Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Query Re Possible Celiac Diagnosis

JC1967

Recommended Posts

JC1967 Newbie
JC1967
Posted

I have just had a positive blood test for celiac disease (my specialist said my celiac marker was more than 50% over the 'no celiac' threshold!) and am waiting on my gastroscopy results (my specialist took numerous biopsies from my small intestine). My specialist could see no obvious physical damage etc based on the gastroscopy alone, but said to wait for the biopsy results. I have continued to eat gluten products as normal leading up to (and after) the gastroscopy.

My query is - if my biopsies come back normal, should I still go on a trial gluten-free diet to see if my symptoms improve? I am seeing my specialist in 2 weeks time to discuss the biopsy results etc.

Some background on me:

Last year I had a previous celiac blood test (which came back negative) and a gastroscopy/biopsy (which also came back negative although only one sample was taken). I have also had a colonoscopy last year which came back negative as well.

My symptoms have been various - loss of weight (10 kg in one year), lots of gas (from both ends), steathorrhea, nausea, pain/stomach discomfort, abdominal bloating etc.

While its likely that my digestive issues may also be due to chronic pancreatitis (I have had acute pancreatitis attacks in the past but my pancreas is normal on scans etc), I want to rule out the possibility of celiac disease given my recent positive celiac blood test. I am taking pancreatic digestive enzymes at the moment.

Any advice would be appreciated.

JC

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Skylark Collaborator
Skylark
Posted

Yes try going off gluten no matter what the biopsy says. You may be in the process of developing celiac, with the antibodies but not a lot of damage accumultated yet. Also, the underlying problem behind your pancreatic issues is probably celiac disease.

Roda Rising Star
Roda
Posted

Yes try going off gluten no matter what the biopsy says. You may be in the process of developing celiac, with the antibodies but not a lot of damage accumultated yet. Also, the underlying problem behind your pancreatic issues is probably celiac disease.

I was thinking the same thing!

JC1967 Newbie
JC1967
Posted
  • Author

Thanks.

A further query - how long on a gluten-free diet should I stay before noticing any positive symptom changes? Or will this vary from person to person?

JC

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,763
    • Most Online (within 30 mins)
      7,748
    Donna Williamson
    Newest Member
    Donna Williamson
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • cristiana
      Ibuprofen

      By cristiana · Posted

      I cannot tolerate it at all - triggers burning and nausea, ditto aspirin.  Here in the UK I take Paracetamol.
    • knitty kitty
      Ibuprofen

      By knitty kitty · Posted

      For back pain, I take a combination of Cobalamine B12, Pyridoxine B 6, and Thiamine B 1 (in the form Benfotiamine), which have an analgesic effect.  These three B vitamins together work way better than those over the counter pain relievers.  Theses are water soluble B vitamins that are easily excreted via the kidneys if not needed.  Thiamine will also help the nausea. Interesting Reading... Mechanisms of action of vitamin B1 (thiamine), B6 (pyridoxine), and B12 (cobalamin) in pain: a narrative review https://pubmed.ncbi.nlm.nih.gov/35156556/#:~:text=Some of these processes include,Analgesics
    • knitty kitty
      Follow up endoscopy and biopsy 14 years post celiac diagnosis

      By knitty kitty · Posted

      @stephaniekl, welcome to the forum, Is your daughter taking any nutritional supplements?   Weight loss and failure to thrive are two symptoms of thiamine insufficiency.  Thiamine deficiency symptoms are not recognized as such by doctors.   I experienced similar symptoms when I became malnourished.  Thiamine deficiency symptoms can become worse quickly, and can affect one emotionally and mentally.  Although blood tests for thiamine aren't accurate, do have your daughter checked for nutritional deficiencies.  Thiamine B 1 works with the other B vitamins and magnesium.  Thiamine and Niacin B 3 help improve Gerd.  All the B vitamins are frequently low due to malabsorption.  Vitamin D will help calm the immune system.  Thiamine helps the immune system fight off viruses like those tick borne illnesses.   Thiamine Mononitrate, which is in many vitamin supplements, is not bioavailable.  I was taking a multivitamin containing thiamine mononitrate and still became deficient in thiamine. Thiamine in the form Benfotiamine has been shown to promote intestinal healing.  A form called TTFD (tetrahydrofurfuryl disulfide) is also excellent for correcting thiamine deficiency.  A combination of Thiamine, Cobalamine B12, and Pyridoxine B 6 has analgesic properties.  I take it for back pain.   Keep us posted on your progress! Interesting Reading... The importance of thiamine (vitamin B1) in humans https://pmc.ncbi.nlm.nih.gov/articles/PMC10568373/#:~:text=Thiamine absorption in the jejunum,system [51–53].
    • trents
      Follow up endoscopy and biopsy 14 years post celiac diagnosis

      By trents · Posted

      Has prednisone or some other systemic steroid been tried that might quiet her immune system down for a while? I have two acquaintances with Lyme's disease. It is a wicked condition that has long fingers.
    • stephaniekl
      Follow up endoscopy and biopsy 14 years post celiac diagnosis

      By stephaniekl · Posted

      We have.  She is so limited as to what she can eat.  She has a nutritionist, but they are even at a loss.  Right now, her pain is so significant that she can only eat 5-10 bites a meal.   We just got some labs back today and she is hypoglycemia, anemic and her immune system is shot.  She also is positive for 3 tickborne illnesses.  Thanks for your help! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.