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Recent Activity
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- FayeBr replied to FayeBr's topic in Coping with Celiac Disease11Major Glutening
I have this so many times with products. Companies state online that their items are gluten free and then when I ask in an email, they always respond with ‘we can’t guarantee that it is, as we don’t test for gluten’ I had one recently with a bone broth that I enquired about. And dioralyte. I will include their advert and then their reply. It is so frustra...- 1
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- Scott Adams replied to FayeBr's topic in Coping with Celiac Disease11Major Glutening
Talk about sowing confusion...why does Gaviscon's website say: and when you ask them about this directly they reply with a letter saying that their product might contain gluten? This seems like false advertising to me! @FayeBr you may very well be reacting to gluten in the product, given their terrible response. -
- Rogol72 posted a topic in Related Issues & Disorders0Coeliac and Thyroid?
Folks, Does anyone know statistically, how common Thyroid issues occur in Coeliacs? Hypothyroidism, subclinical hypothyroidism and Hashimoto's. Thanks in advance. -
- Scott Adams commented on Scott Adams's article in Autumn 2025 Issue11
Can You Develop Celiac Disease Later in Life? Adult-Onset Symptoms (+Video)
There are lots of reports of covid-19 infection triggering people's celiac disease, so it seems possible that the vaccine may be a factor for some people as well. Currently there are several other viruses that have been implicated in triggering celiac disease in those who have the genes for it.- adult
- adult onset
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- Nattific posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease0Diagnosed with potential Guillain Barre could it be celiac related?
Hello, I am 24, and I got officially diagnosed a few months ago, but I'm nearly positive I've had celiac since childhood. I noticed that with a lot of my reactions, I would have neurological symptoms- dizziness, brain fog, issues with coordination- but it would always go away the farther I got from the reaction. Well, 4 weeks ago, I had my first big exposure...
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I have this so many times with products. Companies state online that their items are gluten free and then when I ask in an email, they always respond with ‘we can’t guarantee that it is, as we don’t test for gluten’ I had one recently with a bone broth that I enquired about. And dioralyte. I will include their advert and then their reply. It is so frustrating. More than frustrating. How are we meant to navigate the minefield without transparency? Thankfully I very rarely get Glutened. It is mostly soy that is the worst thing for me to avert. I react to it similarly but not for as long and mainly pain all over. And we know how that hides in things. I am still suffering and today was a back pain day with the usual gut and gastro symptoms. Aren’t we all lucky. Still, we live to fight another day! 😊
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By Scott Adams · Posted
Talk about sowing confusion...why does Gaviscon's website say: and when you ask them about this directly they reply with a letter saying that their product might contain gluten? This seems like false advertising to me! @FayeBr you may very well be reacting to gluten in the product, given their terrible response. -
Folks, Does anyone know statistically, how common Thyroid issues occur in Coeliacs? Hypothyroidism, subclinical hypothyroidism and Hashimoto's. Thanks in advance.
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Hello, I am 24, and I got officially diagnosed a few months ago, but I'm nearly positive I've had celiac since childhood. I noticed that with a lot of my reactions, I would have neurological symptoms- dizziness, brain fog, issues with coordination- but it would always go away the farther I got from the reaction. Well, 4 weeks ago, I had my first big exposure in two years. I got a salad from work, asked for grilled chicken, they put breaded chicken on, and put on a lot of dressing, so I couldn't tell until I was bout 50% finished eating it. I had all my regular miserable symptoms, diarrhea, vomiting, bloating, joint pain- all the works. But then, right around when the GI symptoms stopped, I developed neurological symptoms. I started feeling dizzy, and then the dizziness progressed to numbness in my legs, then weakness to the point that I fell down stairs. After I fell, I went to the ER, and now I have been admitted with Guillain-Barré. I developed paralysis and lots of issues with my cranial nerves. At its worst, my paralysis went up to my knees, but after 5 days of IVIG treatment, I'm now no longer paralyzed in my legs, just incredibly weak and struggling to walk. The problem is that a lot of my tests are coming back normal, which I'm told can happen with Guillain-Barré, especially this early, so that's my diagnosis, but the other differential diagnosis is "functional neurological disorder." So if my EMG test winds up being negative, it looks like that will be my diagnosis. I'm wondering if it winds up not being Guillain-Barré, if this could be a rare form of neurological involvement of celiac disease? I don't really agree with the functional neurological disorder differential, as I have no preexisting mental health problems, i actively meditate, go to therapy, and am genuinely a quite calm and pleasant person. Functional neurological disorder seems to be the brain's response to trauma, and is more of a psychiatric condition than a physical one, so I can't help but disagree and be more inclined to think it's a neurological side effect of my diagnosed celiac disease. Just want some opinions. Also for reference, before all of this happened, I was working as a nurse full-time, enjoying my off days with friends and family, had a vacation planned, and was genuinely doing fine from a mental health standpoint. This also happened right after a reaction, which is leaning me towards celiac disease. Any opinions are greatly appreciated, thanks friends!
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Hi Christina, Thanks so much for taking time to answer in detail and share your story, too. It's a good reminder that we all walk different paths -- and that none of them are right or wrong. It seems like, with time, you've come to be able to identify clearly what your triggers are. I am hoping for this clarity for myself with more time. I am sure it just takes time and lots of experiences. I am 4.5 years in. When my doctor checked my antibodies earlier this year, they were at 8, which was clearly a pretty incredible progress from the 1,118 where they were 4.5 years ago! Because I am working with a different doctor than the one who diagnosed me, he hasn't seen this progress for comparison and just told me I need to be more careful. That felt frustrating. I do not have a dishwasher and I don't share the house with gluten eaters, but that is a great tip for the future, should I live in a place with a dishwasher again! When I moved into my apartment, the oven was already here. Although I don't use the convection setting, cleaned it thoroughly after moving in, and do not share it with gluten eaters, perhaps it would be worth replacing it anyway. It is getting really old as it is... Thank you again for your response and wishing a lovely Thursday, L
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