Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Lupus And Gluten

eberbrink

By eberbrink
in Related Issues & Disorders

Recommended Posts

eberbrink Newbie
eberbrink
Posted

Hi there. I am new to the site, and i am visiting to find out more about gluten.. what exactly are the ingredients you look for? I've found a lot of info. but no specific lists. I was diagnosed with mixed connective tissue disease, which is in the family of lupus.. recently i've been delving into eastern medicine, and they believe that gluten plays a part in my diagnosis.. has anyone ever heard of such a thing? I"m willing to give it up to see if it helps my symptoms, but i just wanted to see if anyone had ever heard of that.. I've seen on site that some have + ANA testing, as do i . Also any help on those ingredients would be appreciated. Thanks kathy

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Carriefaith Enthusiast
Carriefaith
Posted

Welcome :)

Here is a link to some safe and forbidden foods:

https://www.celiac.com/st_main.html?p_catid...-32105594718.60

Celiac and Lupus are both autoimmune diseases, and they are both associated with the same gene. "Certain alleles (variations of a single gene) of an HLA gene have been associated with certain autoimmune diseases, such as juvenile rheumatoid arthritis, lupus and celiac disease." Open Original Shared Link

It is possible that you may have celaic disease or a gluten intolerance. The diet is definatley worth a try. However, if you ever want an official diagnosis, you must be consuming gluten or you may get false negative results.

mytummyhurts Contributor
mytummyhurts
Posted

I have celiac disease and probably mixed connective tissue disease too. I say probably because I haven't gotten an official diagnosis, but I do have speckled pattern anti-nuclear antibodies and have had two flare-ups. So I'm pretty sure that I have it. I haven't spent too much time researching it though. I had symptoms of celiac disease first and I know it sounds kind of weird, but I feel more in touch with that diagnosis. Maybe it's the board. I should probably join a lupus or mixed connective tissue disease board, but I don't know if I'd have time to keep up with that too. I have a hard time with just this one.

So, are you asking if gluten may cause lupus? Or make the symptoms worse? I don't really know if that is what you are asking. But I do know that lupus, celiac disease and other auto-immune disorders are more likely to occur together. How long have you been diagnosed with mixed connective tissue disease? What are your symptoms?

Bonnie Explorer
Bonnie
Posted

Hi Kathy,

My mother developed lupus about 15 years ago. They managed to diagnose that quite quickly but couldn't diagnose her chronic diarrhoea, weightloss, etc. etc. She is 55 years old and weighs 38 kgs (83 pounds). She has been tested for everything under the sun EXCEPT Celiac Disease. She has now lost her hearing, her organs are failing, she is bedridden, cannot keep food down, half her stomach has been removed and the list goes on.

I was diagnosed with celiac disease about 4 months ago - I was heading the same way as her - similar symptoms for many years. BUT, can you believe this, neither she nor her doctors will listen to me about celiac disease or gluten. I have explained everything, including the fact that I probably got it from her but no-one will listen.

I believe this is the result of undiagnosed celiac disease and the fact she has continued to eat gluten her whole life.

Please look into the gluten angle very carefully.

Good luck.

Yvonne

zakismom Newbie
zakismom
Posted

It's scary to see your mom suffer when you know what's wrong. It seems a lot of people here are familiar with not being taken seriously. How many times have we heard "It's al in your head." Good Luck :rolleyes:

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,007
    • Most Online (within 30 mins)
      7,748
    Ellen Watts
    Newest Member
    Ellen Watts
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • wellthatsfun
      confirmed via biopsy, quite depressed

      By wellthatsfun · Posted

      i am australian. we do have plenty of substitutes, but most are very expensive compared to the originals. i believe i'll just stick to home cooked meals and not have many treats at all. it's sad but it's just so much easier. also, ive heard far too many horror stories of people ordering gluten free food from restaurants and cafés, explicitly telling servers and kitchen staff that cross contamination is a strict no go, and they still get very sick. until i find a reasonably priced fully gluten free kitchen somewhere, i am not eating out for my safety and sanity.
    • wellthatsfun
      confirmed via biopsy, quite depressed

      By wellthatsfun · Posted

      thank you all for the kind words and support. it truly means a lot. i know i will adapt, it really just is a grieving process right now though. looking forward to feeling healthier!
    • The Logician
      Gluten Sensitivity

      By The Logician · Posted

      To Trent’s, yes, from what i’ve read it is not uncommon for digestive systems to become less tolerant to gluten over time. Many types of sensitivity or allergies arise in older people who never had a problem. I don’t see why you are focusing on anything but the fact that after years of my sensitivity to gluten, for whatever reason , it has disappeared after a bout of antibiotics. What i’ve read is antibiotics can make gluten sensitivity worse. In any event, in my case, if I can still eat all the wheat products I want with no reaction after a month or more since my hospital stay this is something that should be investigated. Time will tell.
    • The Logician
      Gluten Sensitivity

      By The Logician · Posted

      I had a UTI, blood cultures are standard to insure that the infection does not get in the bloodstream which can lead to sepsis and death. In my case there was bacteria in my blood which necessitated 48 hours of antibiotic IV
    • Wends
      Finally got in to doctor to get my referral and I lucked out and got into Gastro the same day - question about different transglutaminase results

      By Wends · Posted

      Hi Cameo674. just read your post. Well wishes to a correct diagnosis so that you can get on track to healing and feeling better. Personally I know it’s good to have the eosinophilic disorder ruled out too, as this can show anti-ttg igA antibodies too. But usually without the anti-gliadin antibodies unless gliadin is an allergen for you. Thanks for posting the link to look up SNPs rs… numbers on another post. Was useful. Looking at your result, ”Celiac Associated HLD-DQ Typing: DQA1* Value: 05; DQA1*DQA11 Value: 05; DQB1* Value: 02; DQB1-DQB11 Value: 02; Celiac Gene Pairs Present Value: Yes; Celiac HLA Interpretation Value: These genes are permissive for celiac disease.  However, these genes can also be present in the normal population. Testing performed by SSOP.  So google failed me.  I think these results basically say I have genes, but everybody has these genes so this test was just to confirm that there is a vague possibility?  Maybe this test result explains why I do not have the horrible symptoms most individuals with celiac have?  I told the GI my assumption is that I am just gluten intolerant since I do not have the pain? So maybe this test explains why I have antibodies?” To me it reads.that you carry the high risk HLADQ2.5 haplotype.      
×
×
  • Create New...