Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Gluten Free But Other Intolerances?


maltenbe

Recommended Posts

maltenbe Newbie

This is my first post here, I've been gluten-free for a year now. The transition wasn't too bad for me because my sister had been diagnosed with Coeliac a few months before. After eliminating the gluten and finally getting experienced enough at it to be pretty certain I wasn't consuming any rogue gluten, I am still having problems from various things.

Dairy

I have been having a weird reaction to dairy, not really similar to my gluten symptoms. No GI symptoms, but if I eat dairy, within an hour or two my skin gets really weirdly greasy, and I can smell it too, and my eyes feel weird and clogged up, and my tears are thicker than they should be. Cheese was particularly problematic, but I would usually feel perfectly fine if I had AA Organic butter. So for a long time I wasn't dairy free, because it was confusing and I didn't know what was actually the problem. It seems to be casein is the issue, but only if I consume a fair amount, that would explain why I could tolerate the butter better than other dairy. Does this seem reasonable? I am now working towards casein free, but I find it is much more difficult for me than gluten. Since butter hasn't really been a problem, I will probably try using Ghee that is labeled casein free.

Rice

This one only seems to happen if I eat rice directly, I have no problem with gluten-free bread that has rice flour. If I eat white rice or rice noodles I feel really weird the next morning. It is very difficult to describe, it's just not good. Usually I have rice with curry or something, and I was thinking it might be the coconut milk, but I also feel funny after pad thai. I am very careful and all the ingredients in the curry and pad thai are definitely gluten free, and are even labeled as such. I have no problem with corn, gluten-free Oats, or gluten-free bread, so it seems weird to me that I would tolerate all those but be sick after plain rice. Any thoughts on this would be helpful. I have been mostly avoiding rice lately.

There are other things, but I don't want this post to go on forever, and I'd rather not get a complete scattershot of replies, so I will post those some other time.

Thanks,

Miko


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Aretaeus Cappadocia replied to Jmartes71's topic in Dermatitis Herpetiformis
      2

      Skin issues

    2. - nancydrewandtheceliacclue replied to nancydrewandtheceliacclue's topic in Introduce Yourself / Share Stuff
      4

      Celiac flare years after diagnosis

    3. - trents replied to nancydrewandtheceliacclue's topic in Introduce Yourself / Share Stuff
      4

      Celiac flare years after diagnosis

    4. - nancydrewandtheceliacclue replied to nancydrewandtheceliacclue's topic in Introduce Yourself / Share Stuff
      4

      Celiac flare years after diagnosis

    5. - Russ H replied to nancydrewandtheceliacclue's topic in Introduce Yourself / Share Stuff
      4

      Celiac flare years after diagnosis

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,046
    • Most Online (within 30 mins)
      10,442

    Urquhart
    Newest Member
    Urquhart
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      I'm not saying this is what you have, but your description reminds me of Morgellons, which are not very well understood. Here is a review from a reputable source. If it seems similar to your experience, you could raise this question with your Dr.  https://my.clevelandclinic.org/health/diseases/morgellons-disease
    • nancydrewandtheceliacclue
      Hi Trent, no dairy. Other than good quality butter. I have been lactose free for years. No corn, sugar, even seasonings and spices. I don't eat out. I cook my own food.
    • trents
      @nancydrewandtheceliacclue, are you consuming dairy? Not sure if dairy is part of the carnivore diet.
    • nancydrewandtheceliacclue
      Hello Russ! Thank you so much for your reply.  I have not had an antibody test done, ever, relating to gluten. Last year I had an allergy test done via blood draw (as my insurance wouldn't cover the skin test) but this was for pollen and grasses, not food. Even on the blood test I had extremely high levels of reactions to each allergen. Could this seasonal allergy inflammation be contributing to my celiac inflammation? I am so careful, there is no way I could ingest gluten. For example, couple of months ago I tried a cough drop that says it was gluten free. I checked ingredients, it seemed fine. But just taking one of those caused me to have nausea, vomiting, and the same extreme abdominal pain. Have you ever heard of anyone else having symptoms like mine after being diagnosed celiac and strictly gluten free? The last episode I had like this was yesterday, after I ate a certified gluten-free coconut macaroon with a little chocolate on it. I have eaten coconut and chocolate before with no issue,  so I didn't see how I could all of a sudden have such a strong response. 
    • Russ H
      The sensitivity of people with coeliac disease varies greatly between individuals. The generally accepted as safe limit for most people is 10 milligrams per day. This equates to a piece of bread the size of a small pea. Some people report that they are more sensitive than this, but others can very occasionally eat a normal gluten containing meal without reacting. I don't think that touching or throwing bread around would lead to you ingesting enough to cause a reaction. There are case reports of farmers with coeliac disease reacting to the dust from gluten-containing animal feed but they were inhaling large amounts of dust over a long period of time in barns. Perhaps you episodes are caused by a reaction to something other than gluten? Have you had your antibody levels checked to see whether you are still being exposed to gluten?
×
×
  • Create New...