Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Health Issues Of A Celiac


ElizFost

Recommended Posts

ElizFost Newbie

Hi. I've discovered I am gluten, lactose and fructose intolerant. At the same time my mom is struggling with serious IBS issues to the point where she is no longer able to eat. I have counseled her on her diet as she has the same symptoms and issues as I have. She is slowly improving but not fast enough. What kind of doctor should she go to? She is on medicaid so her choices may be limited but what type of doctor should she look for. She struggles to eat, her gums are sore, cuts and boils are not healing but getting infected and her tooth is loose for no reason. Would really like counsel from someone into the natural health medicine. Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Skylark Collaborator

Hi. It sounds like she needs testing for nutritional deficiencies. A normal doctor can do that.

Her loose teeth, sore gums, and slow healing could be symptoms of vitamin C deficiency. Vitamin C is completely safe to supplement so you can get some at the drugstore right away and see if it helps. Most people with celiac need B-vitamins, vitamin D, and sometimes iron too. A lot of us have thyroid trouble and that can also cause slow healing. Again a normal Dr. can check her thyroid.

Has she tried some Ensure if she's having trouble eating? It's gluten and lactose free and a lot of older people who don't care to eat much find drinking some Ensure helps them get enough calories and protein.

sfamor Rookie

A gastroenterologist should be able to help and will be covered by Medicaid. She may need a referral from her primary care doctor first, but shouldn't be hard to get with the symptoms she's having.

plumbago Experienced

I second Skylark's recommendations. Ensure is great for when I am too hurried or nervous (if there is a crisis) to eat solid food. Highly recommend it. After a while, you learn to like it!

Also, yes, a gastroenterologist is who you would see but only after getting the tests done by the primary care physician. Look up the differences between endoscopy and colonoscopy. Those getting tested for celiac disease usually get the endoscopy. But again, PCP is first.

Good luck.

Takala Enthusiast

If her "issue" is truly gluten intolerance, then actually adhering strictly to a gluten free diet is the best physician.

Hear me out.

If she is already off of gluten mostly for a significant period of time, then when the Primary Care P. tests her, the blood tests will come back negative. The PCP will then announce that Mom Dearest cannot possibly have Celiac or Gluten Intolerance, and won't refer to a Gastro.

The Gastro doc will look at it the same way. Gastro docs are not going to tell you anything other than "eat a gluten free diet" IF you are formally diagnosed celiac by a positive biopsy.

The PCP can test her for thyroid and diabetes. (sores not healing is a red flag. ) With the thyroid, you must demand that they test for the ANTIBODIES in addition to the TSH levels, as with autoimmune thyroid disease the hormone levels can go up/down - up/down, swinging back and forth, and the test can say "normal range" while somebody still has the disease.

She would be better off going to a decent dentist and getting the gum disease under control. This means a cleaning/scaling, then at home, daily flossing/toothpicking and rinsing with mouthwash and then water (alcohol solutions dry the mouth out, so a water rinse should finish the routine) in addition to brushing.

If she is struggling to eat, you can pick up a decent blender for not a lot of money, and have her put fruits and vegetables in that, along with some other liquids like fruit juice or nut milks, a little coconut milk, (or even cooked rice and water) blend it up, and drink a good serving of those a day. You can google hundreds of recipes for this on the internet.

As others have already suggested, a gluten free multivitamin and mineral supplementation is essential. Vitamins B complex is very important, as are Vitamins D (found in a lot of Calcium supplements along with magnesium).

You may have to go thru her kitchen and make sure to purge/change out any thing that still has gluten (read the labels) as she may be regularly cross contaminating herself, also, check to see the old teflon is tossed, the toaster is not full of old gluten crumbs or it has to be replaced , a new cutting board, colander, etc. A trip to the dollar store may be necessary. Make sure also all medications are gluten free.

Skylark Collaborator

She would be better off going to a decent dentist and getting the gum disease under control. This means a cleaning/scaling, then at home, daily flossing/toothpicking and rinsing with mouthwash and then water (alcohol solutions dry the mouth out, so a water rinse should finish the routine) in addition to brushing.

I think she might have scurvy, Takala, though I'm not a doctor and cannot diagnose. I'm pretty sure it affects the mouth and gums first.

A dentist is certainly a good idea as well and so many other good suggestions in your post.

ElizFost Newbie

Thanks, friends. My mom is taking vitamin C and drinking fresh Orange juice and she said she is feeling much better. Enzymes are helping her as well to be able to eat some things.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Skylark Collaborator

That's great! I'm glad to hear she is feeling a little better.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,570
    • Most Online (within 30 mins)
      7,748

    Moody
    Newest Member
    Moody
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      That's great news, you can do this.  Let us know how things go and don't hesitate to ask if you have any more questions. Cristiana 😊
    • petitojou
      Thank you so much for sharing your experience and I found myself giggling with happiness as I read how your body reached such spring! And I hope that your current journey is also successful!! Definitely starting the food diary! So many amazing advices. And it’s very scary. It really hits all our soft spots as well as our confidence system. Most doctors I went thought I was underage despite being in my late 20s. Right now I look like am I twelve, but is also this body that’s taking so much, so I might as well love it too! Going to make the necessary changes and stay in this path. Thank you again! 🫶
    • petitojou
      Thank you so much for the information and kind message! Reading this transformed how I’ve been viewing my efforts and progress. Guess there’s still a lot to celebrate and also heal 😌  Yes, I’ve been taking it! Just recently started taking a multivitamin supplement and separated vitamin D! I also took chewable Iron polymaltose for ferritin deficiency 2 months ago but was unable to absorb any of it.  Thank you again! Hearing such gentle words from the community makes my body and heart more patient and excited for the future. 
    • ckeyser88
      I am looking for a roomie in Chicago, Denver or Nashville! 
    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.