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Endoscopy


CHOUSE5126

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CHOUSE5126 Newbie

I was diagnosed with Celiac from a positive blood test for the disease back in November of 2010. I have not had the endoscopy performed yet. Should this be done in order to be 100% sure? If I stay away from Gluten I am usually fine. I have seen there is tests being done on a vaccine to "stop" gluten sensitivity and want to make sure I have all of the bases covered if it does work so I can eat a regular hamburger if the vaccine works.


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heidi g. Contributor

maybe that vaccine is just for people who plainly just have an intolerance and not celiac disease. If your blood test is positive then that is a most definite yes due to the fact false positives are extremely rare. I wouldn't risk eating anything with gluten ever. The taste of food is extremely temporary once swallowed. But your body is important and can last wayyy longer and you need to take care of it. You can grill your hamburger and they sell delicious hamburger buns that are gluten free at jewel! You can still enjoy food. I just found a premade delicious frozen gluten free pizza at whole foods that taste exactly like the other frozen pizza. They have frozen gluten free lasagna and pasta. Alot of people will also advise you to not get your hopes up on the vaccine. But if you believe it will work than try it. But until that time shop and look around for the gluten free. I enjoy it because I always find new things. The pizza discovery made my eyes pop out of my head in excitement.

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    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
    • Samanthaeileen1
      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
    • GlorietaKaro
      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
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