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So Much Better - Gluten Free


GluFreeThatzMe

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GluFreeThatzMe Newbie

I had a hard time going gluten free. I was told, based on a test by my alternative doc, that my gliadin levels were high. I was suffering from chronic runs but didn't believe that this change could make ALL the difference. Stubborn or what? But I 'dabbled' a little in buying gluten free items. So silly now - when I think back. Gluten FREE - really means free. Finally it got to the point where everything I ate made me feel sick to my stomach. Then 2 years ago I finally bit the bullet. Then I gave up milk (but still had occasional milk products). I had suffered from Rhinorrhea (chronic runny nose) all of my life and it was from DAIRY! Now I am gluten free - dairy free and eat almost all organic. HUGE difference in every aspect. It isn't just a 'fad diet'. It's a forever change!

The first year I lost 30 pounds. Then, when I figured out that you can eat almost anything gluten and dairy free by just learning the substitutes, I put a bit of weight back on but still maintaining. My body thanks me every day for this change that took 4 years to finally implement.

I know of people who are suffering and they ARE just as stubborn as I was. I know a women with chronic runs who had her gall bladder removed and she's likely just gluten intolerant, but I can't see her ever making the change. I have reason to believe that the majority of the population is now affected by gluten and dairy sensitivities and they're just not aware. I think we're only an exclusive group in the sense that we have gone gluten free. I read that in the 'olden days' breads used to have something like 3% of gluten and now they have 12%. Perhaps people could have tolerated a small amount back then, but I don't believe many people have any tolerance at all now. Same with dairy.

Anyway - nice to join the group :)


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Kristinade Rookie

I am new here and started going gluten-free this month so not very long. Yet I have noticed a difference in how I feel---not running to the bathroom and having the runs nearly every day is very nice! I cleaned out my pantry and gave my wheat items to my mom because I might as well go all the way and not half-way, you know? My mom thinks I have lost a little weight but since my thyroid meds were just increased, not sure if it's from that or going gluten-free. Still waiting for an official dx and going to a new GI after the holidays.

I had a hard time going gluten free. I was told, based on a test by my alternative doc, that my gliadin levels were high. I was suffering from chronic runs but didn't believe that this change could make ALL the difference. Stubborn or what? But I 'dabbled' a little in buying gluten free items. So silly now - when I think back. Gluten FREE - really means free. Finally it got to the point where everything I ate made me feel sick to my stomach. Then 2 years ago I finally bit the bullet. Then I gave up milk (but still had occasional milk products). I had suffered from Rhinorrhea (chronic runny nose) all of my life and it was from DAIRY! Now I am gluten free - dairy free and eat almost all organic. HUGE difference in every aspect. It isn't just a 'fad diet'. It's a forever change!

The first year I lost 30 pounds. Then, when I figured out that you can eat almost anything gluten and dairy free by just learning the substitutes, I put a bit of weight back on but still maintaining. My body thanks me every day for this change that took 4 years to finally implement.

I know of people who are suffering and they ARE just as stubborn as I was. I know a women with chronic runs who had her gall bladder removed and she's likely just gluten intolerant, but I can't see her ever making the change. I have reason to believe that the majority of the population is now affected by gluten and dairy sensitivities and they're just not aware. I think we're only an exclusive group in the sense that we have gone gluten free. I read that in the 'olden days' breads used to have something like 3% of gluten and now they have 12%. Perhaps people could have tolerated a small amount back then, but I don't believe many people have any tolerance at all now. Same with dairy.

Anyway - nice to join the group :)

Chad Sines Rising Star

Same here. I am a moronic male a lot of times. I know I feel better gluten, dairy, and soy free and yet somehow certain things magically end up being eaten. There are times I do it and think immediately..what the heck did you just do. It is almost like your celiac causers took over your body and made you do it. Then you think..it really was not that good tasting anyway...

pricklypear1971 Community Regular

Mmmm hmm.

Was just visiting with my FIL and he was telling me how my nephew is developing adult acne. I said many people discover acne goes away when they eliminate certain foods or chemicals.

So he said he'll go but my nephew Proactive Solution.

FIL gets it, but he wants to "fix it now" for nephew. And that my friends, is part of the collective problem.

Chad Sines Rising Star

As a society we are a pill-first society. Give us a pill to lower blood pressure, to lose weight, to control cholesterol, etc. Forget the exercise and eating right (accepting that there are times when pills are a necessity).

In reality, once you are diagnosed with celiac, you should honestly be all better except with cross contamination since diet controls it. And yet many of us are just acting stupid on a regular basis. Same with many other health issues. It is just sad that we know the truth and yet easily push it aside.

aeraen Apprentice

Mmmm hmm.

Was just visiting with my FIL and he was telling me how my nephew is developing adult acne. I said many people discover acne goes away when they eliminate certain foods or chemicals.

So he said he'll go but my nephew Proactive Solution.

FIL gets it, but he wants to "fix it now" for nephew. And that my friends, is part of the collective problem.

