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New To Celiac, Now Pregnant. Overwhelmed!

hspichke

By hspichke
in Related Issues & Disorders

Recommended Posts

hspichke Apprentice
hspichke
Posted

As some of you may know, I found out that I had celiac disease about a month ago. I had a positive tTg test which was followed by a positive celiac panel (I don't know the specific test names). Funny thing is I had a upper endoscopy scheduled for last friday, I had to cancel last min due to scheduling conflicts. This stressed me out because I wanted to start the gluten free diet but the Dr wanted a formal diagnosis. I rescheduled for this coming friday, but found out yesterday that I was pregnant. I also just found out a few months ago that I have antiphospholipid antibody syndrome. Now I am panicking because I will now be switching to a gluten free diet and dealing with the first months of pregnancy at the same time. I also have a almost 3 year old and almost 1 year old son. I feel overwhelmed and scared. I guess I am just looking for anyone who has been through this!

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lucia Enthusiast
lucia
Posted

I feel for you, although I haven't been through it myself. There is a silver lining here though, since so many women with celiac/gluten intolerance have issues with getting pregnant.

That said, going gluten-free is challenging. Try to get as much support as you can within your healthcare system. You may be able to see a nutritionist, for example. Especially when you're pregnant, you'll need to work extra hard to make sure you get enough nutrition in your diet. Luckily, a gluten-free diet can and should include fresh fruits, veggies, and meats, which are the best things we can eat for ourselves as humans anyway. If possible, you may even want to see a therapist in the short term if you feel very overwhelmed. Having two young kids and being pregnant is already pretty intense, and now you're dealing with significant health issues too.

Please join us in the cooking/baking section, if you're inclined. I've learned a lot from other folks on the board about putting together a gluten-free diet, so that at this point it actually feels easy and natural. And I do think we eat better than most Americans. So our kids will all grow up healthy and with healthier eating habits. I read recently that there's evidence now that babies actually pick up taste sensitivities while in the womb and breast feeding. If you're eating lots of good whole foods, your baby will end up liking good, nutritious foods. That's definitely a good thing.

Congrats on your pregnancy!

  • 1 month later...
Bellanovia Newbie
Bellanovia
Posted

As some of you may know, I found out that I had celiac disease about a month ago. I had a positive tTg test which was followed by a positive celiac panel (I don't know the specific test names). Funny thing is I had a upper endoscopy scheduled for last friday, I had to cancel last min due to scheduling conflicts. This stressed me out because I wanted to start the gluten free diet but the Dr wanted a formal diagnosis. I rescheduled for this coming friday, but found out yesterday that I was pregnant. I also just found out a few months ago that I have antiphospholipid antibody syndrome. Now I am panicking because I will now be switching to a gluten free diet and dealing with the first months of pregnancy at the same time. I also have a almost 3 year old and almost 1 year old son. I feel overwhelmed and scared. I guess I am just looking for anyone who has been through this!

right there with you. 9 Weeks pregnant, diagnosed two weeks ago. Two toddlers in the house. Totally overwhelmed and an emotional mess.

  • 3 weeks later...
lefteyeislazy Newbie
lefteyeislazy
Posted

I am in the same boat. Found out last week about the celiac, and I am 16 weeks pregnant with a toddler. We can do it!!

mushroom Proficient
mushroom
Posted

There must be something in the water :rolleyes: or spring is in the air :D Congrats, all.

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    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
    • Scott Adams
      Anti-endomysial Antibody (EMA) Testing

      By Scott Adams · Posted

      That is interesting, and it's the first time I heard about the umbilical cord beings used for that test. Thanks for sharing!
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