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Should I Retest?


ajtippetts

Should I get a new blood test  

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ajtippetts Newbie

So about 2 yrs ago I had a serious stomach ache (went to ER and they found "nothing). I had an MRI and they saw inflammation of my intestines and ordered an endoscope. They did a biopsy and the GI called me to tell me I had Celiac, but that I needed to go get a blood test to confirm. I went Gluten-free (sort of, it took me a while to figure out what i could and couldn't eat) for 2 weeks and then had the blood test. It came back negative, and the GI said irritable bowel syndrome. I thought, okay i don't have it and went on with my life. I eat Gluten, i have stomach aches sometimes but with IBS that's not too surprising.

So fast forward to this week. My father just got diagnosed with celiac disease. His levels were off the charts and his biopsy was positive. It then comes out (love facebook) that my Grandfather and cousin have it too. So do I get retested. could my blood tests have been wrong? Is there another reason why my biopsy would look like celiac (I had disentry as a child??)?

I have medicaid so it is covered but I don't want to waste tax $$ to get a test for nothing (i feel bad enough about the welfare).

Advice..


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Roda Rising Star

Given all the people diagnosed in your family, celiac is most consistent. However, since you seem to be eating a regular diet, correct me if I'm wrong, you could get the blood tests again if your curious. I personally don't see the need for another test since you were diagnosed two years ago. I would just go gluten free for good.

Jestgar Rising Star

They did a biopsy and the GI called me to tell me I had Celiac,

The blood test is the cheap, first pass. The biopsy confirms it.

Although I can't give you any references now, I remember seeing papers in PubMed wherein they showed that antibodies in the blood appear after some amount of damage is done to the intestine. So unless you're willing to wait and keep damaging yourself, stop eating gluten - you've been diagnosed.

ajtippetts Newbie

Given all the people diagnosed in your family, celiac is most consistent. However, since you seem to be eating a regular diet, correct me if I'm wrong, you could get the blood tests again if your curious. I personally don't see the need for another test since you were diagnosed two years ago. I would just go gluten free for good.

I am eating a regular diet yes. The main reason i'm looking for confirmation is all i EVER eat is bread... and english muffins... and pasta..

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  • Posts

    • Fayeb23
      Thank you that’s really helpful, hopeful won’t have to have a biopsy.
    • RMJ
      That means the normal range (i.e. not celiac disease) would be a result less than 14.99.  Your result is WAY above that. Some gastroenterologists would diagnose that as celiac disease even without a confirming biopsy because it is more than ten times the top of the normal range.
    • Redanafs
      Hi everyone. Back in 2022 I had blood work drawn for iga ext gliadin. Since then I’ve developed worse stomach issues and all other health issues. My doctor just said cut out gluten. He did no further testing. Please see my test results attached. I just need some direction cause I feel so ill and the stomach pain is becoming worse. Can this test show indications for other gastrointestinal diseases?
    • Fayeb23
      Thank you. These were the results TTG ABS NUMERICAL: > 250.0 U/mL [< 14.99]  Really don’t understand the results!
    • Scott Adams
      Clearly from what you've said the info on Dailymed is much more up to date than the other site, which hasn't been updated since 2017. The fact that some companies might be repackaging drugs does not mean the info on the ingredients is not correct.
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