Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Lyme Testing


bny06

Recommended Posts

bny06 Apprentice

Good evening all! For those of you that have done the lyme testing, how did yall go about it?? Did yall use that Ignex lab? and if so do you take the forms to your dr or a lab or who draws the blood ships it orders the tests etc?? From what I have been reading, it looks like that's the lab that should be performing the tests.. I don't want to have my dr run them through their lab just to have them inaccurate.. I have wierd neuro/muscle twitching headache issues.. could be all celiac.. but the more I read on here, the more I wonder if I should also rule out Lyme especially since I lived in the Northeast for a while.. Thanks so much for ANY info!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AVR1962 Collaborator

I was tested in the lab with a regular blood test. The nuero issues with Lyme disease, MS, hypercalcemia just to mention a few are very similiar. I went thru all the testing as docs were trying to figure out why I was having such issues. I live in an area where we do have tick problems and infact one of my neighb ors had Lyme disease several years back so I too was concerned. It was actually a relief to get the results so definately no harm in getting the test.

This might not be your situation but because you mention odd nuero issues I'll put this out to you and see if you can identify: Irritability and dizziness or vertigo, crawling sensation on skin, joint pain, poor concentration, memory problems can be a result of a vit D deficiency

Tingling in hands or feet, hot feet, anemia, nerve damage, buzzing in ears, neuropathy issues can be a vit B deficiency. I have alot of these issues and use WSN Nerve Support Formula (4 daily) each contain thiamine- 103mg, Methyl B12- 1000 mg, B2- 2 mg, B6- 2 mg, folic acid- 100 mcg, B3- 250 IU

Fatigue, disturbed sleep/insomnia, muscle twitching, muscle contraction magnesium is beneficial.

Zinc supports immune system, hair loss, taste.

Potassium regulates nerve transmissions and muscle contractions, restless legs, charlie horses

These, calcium and iron are common deficiencies with celiacs.

captaincrab55 Collaborator

Good evening all! For those of you that have done the lyme testing, how did yall go about it?? Did yall use that Ignex lab? and if so do you take the forms to your dr or a lab or who draws the blood ships it orders the tests etc?? From what I have been reading, it looks like that's the lab that should be performing the tests.. I don't want to have my dr run them through their lab just to have them inaccurate.. I have wierd neuro/muscle twitching headache issues.. could be all celiac.. but the more I read on here, the more I wonder if I should also rule out Lyme especially since I lived in the Northeast for a while.. Thanks so much for ANY info!

bny06, Living in Maryland and having so many Lyme symptoms, I was tested yearly for it... Some years I was tested twice and all tests were combined with other lab work... Since being diagnosed with Celiac in June of 09. most of the Lyme type symptons have vanished... It may just take some time to resolve all issues...

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,230
    • Most Online (within 30 mins)
      7,748

    CarolfromSanDiego
    Newest Member
    CarolfromSanDiego
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Betsy Crum
      Thank you for your response! I have considered starting a food diary in the past, I suppose this is as good a time as any to start.  
    • Betsy Crum
      I don't have health insurance so I have never had any testing done. I always thought if I stay away from gluten Ill be fine but I suppose that isn't enough anymore. I will look into getting an allergy test. Thank you for your input! 
    • trents
      I remember reading an article summarizing testing done by Gluten Free Watchdog on several brands of dried lentils. They were all heavily cross contaminated with wheat and the commentary was to the effect that dried lentils in general were the most heavily cross contaminated product category in their testing data base. So, I would definitely not use any dried lentil product that was not tested to be Gluten Free (<20ppm of gluten) or Certified Gluten Free (<10ppm of gluten).
    • Scott Adams
      While spices, lentils, beans and chickpeas are naturally gluten-free, the main concern with any brand is cross-contamination during processing and packaging. Since Suraj doesn't appear to certify their products as gluten-free or use dedicated gluten-free facilities, there is some risk of trace gluten exposure, especially with their corn flour which could be milled on shared equipment with gluten-containing grains. For absolute safety, I'd recommend looking for brands that are certified gluten-free by organizations like GFCO - good options include McCormick for spices, TruRoots or Bob's Red Mill for lentils and beans, and Anthony's for corn flour. That said, if you need to use Suraj products, be sure to carefully check labels for any wheat warnings, thoroughly rinse lentils and beans before cooking, and consider contacting the manufacturer directly to ask about their gluten testing protocols. Many in our community have found that investing in certified gluten-free brands gives them greater peace of mind and helps avoid accidental gluten exposure, especially for higher-risk items like flours.
    • Scott Adams
      Dapsone, commonly prescribed for dermatitis herpetiformis (the itchy gluten-related skin condition), comes with several potential side effects that patients should monitor. The most frequent issues include blood-related problems like hemolytic anemia (especially in those with G6PD deficiency, which is more common in certain ethnic groups) and methemoglobinemia that can cause fatigue, shortness of breath, or bluish skin. Many patients also experience headaches, nausea, dizziness, or skin sensitivity to sunlight. While these effects are often manageable, there are rare but serious risks including dapsone hypersensitivity syndrome (with fever, rash and organ inflammation), liver problems, or severe anemia that require immediate medical attention. That's why doctors typically monitor blood counts and liver enzymes regularly during treatment. A crucial tip: proton pump inhibitors like omeprazole can interfere with dapsone's effectiveness, so discuss all medications with your doctor. If you develop fever, unexplained fatigue, yellowing skin/eyes, or a spreading rash while on dapsone, stop taking it and contact your healthcare provider right away. For celiac patients specifically, remember that strict gluten-free eating may eventually reduce or eliminate the need for dapsone to control dermatitis herpetiformis symptoms over time.
×
×
  • Create New...