Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Should I Retest?

ajtippetts

Should I get a new blood test  

8 members have voted

You do not have permission to vote in this poll, or see the poll results. Please sign in or register to vote in this poll.

Recommended Posts

ajtippetts Newbie
ajtippetts
Posted

So about 2 yrs ago I had a serious stomach ache (went to ER and they found "nothing). I had an MRI and they saw inflammation of my intestines and ordered an endoscope. They did a biopsy and the GI called me to tell me I had Celiac, but that I needed to go get a blood test to confirm. I went Gluten-free (sort of, it took me a while to figure out what i could and couldn't eat) for 2 weeks and then had the blood test. It came back negative, and the GI said irritable bowel syndrome. I thought, okay i don't have it and went on with my life. I eat Gluten, i have stomach aches sometimes but with IBS that's not too surprising.

So fast forward to this week. My father just got diagnosed with celiac disease. His levels were off the charts and his biopsy was positive. It then comes out (love facebook) that my Grandfather and cousin have it too. So do I get retested. could my blood tests have been wrong? Is there another reason why my biopsy would look like celiac (I had disentry as a child??)?

I have medicaid so it is covered but I don't want to waste tax $$ to get a test for nothing (i feel bad enough about the welfare).

Advice..

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Roda Rising Star
Roda
Posted

Given all the people diagnosed in your family, celiac is most consistent. However, since you seem to be eating a regular diet, correct me if I'm wrong, you could get the blood tests again if your curious. I personally don't see the need for another test since you were diagnosed two years ago. I would just go gluten free for good.

Jestgar Rising Star
Jestgar
Posted

They did a biopsy and the GI called me to tell me I had Celiac,

The blood test is the cheap, first pass. The biopsy confirms it.

Although I can't give you any references now, I remember seeing papers in PubMed wherein they showed that antibodies in the blood appear after some amount of damage is done to the intestine. So unless you're willing to wait and keep damaging yourself, stop eating gluten - you've been diagnosed.

ajtippetts Newbie
ajtippetts
Posted
  • Author

Given all the people diagnosed in your family, celiac is most consistent. However, since you seem to be eating a regular diet, correct me if I'm wrong, you could get the blood tests again if your curious. I personally don't see the need for another test since you were diagnosed two years ago. I would just go gluten free for good.

I am eating a regular diet yes. The main reason i'm looking for confirmation is all i EVER eat is bread... and english muffins... and pasta..

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,236
    • Most Online (within 30 mins)
      7,748
    Elaine Brostrom
    Newest Member
    Elaine Brostrom
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • chrish42
      Doctors and Celiac.com

      By chrish42 · Posted

      I wonder how many doctors are aware of this site and would or should recommend it to their patients?
    • Zuma888
      Hypothetical question about antibodies

      By Zuma888 · Posted

      I just got my test results after a less than 2-week gluten challenge consuming about 5 g of gluten per day on average.  Anti tTG-IgA: <0.2 AU/ml (<8 is negative) IgA: 180 mg/dl (Reference range is 70-400) I previously had been on a gluten-free diet for around 3 years or so, with occasional cheating and not being strict about cross-contamination. I am however still suffering from the effects of the gluten challenge (food sensitivities, slight brain fog, weird stool, fatigue, swollen thyroid, bodyaches). Is this likely to be NCGS rather than celiac disease given the test results and my history? Note: I have one copy of HLA-DQ8.
    • trents
      Inflammation and Menier’s disease link?

      By trents · Posted

      How long have you been strictly gluten free? Certainly, it would be good to look into vitamin and mineral deficiencies and supplementation. The B vitamins, magnesium and D3 are all very important to neurological health. Unfortunately, it can be difficult to reverse gluten-induced neurological damage damage if it has gone on for a long time. 
    • nataliallano
      Inflammation and Menier’s disease link?

      By nataliallano · Posted

      Thanks Trents I'm strict with my gluten-free diet now. I just don't feel any better. I'm going to get tested for vitamins and minerals to see if I need some supplements. For sure I got some damage that doctors call Menier's and the only way they treat it is with medicine that does damage my body more than it helps.   
    • Zuma888
      Hypothetical question about antibodies

      By Zuma888 · Posted

      Thank you Scott for your helpful response! Based on this, would you say someone who is on a gluten-free diet - but not strict about cross-contamination and occasional cheating - and tests negative for tTg-IgA while having normal total IgA is not likely to have celiac, even if they have been 'gluten-free' for years?
×
×
  • Create New...