New Here With So Many Questions! Skin, Other Allergies...?

[Cortney]

Hey everyone!

I am new to the board and I was just recently diagnosed with a gluten intolerance. My celiac panel came back negative, but I highly suspect I may have it. We did additional blood work to see if I had a delayed allergy to gluten or intolerance. And it came back high. I don't know if I possibly came back negative on the celiac panel because in the week before I had not consumed very much gluten. But I am already on my gluten free diet now. Its been about a week. Along with many stomach issues, my gallbladder acts up and I have had a few attacks which hurt so bad. I also have keratosis pilaris on my arms and legs and stomach. Its pretty severe. I also have OCD. I have had OCD severely my entire life. I also have joint pain in my knees which I assumed was from years of gymnastics, now I am not so sure. I was tested for a milk allergy as well, but it was a blood test for immediate allergy. Which came back negative. We did not do a delayed milk allergy test because there was not one in the labs.

How do you test for a delayed milk allergy or a casein allergy? What is the test that I should ask my doctor for. I also would like to be tested for delayed allergies to soy, eggs, and nuts.

I am so afraid I will have another allergy besides gluten. I hear if you are allergic to gluten you often are allergic to casein. Why is this?

Also, I have read wonderful stories about peoples Keratosis Pilaris (NOT dermatitis herpetiformus) going away after a gluten free diet. Have any of you experienced this?

Could my anxiety and OCD possibly get better on this diet? Anyone feel better afterwards? That would be life changing!

Is it okay to consume products produced in a facility that also produces wheat if the ingredients are clean?

Is it even possible that my celiac panel was a false negative and that I could in fact have celiac. My stomach problems are terrible, my vitamins are low, and my skin, and anxiety to top it all off just add up to me. What do you all think?

I am a vegetarian already, so cutting out gluten has been a challenge. I am afraid that I will also have a casein allergy and have to be a gluten free vegan. At my age, 20, And as a college student living at home, I really can not just take over the house with my groceries. And I really dont want to have to limit my diet any more.

Soo many questions. Can anyone help me out?

I am new to this everyone. Thanks so much!

[ravenwoodglass]

Welcome to the board.It is best to eliminate both dairy and soy at first until you are well healed. Once you have been feeling better add them back in one at a time and see how you tolerate them.

We do have some here that are vegetarians so you may want to do another topic asking for specific advice from them.

If you can go with a whole food unprocessed diet for a while that is the best way to go. Get fresh veggies and fruits, beans, nuts, rice etc for now. There have been some veggie folks that have found they did need to add meat back in as it is tough to get enough protein especially if it turns out that soy is a no for you.

I think you will find that you will be feeling much better before too long but it does take some getting used to and some of us do go through a bit of withdrawl. Hang in there and ask any questions you need to. Hopefully you will feel much better physically and mentally soon.

[Cortney]

Welcome to the board.It is best to eliminate both dairy and soy at first until you are well healed. Once you have been feeling better add them back in one at a time and see how you tolerate them.

We do have some here that are vegetarians so you may want to do another topic asking for specific advice from them.

If you can go with a whole food unprocessed diet for a while that is the best way to go. Get fresh veggies and fruits, beans, nuts, rice etc for now. There have been some veggie folks that have found they did need to add meat back in as it is tough to get enough protein especially if it turns out that soy is a no for you.

I think you will find that you will be feeling much better before too long but it does take some getting used to and some of us do go through a bit of withdrawl. Hang in there and ask any questions you need to. Hopefully you will feel much better physically and mentally soon.

Thank you for your reply! So I should eliminate those foods as well and then when do I know when to reintroduce them. What on earth will I eat? Could I limit my intake of dairy but not fully eliminate it, and then gradually eat more once my digestion improves?

[AVR1962]

Are you having any burning pain in your stomach? What happens is the gluten wrecks the villa in the intestines and they no longer absorb nutrients to the body like they should. But in the process of the wreck other digestive mechanisms also stop working properly so it is very common for new patients with celiac/gluten intolerance not be able to eat dairy. It could be the caisens (Protein) or it could be the sugar in the dairy products causing the problem, depends on the person. Many gastro docs will have a prson go off both initially until the body can repair itself.

Being vegetarian you probably already know the importance of protein in your diet. Now though is a time that the healing agents in protein are important. If your stomach is in bad shape proteins (meats) become hard to digest but very important to get it in the diet in same form to continue to promote the healing factors.

