Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Free In College


redensen

Recommended Posts

redensen Newbie

Was recently diagnosed and am in my second year of college... anyone have any tips?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AzizaRivers Apprentice

Do you live on campus and/or rely on the school dining hall as your primary source of food? If so, you'll want to speak with someone of authority about food that is or can be made safe for your to eat. I had a lot of trouble with this and eventually moved off campus because I had a VERY limited selection of safe food, and what was "safe" sometimes made me sick anyway.

My school had a small cabinet and freezer with gluten-free bread, waffles and muffins, and some cereals and occasionally cookies. While I was grateful for the effort, they 1) had no idea how to choose GOOD bread, cereal, etc., 2) didn't understand that I couldn't use the gluteny toaster, sandwich press, and other things, and 3) rarely kept the thing stocked past the first few weeks of the semester anyway, which was frustrating.

Find out what kind of accommodations your school can make for a student with special dietary needs.

Here are things I had to consider:

-Even when I could get gluten-free bread, I couldn't have sandwiches made at the sandwich counter because there was absolutely no way to prevent contamination with the gloves, countertops, toppings, press, and everything. So if I wanted a sandwich, I had to make it from the salad bar and just thaw the bread in the microwave (ew).

-My school's dining service was completely awful at accurately labeling the food with ingredients. Half the time the labels never got put up, and half the time that they were, they were not the correct dish or the ingredients weren't complete.

-I couldn't have toast for breakfast because of the toaster situation.

-I always ran the risk of being contaminated by a serving spoon or something similar that hadn't been switched out.

-Certain things like french fries were not safe because they were fried in the same oil as breaded chicken and things like that.

-Even gluten-free cereal (like Chex) were not safe because I didn't know what other cereal had been in the dispenser before.

-The dining staff may or may not have any clue about keeping you safe. Mine didn't...hence the fact that I ended up moving off campus.

-You're going to have to become best friends with the floor manager(s). They will be able to tell you what the ingredients of something are and how it's made so you can determine if they're safe. I had one manager who was awesome, but they just weren't able to feed me.

Good luck.

birdie22 Enthusiast

Definitely talk to someone in charge of campus dining. I work on a college campus and mine is quite good at meeting special dietary needs. On our campus there are 3 dining halls and they post their menus online weekly. Each hall's menus clearly identify gluten-free foods and there's always one or more gluten-free options at each hall at each meal time. The staff is well educated about changing gloves, using designated bread knives, serving utensils, etc. I'll also just ask servers to change gloves or use a new utensil if I don't think they are doing it correctly. I never get flack for that.

I'm sure it's very hit and miss at different campuses, but start with dining services.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Son's legs shaking

    2. - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    3. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    4. - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    5. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,852
    • Most Online (within 30 mins)
      7,748

    Maud
    Newest Member
    Maud
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • lizzie42
      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.