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Celiac?


Bigc

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Bigc Newbie

Hey everyone, I am a 22 year old male. I love playing hockey and rugby and compete in bodybuilding, however over the last few months I haven't had the energy or the drive to get myself to the gym after work. I have been eating alot more grains the last six months as well. I could very easily sleep all day long if I had the option, but have trouble sleeping at night. For the past six months I have been very run down and not feeling like myself. Some of my symptoms include:

Abdominal crAmping and bloating (I have been told I look like I'm pregnant, especially after eating foods like pizza and other gluten rich foods)

Occasional diarrhea, stool usually isn't regular and sometimes floats

IBS especially spicy foods

Fatigue

Insomnia

Anxiety

Chest discomfort

Terrible alcohol hangovers (last 2-3 days)

Alcohol intolerance (feel drunk after 2-3 drinks)

Red face a lot of the time

Food hangovers

My foot feels very warm at random times for no apparent reason

Hypoglycemia

The last week or so I have gone gluten free. I even went drinking and only drank potato vodka (usually drink wheat vodka) and my hangover wasn't nearly as bad as usual. Within two days my anxiety during the day was much better. I was still very fatigued but less than normal.Then I glutened myself and I had a kind of dry burning sensation in my eyes, I had a hangover the following day without alcohol consumption, anxiety was back, more fatigue than the last few days.

My grandmother was recently diagnosed so I'm going to get tested anyway.

I have an order for a blood test, with liver enzymes, iga, celiac screening etc but can't go till the weekend due to work. Either way I'm going to follow up with a biopsy I think even if the blood work is negative. Just sucks that I have to keep eating this way until tests are done :(

Just kind of curious if you guys have the same kind of symptoms, especially the food hangovers?


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Yes, I get a "hangover" when I'm glutened. I wake up and I'm so foggy and fatigued I don't want to get out of bed.

I find it amusing that you consider feeling drunk after 2-3 drinks to be "intolerance." I consider feeling drunk after 2-3 drinks totally normal. :lol:

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    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
    • Samanthaeileen1
      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
    • GlorietaKaro
      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
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