Raw diet and a food journal. You may find that other foods are giving you issues. They may not always but while the system is in the healing process we become sensative to foods that we were able to eat before. Common intolerances are soy, high fructose, gums such as xanthan and carrageenan, corn for some, eggs for others. We are all uniquely different. But a jouranl will help you pinpoint these problem foods.

Request your lab work and get your vits figured out. For me that was a big big help.

[Cortney]

Are you having any burning pain in your stomach? What happens is the gluten wrecks the villa in the intestines and they no longer absorb nutrients to the body like they should. But in the process of the wreck other digestive mechanisms also stop working properly so it is very common for new patients with celiac/gluten intolerance not be able to eat dairy. It could be the caisens (Protein) or it could be the sugar in the dairy products causing the problem, depends on the person. Many gastro docs will have a prson go off both initially until the body can repair itself.

Being vegetarian you probably already know the importance of protein in your diet. Now though is a time that the healing agents in protein are important. If your stomach is in bad shape proteins (meats) become hard to digest but very important to get it in the diet in same form to continue to promote the healing factors.

Raw diet and a food journal. You may find that other foods are giving you issues. They may not always but while the system is in the healing process we become sensative to foods that we were able to eat before. Common intolerances are soy, high fructose, gums such as xanthan and carrageenan, corn for some, eggs for others. We are all uniquely different. But a jouranl will help you pinpoint these problem foods.

Request your lab work and get your vits figured out. For me that was a big big help.

Hey! So I do notice that when I eat eggs I get very sick to my stomach. And I have been gluten free for a week now but my digestive issues persist. I dont want to give Too much information, but I am still having diarrhea and I notices that it was worse this morning after I had my protein shake. It is made from whey, so obviously dairy. I have been a vegetarian for years, and when one is vegetarian for a long time, they can not just introduce meat back into their diet or they get very ill. Thats not something I need right now lol. Besides, I won't eat meat. There are proteins in vegetables, are those proteins not able to heal me? I read something about amino acids helping, I could always take that in tablet form. What do you think? And how long should I be on this raw diet before I try to introduce dairy back into the picture? And gluten is always a no no for life correct? Since I have an allergy to it according to my blood work? Once my body heals, I still shouldnt ingest gluten right?

[ravenwoodglass]

Hey! So I do notice that when I eat eggs I get very sick to my stomach. And I have been gluten free for a week now but my digestive issues persist. I dont want to give Too much information, but I am still having diarrhea and I notices that it was worse this morning after I had my protein shake. It is made from whey, so obviously dairy. I have been a vegetarian for years, and when one is vegetarian for a long time, they can not just introduce meat back into their diet or they get very ill. Thats not something I need right now lol. Besides, I won't eat meat. There are proteins in vegetables, are those proteins not able to heal me? I read something about amino acids helping, I could always take that in tablet form. What do you think? And how long should I be on this raw diet before I try to introduce dairy back into the picture? And gluten is always a no no for life correct? Since I have an allergy to it according to my blood work? Once my body heals, I still shouldnt ingest gluten right?

If your not tolerating the whey protein perhaps you could try hemp protein instead? Instead of mixing it with milk Almond milk would be another alternative or mix it with rice milk, just not Rice Dream as that isn't safe for us as it is processed with barley.

Try to make sure you are getting a complete protein, like rice and beans for example.

You can give the raw foods a try but some of us need to have our veggies well cooked at first to digest them the best.

[Cortney]

If your not tolerating the whey protein perhaps you could try hemp protein instead? Instead of mixing it with milk Almond milk would be another alternative or mix it with rice milk, just not Rice Dream as that isn't safe for us as it is processed with barley.

Try to make sure you are getting a complete protein, like rice and beans for example.

You can give the raw foods a try but some of us need to have our veggies well cooked at first to digest them the best.

Do you think it is safe to try the gluten free diet alone and still eat dairy? I just ordered some vegan hemp protein powder. And I use almond milk as it it. But I just read it can take months to see any improvement in the way you feel with a gluten intolerance after you eliminate it. So do you think it would be safe for me to continue dairy just in limited amounts. I have no idea how to get tested for delayed dairy/casein allergy, and apparently neither do my doctors. They keep ordering an immediate milk allergy test. That isnt the same right?

