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ENT...seems Strange?

heyteacher

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heyteacher Newbie
heyteacher
Posted

I have no official diagnosis of celiac. I do have migraines, fibroish symptoms, and IBS (this is what I feel may be celiac not IBS)

Anywho-- I asked my neurologist about possible allergies causing my migraines, and GI problems. When I asked it was kind of funny because the nurse kind of chuckled and said, "no I don't think that could cause migraines like you have". The Dr however thought it might be a possibility. He wants me to see an ENT for allergy testing. Now it seems weird to me that an ENT would do these types of tests, and he (the neuro) doesn't do the testing. Esp if it is a blood test......

Maybe it's just me, and frankly I don't care who finds out what my issue(s) are, I just want an answer. All these medications that don't work and running to the nearest bathroom are getting quite old after 3 years. I know there are people that have suffered far longer than 3 years, but I don't want to be on of them :(

So now I have another Dr appt--I was trying to avoid more appointments (as you might remember) Call it desperation I guess. I feel like I don't have a choice at this point. I think actually having a diagnosis might help dh, but getting there is another story.

What are your thoughts/feelings on the ENT.....worth my time/money?? Anyone else seen an ENT for testing?

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Roda Rising Star
Roda
Posted

It might be worth it to see the ENT for allergy testing. I think most likely they will do allergy skin testing. Our local ENT office does this. Often times people with allergies have sinus issues. That was the case with my oldest son. He has year round allergies to dust mites, cockroaches and mold. He also has allergies to a few weeds and tree pollens. After identifing his allergies and starting allergy shots his chronic sinus issues and infections have resolved. I would ask the neurologist to order the blood tests for celiac as I really don't think an ENT would be the most knowledgeable person for that. Celiac is not an allergy. However, the ENT can test for food allergies such as wheat etc. Here are the blood tests for celiac: total IgA, IgA/IgG tTG(tissue transglutiminase), IgA/IgG DGP(deamidated gliadin peptide), IgA EMA, IgA/IgG AGA(anti gliadin antibody).

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    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
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      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
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      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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      Contact them.
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