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Newbie With Questions


kingle

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kingle Newbie

Hi All,

I am new to this forum and am just trying to find relief and to feel like myself again. I


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basilicious Explorer

Kelly, in my opinion you should attempt the gluten-free diet for at least a month, keeping a food journal, and see how you feel. Then reintroduce gluten and compare. I would also evaluate the amount of caffeine and water you're drinking and consider taking probiotics and an Omega-3supplement.

Some of what you've described could very well be as a result of high gluten sensitivity, and since you've already gone through the testing, it seems like your next best option is to attempt the diet. I know it is intimidating, but there are so many naturally gluten-free dishes out there, and just think of how therapeutic it could be for your system. Being married, having kids and working full-time certainly make the situation a bit more complicated, but I hope you have your family's support, and you will be more productive and have more to give if you are feeling better! As for cost, look at ethnic cuisines such as Mexican, Indian and stir-fries (just make sure you use a gluten-free stir-fry sauce). Also, rice and potatoes are still on the menu...just watch the glycemic index of the foods you eat to make sure things stay balanced.

Hope this helps. Good luck! You can get to the bottom of this!

kingle Newbie

Thank you so much for your response. I think when i go grocery shopping this weekend I will take the plunge **gulp** and see what happens. I think I owe it to myself.

Thanks again!

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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