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Wondering If The European Nationalities Suffer More From The Lectin Allergy


Machelle

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Machelle Rookie

I have been so blessed with this forum , and have been able to see how and why I have these issues, and can look back and see that my relatives a generation back also had them and just did not know why. Also my Aunt has the same Lectin allergy and now I will be able to help her. I was wondering if certain types of genetics suffer more than others, we are from European decent and wondered if that was a common problem for others. I was interested to read the artcle about itching from having a potato, I also did, and have had to stop them altogether.


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auzzi Newbie

What type of lecithin allergy do you have?

Lecithin exists in humans, plants and animals. The allergic reaction is the result of the immune respones to one or more proteins found in the lecithin.

The source of lecithin determines what the allergy is ... Most commercial lecithin is from soybeans. Common sources of lecithin are egg yolks, peanuts/legumes, fish, yeast and grains.

Soy is one of the most widespread form of lecithin used in food production, and is the primary ingredient in lecithin granules.

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      I'm not saying this is what you have, but your description reminds me of Morgellons, which are not very well understood. Here is a review from a reputable source. If it seems similar to your experience, you could raise this question with your Dr.  https://my.clevelandclinic.org/health/diseases/morgellons-disease
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      Hello Russ! Thank you so much for your reply.  I have not had an antibody test done, ever, relating to gluten. Last year I had an allergy test done via blood draw (as my insurance wouldn't cover the skin test) but this was for pollen and grasses, not food. Even on the blood test I had extremely high levels of reactions to each allergen. Could this seasonal allergy inflammation be contributing to my celiac inflammation? I am so careful, there is no way I could ingest gluten. For example, couple of months ago I tried a cough drop that says it was gluten free. I checked ingredients, it seemed fine. But just taking one of those caused me to have nausea, vomiting, and the same extreme abdominal pain. Have you ever heard of anyone else having symptoms like mine after being diagnosed celiac and strictly gluten free? The last episode I had like this was yesterday, after I ate a certified gluten-free coconut macaroon with a little chocolate on it. I have eaten coconut and chocolate before with no issue,  so I didn't see how I could all of a sudden have such a strong response. 
    • Russ H
      The sensitivity of people with coeliac disease varies greatly between individuals. The generally accepted as safe limit for most people is 10 milligrams per day. This equates to a piece of bread the size of a small pea. Some people report that they are more sensitive than this, but others can very occasionally eat a normal gluten containing meal without reacting. I don't think that touching or throwing bread around would lead to you ingesting enough to cause a reaction. There are case reports of farmers with coeliac disease reacting to the dust from gluten-containing animal feed but they were inhaling large amounts of dust over a long period of time in barns. Perhaps you episodes are caused by a reaction to something other than gluten? Have you had your antibody levels checked to see whether you are still being exposed to gluten?
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