Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Symptoms Of Violent Coughing And Congestion-Anyone Else?

Omma

Recommended Posts

Omma Rookie
Omma
Posted

I've been gluten free for about 6 months, not diagnosed but severely sensitive to gluten. My daughter is as well. I have the fatigue, body aches, brain fog and sometimes a stomache ache, but my immediate symptom is violent coughing, chest congestion and an earache, the other things come later. This happens within minutes of eating even the smallest amount of gluten. (Just two days ago i fried a hamburger in someones non-stick pan and I'm still paying for it)the coughing usually last 10-20 minutes, sometimes longer. And it's so bad I almost throw up. The congestion lasts longer and the body aches, fatigue, nausea and fogginess lasts....I'm not sure,about a week. I haven't seen this symptom come up and I'm wondering if I'm the only one? My daughter has the stomach issues, no coughing.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


domesticactivist Collaborator
domesticactivist
Posted

The coughing and congestion sounds more like a histamine (IgE) reaction to me. You could have both kinds of reaction.

Omma Rookie
Omma
Posted
  • Author

The coughing and congestion sounds more like a histamine (IgE) reaction to me. You could have both kinds of reaction.

Hmmmm.....I never thought of that, maybe I'm allergic to...gluten? is that possible? or maybe just wheat? All of the coughing reactions have been to wheat, don't know if I do that with rye or barley. This reaction started after I went gluten-free. I might get up the nerve and try a kernel of barley and see if I cough or not. The last gluten I ate was rye flakes, I thought they were gluten-free, and I felt truly horrible, but I didn't cough. But then that was early on in my gluten-free journey.

Trying to put all the pieces together is difficult and frustrating! I so wish I would have been tested before going gluten free...but then, by what I'm seeing here, that's not always conclusive either.

By the saliva and stool tests I did have, the conclusion is I have Leaky Gut Syndrome, my total salivery SIgA was 8 (normal 25-60)

and the total Intestinal SIgA was 60 (normal 400-800). So, there's an obvious problem, but what caused it? Celiacs? Gluten Intolerance? Maybe it doesn't matter.

One more thing, since going gluten-free I'm loosing weight, not a good thing for me. I've been trying to gain some muscle, but instead getting skinnier and skinnier. Yikes!

domesticactivist Collaborator
domesticactivist
Posted

People can have IgE reactions to wheat or to gluten or other parts of the wheat. Wheat is one of the top 8 allergens recognized in the USA. You can be allergic to wheat but not other gluten-containing grains. However, you can be allergic and ALSO be gluten intolerant and/or celiac. From what you describe, it sounds as though you may have a wheat allergy combined with gluten intolerance. Of course I'm not a dr and haven't met you so this is in no way a diagnosis, but that's where I would start looking into things.

As for the weight loss... what else are you eating? Are you eating plenty of saturated fat, protein, and vegetables? Are you feeling full, or do you feel like you can't eat enough to feel full? Have you actually crossed the threshold into being underweight? Do you have energy?

If you feel fine and are not yet underweight, there is a possibility that you are just on your way to a new equilibrium. I dropped 20 lbs at an alarming rate right away, then stabilized just above the lowest possible normal body weight.

domesticactivist Collaborator
domesticactivist
Posted

Another thought with the weight loss... could you be eating something else that is preventing you from absorbing nutrition from the food you eat? For example, some people trying to bulk up on muscle sometimes eat protein powder shakes or similar foods that are full of highly processed ingredients that can be common problem foods, like soy, eggs, or dairy.

Omma Rookie
Omma
Posted
  • Author

People can have IgE reactions to wheat or to gluten or other parts of the wheat. Wheat is one of the top 8 allergens recognized in the USA. You can be allergic to wheat but not other gluten-containing grains. However, you can be allergic and ALSO be gluten intolerant and/or celiac. From what you describe, it sounds as though you may have a wheat allergy combined with gluten intolerance. Of course I'm not a dr and haven't met you so this is in no way a diagnosis, but that's where I would start looking into things.

As for the weight loss... what else are you eating? Are you eating plenty of saturated fat, protein, and vegetables? Are you feeling full, or do you feel like you can't eat enough to feel full? Have you actually crossed the threshold into being underweight? Do you have energy?

If you feel fine and are not yet underweight, there is a possibility that you are just on your way to a new equilibrium. I dropped 20 lbs at an alarming rate right away, then stabilized just above the lowest possible normal body weight.

I've had adrenal fatigue and low thyroid in the past, so my energy level has been worse, but it still isn't the greatest. When I eat I feel full, but then hungry again in about an hour. I'm eating every two hours at this point, whole foods,lots of protein probably don't eat enough veggies as raw give me a stomache ache and it's hard to eat cooked veggies at work. I'm thinking I should start tracking what I'm eating and maybe that will give me a clue to what's going on.

I've been told I need to gain 10 lbs. of muscle, which I have very little of. I've been working out for a year now and can't seem to gain any muscle or weight. I've lifted weights in the past and had no trouble building muscle. Maybe because I'm older now? I'm 55.

Thanks for the good info!

domesticactivist Collaborator
domesticactivist
Posted

One thing that may help at work is to bring a thermos. We make a lot of soups and stews which are full of high fat meat and lots of well-cooked veggies (ala the GAPS diet). The thermoses we have stay hot for 7 hours, so they work very well. Good luck with your food diary! Sometimes they really can help sort out a problem.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Omma Rookie
Omma
Posted
  • Author

One thing that may help at work is to bring a thermos. We make a lot of soups and stews which are full of high fat meat and lots of well-cooked veggies (ala the GAPS diet). The thermoses we have stay hot for 7 hours, so they work very well. Good luck with your food diary! Sometimes they really can help sort out a problem.