My son had the same issue. I told him I would spring for a dermatologist, but only if his face did not clear up once he gave up soda for a month. A week after the big soda experiment started he had skin like an Irish lass. Never did see the derm... now he just limits his soda to the occasional dinner out.

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    • trents
      And I agree with Wheatwacked. When a physician tells you that you can't have celiac disease because you're not losing weight, you can be certain that doctor is operating on a dated understanding of celiac disease. I assume you are in the UK by the way you spelled "coeliac". So, I'm not sure what your options are when it comes to healthcare, but I might suggest you look for another physician who is more up to date in this area and is willing to work with you to get an accurate diagnosis. If, in fact, you do not have celiac disease but you know that gluten causes you problems, you might have NCGS (Non Celiac Gluten Sensitivity). There is no test available yet for NCGS. Celiac must first be ruled out. Celiac disease is an autoimmune disorder that damages the lining of the small bowel. NCGS we is not autoimmune and we know less about it's true nature. But we do know it is considerably more common than celiac disease.
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    • JudyLou
      Thank you so much @knitty kitty! My feet aren’t dry or ashy and I don’t have a rash that gets scaly. It’s like very itchy/burning vesicles that are symmetrical - on both arms, both legs, etc. They actually feel better in direct sunlight as long as it isn’t really hot or I’m not exercising outside, but gets worse if I sweat (especially if the area is covered up). It’s not usually on the outside of my elbows and knees which seems more typical of dermatitis herpetiformis (unless it spreads there). It tends to first hit the inside of those areas. Interestingly, twice the rash broke out soon after eating an unhealthy meal and having an alcoholic drink (I only drink a few times a year, no more alcohol content than a glass of wine).  So I wonder if there is a connection. I’m halfway considering doing a gluten challenge for a few months to see what happens, knowing I can stop if I have any symptoms, and asking for a full celiac disease panel at the end. I really appreciate your thoughts! 
    • knitty kitty
      Welcome, @JudyLou, Your rash sounds very similar to the one I experienced.  Mine was due to a deficiency in Niacin B3, although I had deficiencies in other nutrients as well.  Celiac disease causes malabsorption of all the essential nutrients, but eating a poor diet, taking certain medications, or drinking alcohol can result in deficiency diseases outside of Celiac, too.  Symptoms can wax and wane depending on dietary intake.  I knew an alcoholic who had the "boots" of Pellagra, which would get worse when he was drinking more heavily, and improve when he was drinking less.   Niacin deficiency is called Pellagra.  Symptoms consist of dermatitis, diarrhea, dementia, and death (the four D's).  A scaly rash on the feet and hands and arms are called the "boots" and "gloves" of Pellagra.  Darkened skin around the neck exposed to the sun is Casal's necklace.  Poor farmers with niacin deficient diets were called "red necks" because of this.    Does your rash get worse if you're in the sun?  Mine did.  Any skin exposed to the sun got blistered and scaly.  Arms, legs, neck, head.  Do you have dry, ashy skin on your feet?  The itchiness was not only from the rash, but neuropathy.   My doctors were clueless.  They didn't put all my symptoms together into the three D's.  But I did.  I'd learned about Pellagra at university.  But there weren't supposed to be deficiency diseases anymore in the developed world.  Doubtful it could be that simple, I started supplementing with Niacin and other essential nutrients.  I got better.   One of Niacinamide functions is to help stop mast cells from releasing histamine.  Your allergist gave you doxepin, an antihistamine which stops mast cells from releasing histamine.   Since you do have a Celiac gene, staying on the gluten free diet can prevent Celiac disease from being triggered again.   Interesting Reading: These case studies have pictures... Pellgra revisited.  https://pmc.ncbi.nlm.nih.gov/articles/PMC4228662/ Steroid-Resistant Rash With Neuropsychiatric Deterioration and Weight Loss: A Modern-Day Case of Pellagra https://pmc.ncbi.nlm.nih.gov/articles/PMC12532421/#:~:text=Figure 2.,(right panel) upper limbs.&text=The distribution of the rash,patient's substantial response to treatment.   Cutaneous signs of nutritional disorders https://pmc.ncbi.nlm.nih.gov/articles/PMC8721081/#:~:text=Additional causes of yellow skin,the clinical features of Kwashiorkor.   Hello, @Staticgypsy, I would not recommend cutting so many nutritious foods out of ones diet.  Oxalates can cause problems like kidney stones, but our bodies can process oxalates out of our systems with certain vitamins like Vitamins A and D and Pyridoxine B 6.   People with Celiac disease are often low in fat soluble vitamins A and D, as well as the water soluble B vitamins like Pyridoxine B 6.  Focus on serving your granddaughter nutrient dense meals to ensure she gets essential vitamins and minerals that will help her grow. Micronutrient inadequacy and urinary stone disease: an analysis of the National Health and Nutrition Examination Survey 2007-2018 https://pubmed.ncbi.nlm.nih.gov/36976348/ Multivitamins co-intake can reduce the prevalence of kidney stones: a large-scale cross-sectional study https://pubmed.ncbi.nlm.nih.gov/38564076/
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