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Anyone From Toronto Canada

griffen169

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griffen169 Newbie
griffen169
Posted

hey everyone im new on this site i think this is the first time i have been on one of thease kinds of sites that have people with the same problem as me ive never met or talked to anyone with celiac disease befor everyone i know look at me like im different cause of it and this could be nice to talk to other with the same thing

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Canadian Karen Community Regular
Canadian Karen
Posted

Hi!

I am from the GTA area (Durham).

Welcome to the board! How old are you?

Karen

griffen169 Newbie
griffen169
Posted
  • Author

hey there i, 21

psawyer Proficient
psawyer
Posted

Hi, I'm in Markham when I'm at home (right now I'm in Boston).

griffen169 Newbie
griffen169
Posted
  • Author

so is there any ladys from the toronto area on this site it would be nice to meet someone knew who knows what i go through lol

:P

jennifer savoy Newbie
jennifer savoy
Posted

so is there any ladys from the toronto area on this site it would be nice to meet someone knew who knows what i go through lol

:P

<{POST_SNAPBACK}>

Hello;

I am a new member to this site as well. Just thought that I would let you know that I am from Windsor,Ontario,but currently residing in the US. I have Celiac Disease now for 32 years and I can relate to the difficulty of people finding you to be different!!

Hope to hear from you soon!! :P

  • 1 month later...
lorka150 Collaborator
lorka150
Posted

Hey everyone,

Just wondering - other than Il Fornello/Outback/Swiss Chalet.. The basics, what gluten free restaurants have you been to in Ontario?

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  • 2 weeks later...
fisharefriendsnotfood Apprentice
fisharefriendsnotfood
Posted

I live in Richmond Hill - I'm 14.

-Jackie

Ursa Major Collaborator
Ursa Major
Posted

Hi, I am in Alliston, about 50 miles north of Toronto (southwest of Barrie). I am 52 years old, and just figured out two and a half weeks ago that I've had full blown celiac disease all summer, and gluten intolerance all my life (was diagnosed with fibromyalgia). Yesterday I found that it is likely lectin intolerance (which includes gluten), which leaves me with very little I can eat :blink: . But avoiding gluten and other things I am intolerant to for these two weeks has made an incredible difference to the way I am feeling, I know I am on the right track, finally!

I feel weird too, having to tell people I can't eat so many things. Because they don't understand that it makes me feel desperately ill if I 'cheat' on my diet. Most people think of cheating on a diet means eating sweets or something like that on a weight loss diet, and they don't have a clue that you absolutely cannot do that with this diet.

lorka150 Collaborator
lorka150
Posted

Anyone want to meet up for chat and dinner or coffee? Like a support group?

Ursa Major Collaborator
Ursa Major
Posted
Anyone want to meet up for chat and dinner or coffee? Like a support group?

<{POST_SNAPBACK}>

That would be nice. Where do you live?

lorka150 Collaborator
lorka150
Posted

I split my time between Kitchener/Waterloo and Niagara, however I can travel anywhere within reason... the GTA, whatever!

Canadian Karen Community Regular
Canadian Karen
Posted

If it was within the general GTA vicinity, I could try...... It would definitely have to be a Saturday though. That way, Terry could stay home with the kids and I could actually have a relaxing outing!!!! (If anyone watches Desperate Housewives, I AM SOOOOOO LYNETTE!!!!!) :P

Karen

Paul-Bunyon Newbie
Paul-Bunyon
Posted
hey everyone im new on this site i think this is the first time i have been on one of thease kinds of sites that have people with the same problem as me ive never met or talked to anyone with celiac disease befor everyone i know look at me like im different cause of it and this could be nice to talk to other with the same thing

<{POST_SNAPBACK}>

If anyone looks at your differently cause you have Celiac I'd think they were pretty ignorant and rude,and good riddance. Celiac doesnt make you a freak. It's very common these days. Anyway, welcome, cause I'm new too.

lorka150 Collaborator
lorka150
Posted

Well, it doesn't really look like a lot of people want to meet up.

Darn, I thought that would get a lot of responses. <_<:(

stef-the-kicking-cuty Enthusiast
stef-the-kicking-cuty
Posted

Hi guys,

I'm not from Canada, but I'm at the Niagara Falls from November 5th to the 11th and right beside my hotel there's an Outback's Steakhouse. Don't laugh, it was pure co-incidence. So I thought some of you guys want to meet there this week??? I already got one private message from somebody. I want to keep it private, that's why I'm not telling who it is. But if others want to meet as well, or even see me compete this week (it's the World Championships!!!), you're more than welcome to.

You can write me a personal message, respond to this thread or respond to the thread with my sports diary, if you like.

Hugs, Stef

alanalynch Rookie
alanalynch
Posted
Well, it doesn't really look like a lot of people want to meet up.

Darn, I thought that would get a lot of responses. <_<  :(

<{POST_SNAPBACK}>

A support group would be fantastic. I'm in Toronto. Is anyone else nearby??

  • 5 years later...
sierrabn Newbie
sierrabn
Posted

Hello!

I'm new to the forums, after more than seven years of being sick, it seems we've finally narrowed it down to gluten, and my already diagnosed lactose issues. Anyways, I'm from the core of Toronto. Nice to meet you all! I don't have any gluten free/celiac friends either, so it would be nice to have some local people to talk to :)

  • 3 weeks later...
nyssou Newbie
nyssou
Posted

hi! i'm from the toronto core. anyone know of some good places to eat gluten and dairy free in downtown toronto? so far i've only been to karine's (across from ocad), hibiscus and supermarket (both in kensington market)

  • 3 weeks later...
HSM Newbie
HSM
Posted

so is there any ladys from the toronto area on this site it would be nice to meet someone knew who knows what i go through lol

:P

I am 20 years old, living in London, Ontario and I know what you're going through :)

Feel free to message me if you ever need someone to talk to xxx

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    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Finding gluten free ingredients

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      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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