A thermos! Now why didn't I think of that? My mom used to send soup with me to school for my lunch. I'll try that. Thanks!

Di2011 Enthusiast
Di2011
Posted

Years ago I went to the doc because my coughing was so bad I couldn't even sleep. Totally exhausted. He said 'asthma' and I said something like 'No I don't have asthma' and he said "Yes. you do". I though asthma was constricted throat and wheezing which I didn't have.

My asthma treatment is one of the only medications I use despite all my other gluten problems. I usually only need it a few (maybe six to ten) times a year but when I need it I REALLY need it.

Omma Rookie
Omma
Posted
  • Author

Years ago I went to the doc because my coughing was so bad I couldn't even sleep. Totally exhausted. He said 'asthma' and I said something like 'No I don't have asthma' and he said "Yes. you do". I though asthma was constricted throat and wheezing which I didn't have.

My asthma treatment is one of the only medications I use despite all my other gluten problems. I usually only need it a few (maybe six to ten) times a year but when I need it I REALLY need it.

I started to write that I only cough after eating gluten, but sometimes I cough all night long. I'll look into it. Thanks!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scatterbrain
      - Scatterbrain replied to Scatterbrain's topic in Sports and Fitness
      3

      Feel like I’m starting over

      Thanks to those who have replied. To Cristina, my symptoms are as follows: Dizziness, lightheaded, headaches (mostly sinus), jaw/neck pain, severe tinnitus, joint stiffness, fatigue, irregular heart rate, post exercise muscle fatigue and soreness, brain fog, insomnia. Generally feeling unwell. To Trents, We didn’t do any of the construction but did v...
    2. Kirita
      - Kirita replied to Kirita's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Recovery from gluten challenge

      Thank you so much for your response! I have a follow-up appointment with her pediatrician next week, and also an appointment with her pediatric GI Dr. Your message gives me some ideas for questions to ask the doctors. My daughter went strictly gluten-free in January following her first endoscopy so I’m guessing her diet is pretty solid. She is compliant b...
    3. Scott Adams
      - Scott Adams replied to Kirita's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Recovery from gluten challenge

      While the positive endoscopy confirms the diagnosis, it's important to be skeptical of the idea that your daughter will simply "bounce back" to a pre-challenge state. The gluten challenge was essentially a controlled, prolonged exposure that likely caused significant inflammation and damage to her system; it's not surprising that recovery is slow and that...
    4. Scott Adams
      - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      1

      Brain fog

      The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium. Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend...
    5. trents
      - trents replied to Scatterbrain's topic in Sports and Fitness
      3

      Feel like I’m starting over

      Were you doing any of the new home construction yourself? Drywall compounds and adhesives used in construction have been known to cause problems for some celiacs.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,285
    • Most Online (within 30 mins)
      7,748
    Kenny Waites
    Newest Member
    Kenny Waites
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scatterbrain
      Feel like I’m starting over

      By Scatterbrain · Posted

      Thanks to those who have replied.  To Cristina, my symptoms are as follows: Dizziness, lightheaded, headaches (mostly sinus), jaw/neck pain, severe tinnitus, joint stiffness, fatigue, irregular heart rate, post exercise muscle fatigue and soreness, brain fog, insomnia.  Generally feeling unwell. To Trents, We didn’t do any of the construction but did visit the job site quite often.  While getting the old house ready we stirred up a lot of dust and I’m sure mold but haven’t been back there for over a month.
    • Kirita
      Recovery from gluten challenge

      By Kirita · Posted

      Thank you so much for your response! I have a follow-up appointment with her pediatrician next week, and also an appointment with her pediatric GI Dr. Your message gives me some ideas for questions to ask the doctors. My daughter went strictly gluten-free in January following her first endoscopy so I’m guessing her diet is pretty solid. She is compliant but also reliant on others to make her food (at school and home) but she didn’t have this problem prior to the gluten challenge when she went strictly gluten-free. It really makes sense to me that the gluten challenge inflammation hasn’t healed and I will be asking her doctors about nutritional issues. I ask for anecdotal stories because the research surrounding the gluten challenge seems to be inconsistent and inconclusive (at least what I’ve been able to find!). Thank you so much for your response!
    • Scott Adams
      Recovery from gluten challenge

      By Scott Adams · Posted

      While the positive endoscopy confirms the diagnosis, it's important to be skeptical of the idea that your daughter will simply "bounce back" to a pre-challenge state. The gluten challenge was essentially a controlled, prolonged exposure that likely caused significant inflammation and damage to her system; it's not surprising that recovery is slow and that a subsequent exposure hit her so hard. The persistent fatigue is a major red flag that her body is still struggling, potentially indicating that the initial damage hasn't fully healed or that her system is now in a heightened state of reactivity. Rather than seeking anecdotal timelines from others, her experience underscores the critical need for close follow-up with her gastroenterologist to rule out other nutrient deficiencies commonly caused by celiac flare-ups, like iron or B12, and to consult with a dietitian to scrutinize her diet for any hidden sources of cross-contamination that could be perpetuating her symptoms. The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs.      
    • Scott Adams
      Brain fog

      By Scott Adams · Posted

      The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Brain fog, like other celiac disease symptoms, does improve after you to 100% gluten-free, and supplementation will also help.      
    • trents
      Feel like I’m starting over

      By trents · Posted

      Were you doing any of the new home construction yourself? Drywall compounds and adhesives used in construction have been known to cause problems for some celiacs.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.