato, stewed fruits like pears? All these things tend to sit well on the stomach and are easily digested by most, although of course everyone is different :) I am so sorry you are having such a miserable time of it. In general, the less processed the food is, the more easily it is digested and tolerated (except for raw, and salads at this stage which would be too much of a struggle for a damaged gut.) You are right to try to stabilize on a limited diet but I really feel whole foods would be better and you need better nutrient content. You might try taking some Pepto Bismol to help with the gut pain as it give a nice protective lining also. Hopefully others will have some more ideas for you.

And by the way, a warm welcome to the board. :)

when i first wake up in the morning I can have a banana but like tonight I ate one for dinner and I am really suffering. I was eating baked potoatos plain the really bad heart burn im thinking they are hard to digest. I am eager to try some salmon maybe but really nervous. I tried brown rice but it makes me sick. I think i will try to make my own chicken broth or something. Apple sauce burns really bad I think the acid maybe. I was told i have villious atrophy that my villi were very flat. Thank you so much for responding I am so discouraged and absalutely starving...

mushroom Proficient

Yes, salmon would be good to try, also any fin fish. You can make your own soups and puree them in the blender - gets the breakdown process started. White rice would be easier to digest than brown :) although not as much nutrition. You could maybe puree the rice also in the soup. Think baby food here :D

AVR1962 Collaborator

The burning you are feeling when you put something into your stomach is acid. You will need to protect your stomach. If doc did not prescribe something for the burning you can try antacids. One prevacid a day is probabaly not enough. I was taking 2 Nexium a day and doing doses of Pepto in between which I did for 3 months because my stomach was so bad before I backed off the amounts, 5 months total on the Nexium.

As the stomach heals you will be able to eat more but healing the stomach is a very important part at this stage. I ate mostly potatoes, soups, eggs during this time. Also, look up a low acidic diet and stay away from the foods on the high acidic list......dairy, coffee, citric fruits, tomatoes, spice. Don't expect miracles overnight as it does take awhile for the stomach to heal. Be faithful to your diet and to taking the antacid and you will get better.

dressagegal1986 Rookie

The burning you are feeling when you put something into your stomach is acid. You will need to protect your stomach. If doc did not prescribe something for the burning you can try antacids. One prevacid a day is probabaly not enough. I was taking 2 Nexium a day and doing doses of Pepto in between which I did for 3 months because my stomach was so bad before I backed off the amounts, 5 months total on the Nexium.

As the stomach heals you will be able to eat more but healing the stomach is a very important part at this stage. I ate mostly potatoes, soups, eggs during this time. Also, look up a low acidic diet and stay away from the foods on the high acidic list......dairy, coffee, citric fruits, tomatoes, spice. Don't expect miracles overnight as it does take awhile for the stomach to heal. Be faithful to your diet and to taking the antacid and you will get better.

wonderfull i did not know i could have pepto I will have to try it..and I have an apt wed I will ask about a better or more frequent ppi. I love the potatoes bu get really bad heart burn from them that I cant figure out..

BabsV Enthusiast

I also have GERD (reflux) symptoms although my scope showed no damage to stomach and esophagus. The doctor has me on Prilosec tablets (20mg omeprazole) -- one in the morning and one in the evening. It definitely seems to help and the doctor hopes that as I heal I'll stop needing the Prilosec.

In addition to following the gluten-free diet I'm also following a GERD diet. If you google GERD diet you'll find lots of examples. Also: don't smoke, don't lay down for at least 2 hours after eating, eat smaller meals more often throughout the day, raise the head of your bed if it really bothers you at night, and maintain a healthy weight.

Good luck. Hope you feel better soon.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dressagegal1986 Rookie

I also have GERD (reflux) symptoms although my scope showed no damage to stomach and esophagus. The doctor has me on Prilosec tablets (20mg omeprazole) -- one in the morning and one in the evening. It definitely seems to help and the doctor hopes that as I heal I'll stop needing the Prilosec.

In addition to following the gluten-free diet I'm also following a GERD diet. If you google GERD diet you'll find lots of examples. Also: don't smoke, don't lay down for at least 2 hours after eating, eat smaller meals more often throughout the day, raise the head of your bed if it really bothers you at night, and maintain a healthy weight.

Good luck. Hope you feel better soon.

thank you I tried some white rice boiled in chicken broth tonight so i hope it goes well. I have ulcers in my esophagus so i will ask for more meds on weds thank you again for your time

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      18

      My journey is it gluten or fiber?

    2. - olivia11 replied to olivia11's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      suggest gluten free food

    3. - knitty kitty replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      GI DX celiac despite neg serology and no biopsy

    4. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      18

      My journey is it gluten or fiber?

    5. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      18

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,752
    • Most Online (within 30 mins)
      7,748

    shark4frg
    Newest Member
    shark4frg
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • xxnonamexx
      I looked further into Thiamax Vitamin B1 by objective nutrients and read all the great reviews. I think I will give this a try. I noticed only possible side affect is possibly the first week so body adjusts. Life Extensions carries Benfotiamine with Thiamine and the mega one you mentioned. Not sure if both in one is better or seperate. some reviews state a laxative affect as side affect. SHould I take with my super B complex or just these 2 and multivitamin? I will do further research but I appreciate the wonderful explanation you provided on Thiamine.
    • olivia11
      Thanks I am mostly looking for everyday staples and easy meal ideas nothing too specialty if possible.
    • knitty kitty
      There are other Celiac genes. HLA DQ 2 and HLA DQ 8 show up in people from Northern European descent.   People of Mediterranean descent have HLA DQ 7.  People of Asian descent have HLA DQ 9.   There's other Indigenous populations that have other HLA genes that code for Celiac disease.   Are you still having symptoms?   What do you include in your diet?  Are you vegetarian? Are you taking any prescription medication?  Omeprazole?  Metformin?   Do you have anemia?  Thyroid problems? Are you taking any vitamins or herbal supplements?  
    • knitty kitty
      There are eight essential B vitamins.  They are all water soluble.  Any excess of B vitamins is easily excreted by the kidneys.   Thiamine is Vitamin B 1.  Thiamine is safe and nontoxic even in high doses.  Benfotiamine and TTFD are forms of Thiamine that the body can utilize very easily.   The form of Thiamine in the supplements you mentioned is Thiamine Mononitrate, a form that the body does not absorb well and does not utilize well.  Only about thirty percent of the amount on the label is actually absorbed in the small intestine.  Less than that can actually be used by the body.  Manufacturers add thiamine mononitrate to their products because it's cheap and shelf-stable.  Thiamine and other B vitamins break down when exposed to light and heat and over time.  Thiamine Mononitrate is a form that does not break down over time sitting on a shelf waiting for someone to buy them.  What makes Thiamine Mononitrate shelf stable makes it difficult for the body to turn into a useable form.  In fact, it takes more thiamine to turn it into a useable form.   Gastrointestinal Beriberi is a localized shortage of Thiamine in the gastrointestinal tract.  High carbohydrate meals can result in gastrointestinal symptoms of Gastric Beriberi.  Fiber is a type of carbohydrate.  So, high fiber/carbohydrate snacks could trigger Gastric Beriberi.   Since blood tests for Thiamine and other B vitamins are so inaccurate, the World Health Organization recommends trying Thiamine and looking for health improvement because it's safe and nontoxic.  
    • xxnonamexx
      Thanks very interesting I have to see if I should take these 2 vitamins along with my multi and super Vit B complex or if its too much or would hurt me. I don't have any other health issues but would love to see if this improves anything especially to feel stronger build muscle.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.