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Need Good Doctor Se Michigan

harleygal726

By harleygal726
in Doctors

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harleygal726 Rookie
harleygal726
Posted

I need to find a new Doctor in SE Michigan that knows there Celiac stuff and will listen to me. it is amazing how little most Doctors know about Celiac and refuse to order tests. Thanks

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Bubba's Mom Enthusiast
Bubba's Mom
Posted

Maybe try Ann Arbor? I know it's a bit of a drive, but if you have an assesment there, maybe they could help with finding a Dr. more local?

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I believe there's a Celiac center there?

harleygal726 Rookie
harleygal726
Posted
  • Author

Thanks but I have already had an assessment and the GI Doctor that I saw contradicted information that I have already researched. I was looking for recommendations on a new GI Doctor.

1138 Newbie
1138
Posted

I was originally diagnosed by Dr. Dahlstedt in Sterling Heights (endoscopy & blood test). I really liked him a lot and he was familiar with Celiac but couldn't answer a lot of questions. It seems there is so much info they don't know. My brother was also diagnosed by him before me. He chose to then see the leading specialist in NY (Dr. Peter Green) and even he couldn't answer questions. They just don't know enough about it yet it seems. Of course he was better than most. I searched around for another doctor that might be a little more knowledgeable closer to me and the name Dr. Thomas J. Alexander in Troy came up. I went to him for my colonoscopy a year after my diagnosis. He seems the best case scenario around the metro Detroit area. He has been diagnosing Celiac for almost 30 years I think. I will go back to him for any follow ups I will need. I wish I could find a gastro doc with Celiac ;)

I also want to add Dr. Alexander was not hesitant for any testing I wanted done and he was very thorough in making sure I had a full blood workup, making sure my numbers were down for transglutaminase, bone density test, etc. And said to make sure I come back every year for bloodwork so that I am 100% where I should be.

goblue2014 Newbie
goblue2014
Posted

I see Dr. Shanti Eswaran. She is a GI out of U of M Hospital in Ann Arbor. Her clinical and research specialty is in gluten intolerances and celiac disease. She's absolutely fantastic. She listens attentively and is very thorough. She is very down-to-earth and easy to talk to, and since she herself has some food intolerances, she is also a great resource as well. After 3 years and four GIs, she was the only one who accurately diagnosed my chronic illness as being food-related. You can message me if you'd like her office number.

xjrosie Apprentice
xjrosie
Posted

I recommend Dr. Lyons. He works out of St. John. He has a main office in Detroit but also goes to Macomb (on Romeo Plank) one day a week. He diagnosed two of my kids and has been thorough about follow up visits and bloodwork to check vitamins and nutrients after diagnosis. So far, no complaints at all. I don't remember the main number, but the number to the Macomb office is 586-868-9030. They could help you get the other number.

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    • jenniber
      Disaccharide deficient, confusing biopsy results, no blood test

      By jenniber · Posted

      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      High TTG-IgG and Normal TTG-IgA

      By trents · Posted

      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      I made it through the holiday w/o being glutened. I had my brother cook with gluten-free breadcrumbs and I didn't get sick. I baked cookies with gluten-free flour and had dry ingredients for cookies in ziplock bag. I also made gluten cookies as well and guess I did good washing to avoid CC. My wife also went to a french bakery and bought a gluten-free flourless chocolate cake dedicated gluten-free it was out of this world. 
    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      What do you mean it would not allow any celiac to eat gluten again. I think if this helps cross contamination when eating out at a non dedicated gluten-free restaurant this would be nice not to encounter the pains. But is their a daily enzyme to take to help strengthen the digestive system? 
    • SamAlvi
      High TTG-IgG and Normal TTG-IgA

      By SamAlvi · Posted

      Hi, thank you for the reply. Unfortunately, no other antibody tests were ordered. I am a 32-year-old male. About two months ago, I ate pancakes and then developed severe diarrhea that lasted the entire day. At night, I became unconscious due to fluid loss and was admitted to the ER, where I received IV fluids. Two days later, I ate bread again and once more developed severe diarrhea. I ended up in the ER again and received IV fluids. In my country, Pakistan, doctors are unfortunately not very thorough, so they treated me for a stomach infection. I visited three or four doctors, including a gastroenterologist, but it seemed like they just wanted to keep me on medications and IV fluids. Eventually, I did some digging myself and started connecting the dots. For years, I’ve had excessive gas buildup and frequent loose stools, but I never paid much attention to it. I also cannot easily digest dairy products. Two years ago, I had a CBC test that showed iron deficiency. My doctor told me to eat more meat and said it was nothing serious. However, for the past five years, I’ve also had severe motion sickness, which I never experienced before. Whenever I get on a bus or in a car, I sometimes lose consciousness for 10–20 seconds and wake up sweaty, and occasionally I feel the need to vomit. After more research on the internet, I came across gluten and celiac disease, so I got two related tests (TTG-IgA & TTG IgG) done along with a stool test and another CBC. The stool test showed weakly positive blood. Ever since eating those pancakes and bread, I’ve had a burning sensation in my gut. My doctor reviewed my tests, he told me to completely stop eating gluten and started me on IV fluids for 20 days, saying that I had severe inflammation in my gut. It has now been two months since I quit gluten, and I’m still not sure whether this is celiac disease or gluten intolerance. I don’t really trust doctors in Pakistan, so I thought I might get some help here.
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