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Question About My Baby


LabyrinthRunner13

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LabyrinthRunner13 Rookie

Ok, so, my baby so far, has shown no signs or symptoms of having celiac. She is growing normally, has normal stools and no skin condition.

I know that celiac can crop up at any point in a persons life, and that there is no point in worrying about what MIGHT happen, but, I was just wondering, are there statistics as to how likely it is that she will develop it? She seems to have inherited my immune system. Her allergist tested her positive for allergies to dogs, peanuts and walnuts.

I know that celiac doesnt usually show up on the skin prick test, but that's how we actually caught on to mine in the first place. My skin prick test was radically positive for wheat and oats. Her's was negative. So...I guess what I want to know is, what are her chances? And if I wasnt diagnosed till I was 24, will she wait just as long?


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sa1937 Community Regular

According to the Celiac Disease Center at the University of Chicago, she has a 1 in 22 chance of getting it. You might find this Open Original Shared Link interesting. That doesn't necessarily mean she will get it or if she does, I don't think any statistics are available as to when.

Aly1 Contributor

I personally am having my daughter go gluten-free for the first few years of her life, just to be safe. The only childhood symptom I had was "growing pains" in my legs that were pretty bad. Gluten has all but ruined my adult life - I am in a wheelchair thanks to it - and I see my daughter who takes after me in so many ways... I am already gluten-free and I think until she's 5 or so we'll keep her mostly gluten-free till then. I say mostly because I don't want her to miss out on holiday treats etc without being sure there's a reason to. I figure by that age she'll be better able to verbalize what's happening to her. I guess I just don't want to theoretically gluten her for years so I'm not taking any chances. We are getting testing done first (she's not gluten-free just yet) and then just soon it regardless of test results. Mine were negative, but in my case that's irrelevant!

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      Thank you @trents for letting me know you experience something similar thanks @knitty kitty for your response and resources.  I will be following up with my doctor about these results and I’ll read the articles you sent. Thanks - I really appreciate you all.
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