Celiac Blood Test Came Back Negative...

[dantheman123]

I've had symptoms for over a year now, and they are as follows: lower sense of energy (most of the time), overly red face, increased bowel movements, palpitations, heat intolerance, cold intolerance, nervousness, faster heart rate, temporary weight loss, and overall feeling unwell.

Some of these symptoms are not associated with Celiac and are associated with hyperthyroidism. I have had tests and my thyroid levels are hyper, but apparently not hyper enough to warrant treatment. This led my doctor to suggest I may have Celiac, and even though I tested negative for Celiac I still think I may have it, since I read that Celiac can cause thyroid imbalances, and I believe my symptoms extend beyond the normal symptoms of hyperthyroidism.

The thing is that I've never really gotten any stomach issues, and I rarely get diarrhea. Given my symptoms, is it possible I could have Celiac? Or maybe I'm barking up the wrong tree. I have been on a gluten free diet for 2 and a half weeks now, and after one and a half weeks I felt better than I've felt literally all year. I woke up feeling totally energized, the redness in my face was all but gone, and I was really happy. But then a couple of days later that completely went away, and now I'm back to my sick self again. My diet has been pretty strict so I don't think I ate any gluten during those days. I feel like all of this could really be unrelated to gluten but I'm not sure, looking for thoughts. Thanks.

[alicewa]

I believe the EnteroLab stool test is better at measuring this sort of thing for most people.

Without your numbers, it's hard to say.

[Skylark]

Stick to the diet for at least two months before you decide one way or another. You need to give time for any inflammation to resolve. Also consider cutting out all dairy and casein-containing foods during your two-month trial. A lot of gluten intolerant folks are also casein-sensitive and don't feel better until they remove both. (I actually had to go gluten, casein, and soy-free to get well but my stomach was a mess.)

[algarve]

What test did you do? Do you have IgA deficiency?

If you don't do all of the right tests, Celiac disease may not be detected accurately.

Immunoglobulin A (IgA) Deficiency and Alternative Celiac Disease-Associated Antibodies in Sera Submitted to a Reference Laboratory for Endomysial IgA Testing

Immunoglobulin A (IgA) deficiency occurs more frequently in patients with celiac disease (celiac disease) than in the general population and can lead to false-negative results in the best serologic test for celiac disease, endomysial IgA (EMA).

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Celiac Disease and Immunoglobulin A Deficiency: How Effective Are the Serological Methods of Diagnosis?

Immunoglobulin A (IgA) deficiency is 10 to 15 times more common in patients with celiac disease (celiac disease) than in healthy subjects.

IgG-specific antibody tests for endomysium, gliadin, and tissue transglutaminase are useful for the identification of IgA-deficient patients with celiac disease. IgG antibody tests along with tests routinely being used in clinical laboratories can reliably detect all active patients with celiac disease. In addition, the levels of these celiac disease-specific IgG antibodies could be used to monitor patient dietary compliance.

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But either way a grain-free diet is probably a good idea.

[Metoo]

I think you should go see an endroconologist, a specialist. If you are having symptoms and your thyroid tested high, sounds like your thyroid is high enough to be treated given you are having symptoms.

In many articles they recommend people with thyroid disorders avoid gluten that they have found that it is helpful, whether or not they have celiac.