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Trying Gluten Free

phe

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phe Newbie
phe
Posted

Hi everyone,

I recently decided to try a gluten free diet because despite showing negative for celiacs on a blood test, i was told it was still possible to be gluten intolerant. I have heaps of symptoms and it would explain a number of strange illnesses/pains for the last few years of my life.

I've been gluten free for about 5 days and almost instantly i felt amazing, so much more alert with more energy. My stomach pains were disappearing too. All of a sudden today out of nowhere (with no cheating!) i got terrible pains and diarrhea. I've never had diarrhea before, just constipation for most of my life.

I was wondering if anyone had an explanation for this. I though the diet was working perfectly as most symptoms were easing - but then this. Could it be a sever reaction to slight contact with gluten? My partner eats a lot of gluten i prepare his meals often and so on. Or perhaps my body doesn't like this new diet...i know my taste buds dont!!

Thanks for any info/ideas you can give.

Phe

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KaitiUSA Enthusiast
KaitiUSA
Posted

Which blood tests were done?

Yes, it is possible to be have a severe reaction to the slightest bit of gluten. You definitely sound like you have a definite problem with it. It's great you have been feeling better so quick. However, do not expect all problems to go away overnight. It took me 8 months to get back to normal(I did see improvement after the 3rd month)

At first, it's hard not to accidentally cheat because gluten is hidden under so many things. Do you have the safe and forbidden list of ingredients and food?

https://www.celiac.com/st_main.html?p_catid=12

This is the link if you do not have it. Also products(shampoos, makeup, lotions, soaps) need to be looked at to make sure they are gluten free.

jknnej Collaborator
jknnej
Posted

Yes, you get more sensitive after not eating gluten, even if it's for a short period of time.

How careful were you? Did you have vinegar, soy sauce, or any other source that most people don't realize?

Your taste buds will adjust...plus there are a LOT of mainstream gluten-free items out there that you will learn about if you continue the diet. Don't worry...take it from someone who loves food!

Nevadan Contributor
Nevadan
Posted

You might want to consider having a DNA test done. I had mine done by Enterolabs and it came back that I was not likely to ever have celiac but that I was (doubly) gluten sensitive. One of my most overt symptoms was chronic constipation (forever) and it almost vanished within 48 hrs of going gluten-free. I too think that my sensitivity to gluten may have increased after being gluten-free.

I found the book "Dangerous Grains" by Braly and Hoggan helpful in understanding what "non-celiac gluten sensitive" means healthwise.

George

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    • trents
      Bob red mill gluten free oats

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      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
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      By jenniber · Posted

      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
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      By trents · Posted

      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
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