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Help On Results Confused

bauerpratt

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bauerpratt Newbie
bauerpratt
Posted

I am oing over all my test so far an I have a question, here are my results

Deamidated Gli Abs, IgA-High

Deamidated Gli Abs, IgG-High

t-Transglu (tTg) IgA- High

T-Trans (tTg) IgG-High

Endomysial Antibody IgA -Positive

BUT

now my Doct. just a family doc not a spec. did not understand this nor do I so I am praying one of you do my

Immunoglobulin A, Qn,Serum was a 35 Low was is that?

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Skylark Collaborator
Skylark
Posted

Welcome. You sure belong here. That's a strong celiac result! Let us know if/when you need help starting on the diet. Please jump feel free to ask questions.

Low total IgA means that you are IgA deficient. It is not a big deal as far as health, but it is a risk factor for celiac so it's not surprising. The confusing thing is that usually the IgA celiac tests don't come back positive when you are IgA deficient. Either you have a LOT of celiac antibodies, or there was a lab error on the total IgA. You can't know without retesting total IgA. It would be good to retest total IgA so you and your doctor know for sure whether to use the IgA or IgG version of the tests to follow your celiac disease (you will be retested to be sure the antibodies go away). If you are definitely IgA deficient, the IgG tests will be more senstive. If you're not IgA deficient (it was a lab error) you use the IgA versions because IgG is unreliable.

Is your doctor referring you for an endoscopy or are you going gluten-free right away?

bauerpratt Newbie
bauerpratt
Posted
  • Author

Welcome. You sure belong here. That's a strong celiac result! Let us know if/when you need help starting on the diet. Please jump feel free to ask questions.

Low total IgA means that you are IgA deficient. It is not a big deal as far as health, but it is a risk factor for celiac so it's not surprising. The confusing thing is that usually the IgA celiac tests don't come back positive when you are IgA deficient. Either you have a LOT of celiac antibodies, or there was a lab error on the total IgA. You can't know without retesting total IgA. It would be good to retest total IgA so you and your doctor know for sure whether to use the IgA or IgG version of the tests to follow your celiac disease (you will be retested to be sure the antibodies go away). If you are definitely IgA deficient, the IgG tests will be more senstive. If you're not IgA deficient (it was a lab error) you use the IgA versions because IgG is unreliable.

Is your doctor referring you for an endoscopy or are you going gluten-free right away?

I am Gluten free my doct advised it as I have been hosp. 2 times since 2007 and to the ER many times. I was always told I had IBS when I was little as well as many other problems ie : miagrains the worse!

I swell though, I go from a size 2/3 pants to looking 9 months pregnant at times. I lived on miralax stool softners and Docalax everyday that a GI in the hospital told me to do.

My family doc is the one I had to request this test from as someone told me to read up on it, we didnt understand the last part though. I am scared to go back to eatting it as I am now going back down. I swell with in hours no joke but it takes weeks to a month and a half to go back down ; (

Skylark Collaborator
Skylark
Posted

You don't have IBS. You have celiac disease. Stop eating gluten and don't look back. You shouldn't need the miralax once your intestines start to heal. Did you eat gluten for a little while before you had your blood tests, or was that done gluten-free?

bauerpratt Newbie
bauerpratt
Posted
  • Author

You don't have IBS. You have celiac disease. Stop eating gluten and don't look back. You shouldn't need the miralax once your intestines start to heal. Did you eat gluten for a little while before you had your blood tests, or was that done gluten-free?

I went gluten free for 3 days after reading an article then 1 day before my doct. tested me I started eatting it.

So that test I had been back on it for almost 2 days. Still numbers were high, I have the # just didnt post all that ; )

Another question the holidays are coming and I dont want to be rude, do any of the people you know order "frozen" holidays meals like for one anywhere ; ( I am really not a happy girl about this lol

Skylark Collaborator
Skylark
Posted

Oh, good. I was afraid those numbers were gluten-free. You'll feel much better on the diet! Three days off gluten isn't enough to change anything.

Holidays are easy if you're the one doing the cooking. If you have to visit family, it can be really hard. It really depends on your situation. Some folks cook and bring a separate meal. I'm lucky because my SiL doesn't mind cooking gluten-free for me and Mom is gluten-free too. There are a lot of discussions on holidays around the board. You might start a thread to ask for suggestions in the "coping with celiac" section.

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