[AVR1962]

Hey! So I do notice that when I eat eggs I get very sick to my stomach. And I have been gluten free for a week now but my digestive issues persist. I dont want to give Too much information, but I am still having diarrhea and I notices that it was worse this morning after I had my protein shake. It is made from whey, so obviously dairy. I have been a vegetarian for years, and when one is vegetarian for a long time, they can not just introduce meat back into their diet or they get very ill. Thats not something I need right now lol. Besides, I won't eat meat. There are proteins in vegetables, are those proteins not able to heal me? I read something about amino acids helping, I could always take that in tablet form. What do you think? And how long should I be on this raw diet before I try to introduce dairy back into the picture? And gluten is always a no no for life correct? Since I have an allergy to it according to my blood work? Once my body heals, I still shouldnt ingest gluten right?

Whey is a cheese protein and it is possible your system cannot tolerate it right now. Give it at least 2 months without dairy to allow healing. Depends on the person but it could take longer. When you introdue again, go small. If you try alternative milk sources also be very careful.....sometimes when our system is healing it is hard to tolerate the carageenan and/or xanthan gum that are in some of the almond and coconut milk. That's where a food journal helps. I could not eat either for about 8 months. Only milk I could drink was rice.

Here is a link, skip the ads, I am not promoting. The info might be a bit promotional but the basics tell the importance that protein plays. Since you have been a vegetarian for awhile I am assuming you have a good knowledge of some of this already, and yes, amino acids can help. Open Original Shared Link

Stay away from all gluten.....that means barley and rye as well as oats that are not gluten-free. One thing you might notice is that you may not be able to eat oats without them going right thru you. Again, the body cannot digest the oats properly when your system is wrecked. I have heard it taking 2 years to get to the point of being able to eat oats again but I think that is different from one person to the next.

I was on a raw diet well over 5 months. My stomach was so acidic but this might not be your situation. I think you will know as you will start feeling better. One more tip, stay away from the gluten-free baked goods for now. They have additives the body sometimes has a ahard time with in the beginning. I know that sounds like alot but your goal here is to get better and that system needs repair. I kind of had to think of my stomach being that of a baby's stomach. We are real careful what we feed babies and that is how we have to be with ourselves, at least to start.

[Cortney]

Whey is a cheese protein and it is possible your system cannot tolerate it right now. Give it at least 2 months without dairy to allow healing. Depends on the person but it could take longer. When you introdue again, go small. If you try alternative milk sources also be very careful.....sometimes when our system is healing it is hard to tolerate the carageenan and/or xanthan gum that are in some of the almond and coconut milk. That's where a food journal helps. I could not eat either for about 8 months. Only milk I could drink was rice.

Here is a link, skip the ads, I am not promoting. The info might be a bit promotional but the basics tell the importance that protein plays. Since you have been a vegetarian for awhile I am assuming you have a good knowledge of some of this already, and yes, amino acids can help. Open Original Shared Link

Stay away from all gluten.....that means barley and rye as well as oats that are not gluten-free. One thing you might notice is that you may not be able to eat oats without them going right thru you. Again, the body cannot digest the oats properly when your system is wrecked. I have heard it taking 2 years to get to the point of being able to eat oats again but I think that is different from one person to the next.

I was on a raw diet well over 5 months. My stomach was so acidic but this might not be your situation. I think you will know as you will start feeling better. One more tip, stay away from the gluten-free baked goods for now. They have additives the body sometimes has a ahard time with in the beginning. I know that sounds like alot but your goal here is to get better and that system needs repair. I kind of had to think of my stomach being that of a baby's stomach. We are real careful what we feed babies and that is how we have to be with ourselves, at least to start.

What do you suggest as far as items that are not certified gluten free but the ingredients are gluten free? And what do you suggest about items that are processed in the same facility as gluten containing products, but the area is cleaned before. Do you think that is okay?

[AVR1962]

What do you suggest as far as items that are not certified gluten free but the ingredients are gluten free? And what do you suggest about items that are processed in the same facility as gluten containing products, but the area is cleaned before. Do you think that is okay?

You will see this indicated on packaging, that they have been manufactured in a facility contianing gluten. I have tried 2 differnt products and both made me sick so I do not suggest it. Oats some rice based cereals are a perfect example of items that are considered gluten free but unless they are certified gluten-free I do not eat them, too much chance of CC in the factory.