Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is Crosscontamination For The Sensitive Only


mario

Recommended Posts

mario Explorer

Ok so this is my story, the first week of my diet I was told by my friend George(celiac)that lays chips where safe and, gluten free and, that made me so happy, that I went out and, got myself a bag of regular lays. The first night of lays chips and, watching TV made me feel new again..I stopped the lays about one week ago cuz I got a little reaction..and,called the company right away..putting them on a gluten free list as written on their site..they also mention that their could be cross-contamination and, that their chips are run on the same lines..........however,hmm

Now to me this does not mean gluten free, however my friend eats them and, he's ok with them wtf/ I'm jelous and, desperate for chips, I felt normal with my bag of lays..should I wait awhile to have some again..?? I mean it is my 5th week on the diet including one accident. My friend has been on the diet since 94 and, doing amazing, he's very positive, stays fit, loves his diet and, he's 57. He also travels very often and, eats out pretty often. Back on topic...I'm sure he's less sensitive than I am about the lays chips.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



seeking-wholeness Explorer

mario,

This is just a thought, but it sounds to me like your friend may be eating trace amounts of gluten pretty frequently, so he might only notice trouble when he consumes larger quantities than usual. If you are being stricter than he is about eliminating ALL gluten from your diet, I think it stands to reason that you will experience symptoms after ingesting much smaller amounts of gluten.

To each his own, but I personally agree with you about Lay's chips!

Connie R-E Apprentice

Is being more sensitive a good thing??

Well, if it keeps you from contaminating yourself, then "Yes!"

If it keeps you from eating the things you love (that are contaminated), then "Yes!"

--cause you'll still be healthier! ;)

Connie

--being extremely sensitive keeps me on the straight and narrow!!

(sometimes I wish I could cheat, but I'm really glad I can't!!) B)

PS. I read that Fritios Scoops are run on a dedicated line due to their odd size.... :)

Guest aramgard

I have also had a reaction from Lay's potato chips and I really love them. Still have not found a potato chip I liked better. So I have been eating Mission corn chips instead. Shirley

  • 2 weeks later...
kerri124 Apprentice

I read that Lays Baked Sour Cream and Onion chips were safe from one of the gluten-free lists but when I went to the store last night I found that they all had Modified food starch which I was told was a no no. Did you check out the label?

Terri-Anne Apprentice

Mario

I'm with you. Labelling something gluten-free when the company KNOWINGLY runs the product on the SAME lines as contaminated products, really makes me angry. :angry:

My little son is counting on me, with one hundred per cent trust that I am carefully screening his diet, and will only feed him products which are safe for him. I do my best, and read labels religiously, even when I am buying something for myself only, with no intention of him ingesting any at all! When he has a reaction despite my best efforts, I get so frustrated, and guilt ridden. I feel like I've really let him down, :( , even like I've betrayed him. It's really a sad situation.

His reactions are soooooo painful for him. It breaks my heart.

Why can't these companies just clue-in and label with 100% accuracy. If something MAY be contaminated, they should SAY so! then allow buyers to make their own choices as to whether to chance it!

I would never Knowingly expose my baby to dangerous foods. :angry:

plantime Contributor

Modified food starch can be wheat, or potato, or corn. Call Lay's and ask them what kind they use.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Aightball Apprentice

The only problem I've had with Lays (other than a personal preference), is that they are so greasy. I feel like I've got a rock sitting in my gut for a while after eating them :(.

Ruffles are the ones I like right now. They ar quite nummy and gluten-free!

-Kel

  • 3 years later...
Jix Hedgehog Newbie

Thats weird, my wife (celiac) eats lays and ruffles all the time, in fact, we cook with them regularly (pan fried chicken with crunched up chips) and she seems to be ok afterwards.

I'll have to check into this further, so thank you for the heads up :)

ravenwoodglass Mentor
Is being more sensitive a good thing??

Well, if it keeps you from contaminating yourself, then "Yes!"

If it keeps you from eating the things you love (that are contaminated), then "Yes!"

--cause you'll still be healthier! ;)

I agree with this completely. I am the 'tester' in my family. If I will eat it everyone else will be okay. I also avoid Lays and agree totally that the company needs to be more honest about CC risk. We should not have to find out by getting ill.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,329
    • Most Online (within 30 mins)
      7,748

    klkarius
    Newest Member
    klkarius
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.