Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

No Symptoms Suddenly?


tehjrow

Recommended Posts

tehjrow Rookie

A year and a half ago I was diagnosed with Celiac disease. You can read my story/symptoms here:

I have remained religiously gluten free since then, just wanting to feel good, and I have felt AMAZING.

About a month ago I went to a friends house and ate some chili, assuming it was made from chili powder and not a mix. After eating it, I was talking to him and he said it was made from a mix. After closer inspection of the wrapper, it contained wheat flour. I raced home, knowing it was coming.... but it never did. So I wrote that off as lucky and moved on.

A few weeks ago I went to a sushi place I hadn't been to. I ordered some rolls that contained no soy sauce/fried things/imitation crab. Halfway through eating them I looked and saw that they did, indeed, have imitation crab in them. I forgot that some restaurants refer to crab as kanikama. I only had a few rolls left so I figured, I'm gonna be sick either way, so I finished them. I got home and waited..... nothing.

Last night I became curious and wanted to test my gluten tolerance (if there is such a thing ) and ate one of these:

Ferrero Rocher Hazelnut Chocolates

Wheat flour is clearly in the ingredient list. It's been about 12 hours.... nothing.

How can my symptoms go from completely immobilizing me to nothing? Does anyone here have a small amount they can eat with no symptoms? Should I continue to experiment?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lynnelise Apprentice

In short no I would not keep experimenting with eating gluten. You are diagnosed celiac so you know it's harming you in some way whether you feel it or not. I would say that after being strict for a year and half you've had a lot of healing so your symptoms are naturally not as bad. However damage is being done and could be substantial by the time you exhibit symptoms! Don't play with fire! ;)

CR5442 Contributor

It is possible that your villi are sufficiently recovered to not have the symptoms you previously had during your diagnosis... however that does not mean, as the above poster says, that it isn't doing your gut some harm! I would steer as clear as you can but perhaps heave a sigh of relief that if you do get accidentally glutened you won't exhibit horrid glutening symptoms! keep looking after your gut, it's the only one you've got!

domesticactivist Collaborator

Anecdotally, I am doing a gluten challenge after a year gluten free and then on GAPS and am having 20 g of gluten a day... My son is has severe gluten problems soI went gluten-free in solidarity but now want to get tested. At first I had no symptoms but a bit over a week in and they are starting to pile up. It could be that it hasn't hit yet or added up to enough damage that you feel it. If you ever had positive blood work or biopsy I'd not mess around with that.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to Jmartes71's topic in Related Issues & Disorders
      18

      My only proof

    2. - Ginger38 replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Challenges eating gluten before biopsy

    3. - Scott Adams replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Challenges eating gluten before biopsy

    4. - Scott Adams replied to emzie's topic in Related Issues & Disorders
      2

      Stomach hurts with movement

    5. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      18

      My only proof


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,463
    • Most Online (within 30 mins)
      7,748

    The Yellow Rose
    Newest Member
    The Yellow Rose
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Mari
      OKJmartes. Skin and eyes. Also anxiety and frustration. I have read that Celiacs have more skin problems than people who do not have Celiacs. I take increased levels of Vit. D3, very high levels of B12 and an eating part of an avocado every day. KnittyKitty and others here can add what they take for skin health. A Dermatologist might identify the type of skin condition. By eyes you may mean eyesight problems not just irritated, red eyes. It is not very difficult to get a diagnosis of which eye condition is affecting your vision but much more difficult to find an effective remedy. The ophthalmologists I have seen have been only a little helpful. There seems to have been some advances in eye treatments that most of them are completely ignorant of or just won't add to their treatment plans.  Forcertain you may as well buy some remedy from a facebook ad but that is obviously risky and may actually damafe your eyes. However it is known that certain supplements , taken at the effectivelevels do help with eyesight. Two of them are Luten and zanthamin (spelling?)and certain anti-oxidants such as bilberry..    Hope this helps.
    • Ginger38
      I refused to do the gluten challenge for a long time because I knew how sick I would be: I have always had and still have positive antibodies and have so many symptoms my  GI was 💯 sure I would have a positive biopsy. I didn’t want to make myself sick to get a negative biopsy and be more confused by all this.  He couldn’t guarantee me a negative biopsy meant no celiac bc there may not be damage yet or it’s possible to miss biopsies where there’s damage but he was so sure and convinced me I needed that biopsy I went back on gluten. It was a terrible experience! I took pictures of the bloating and swelling and weight gain during the challenge. I gained 9 pounds, looked pregnant, was in pain , couldn’t work or function without long naps and the brain fog was debilitating. And in the end he didn’t get a positive biopsy… so I wish I had never wasted my time or health going through it. I haven’t been truly straightened  out since and I am currently battling a shingles infection at 43 and I can’t help but wonder if the stress I put my body under to try and get an official diagnosis has caused all this. Best of luck to you - whatever you decide. It’s not a fun thing to go through and I still don’t have the answers I was looking for 
    • Scott Adams
      It's completely understandable to struggle with the gluten challenge, especially when it impacts your health and studies so significantly. Your experience of feeling dramatically better without gluten is a powerful clue, whether it points to celiac disease or non-celiac gluten sensitivity. It's very wise of you and your doctor to pause the challenge until your holidays, prioritizing your immediate well-being and exams. To answer your questions, yes, it is possible for blood tests to be negative initially and become positive later as the disease progresses, which is why the biopsy remains the gold standard. Many, many people find the gluten challenge incredibly difficult due to the return of debilitating symptoms, so you are certainly not alone in that struggle. Wishing you the best for your exams and for obtaining clearer answers when you're able to proceed.
    • Scott Adams
      It's smart that you're seeing the gastroenterologist tomorrow. While it's possible this is a severe and persistent inflammatory reaction to gluten, the fact that the pain is movement-dependent and localized with tenderness is important for your specialist to hear. It could indeed be significant inflammation, but it's also worth ruling out other overlapping issues that can affect those with celiac disease. Is it possible you got some gluten in your diet somehow? This could be a possible trigger. Hopefully, tomorrow's appointment will provide clearer answers and a path to relief so you can get back to your lectures and enjoy your weekend. Wishing you all the best for the consultation.
    • knitty kitty
      What exactly are you taking from doterra? 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.