Endoscopy

[Lorelei]

I tested positive for Celiac through a blood test. Now the doctor wants me to do an endoscopy, which I

[Aly1]

A lot of docs won't officially diagnose you without the endoscopy so it depends on how important an official dx is to you...

[sa1937]

Lorelei, based on your celiac panel, if it's positive, then you have it. I believe there are some people who have had a positive blood test and a negative biopsy and vice versa. False positives on the blood tests would be exceedingly rare, if at all, while false negatives are fairly common.

My question would be how are you going to feel about not having an endoscopy a few years down the road? If it might be a lingering question, now is definitely the time to have it as you could get terribly ill having to do a gluten challenge later on. The endoscopy was definitely not as bad as my greatest fear just thinking about it.

I chose to go the whole route as I knew my adult daughter had a problem with gluten so it was important to me that if I tested positive, she would take it seriously. That said, she had a positive celiac panel and just went gluten-free skipping the endoscopy.

Good luck with whatever you decide and feel free to ask any questions you may have. And welcome to the forum!

[MitziG]

I just posted a response to the same question, and I will tell you the same.

False negative biopsies are very common. False positive blood tests are not. You have Celiac Disease. Be willing to accept that, regardless of what the biopsy says.